Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter's Egd Results!


jayhawkmom

Recommended Posts

jayhawkmom Enthusiast

We started the gluten-free diet in May of 2006, following positive blood tests and an inconclusive EGD. The EGD showed duodenal ulcerations, inflammation, mucousy patches, and other "issues" but the biopsies showed no villi damage. Or... not enough for them to "offically" label her as Celiac. We were, however, told to put her on the diet, immediately.

Around the time the school year started, she began having issues that required us to seek the help of her GI team, once again.

We assumed she was getting gluten in her system somehow...but could not isolate it. It was a mistake I made, I failed to realize just how "destructive" PlayDough can be to a kid with Celiac and/or wheat allergies.

Totally MY FAULT. Though, I had no clue that she played with it on a daily basis, in the school setting.

Once we figured that out, we removed it.... cold turkey. She has special playdough at school, home, and her caregivers house - totally gluten-free and safe.

Anyhow, she had her EGD last Friday, I got the results yesterday.

There is NO trace of any villi damage, her ulcerations are GONE, and aside from a little bit of tummy inflammation, she's perfectly healthy.... which led her GI to conclude that the play dough WAS/IS the problem.

I was just SOOO happy to hear that the other "problems" are GONE. No more ulcers, mucousy patches of "ick" - and generally speaking, no more "tummy ouchies!"

And her bowel issues have almost completely resolved since removing the actual brand name Play Dough from her hands. She's totally thrilled and happy with her Aroma Dough. So, to the parents who suggested that.... a HUGE debt of gratitude. THANK YOU!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

That is great, i am so happu for both of you.

paula

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,304
    • Most Online (within 30 mins)
      7,748

    Mandilynnm
    Newest Member
    Mandilynnm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
    • Scott Adams
      With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have it even if all of these tests are normal.
    • KDeL
      That all makes sense thank you.    I was within normal ranges - a little on the lower end.  So, the NCGS would still show positive biopsy? 
×
×
  • Create New...