Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Shingles And Celiac Be Related


confused

Recommended Posts

confused Community Regular

I was talking to my mom today and she was talking to my aunt yesterday and she was telling my mom that she went gluten free after she got the shingles for like the 3rd time and feels so great now. I was excited to heat she went gluten free, but didnt know if it could correlate with shingles.

But she did say she keeps getting headaches now, and i told my mom maybe she needs to get rid of casein or soy. And she was like well she was telling me how everything she eats and drinks now has to do with soy. So i was going to call her tommorow and tell her to give up soy. She is in her late 60's and has been taking many supplements for years, i actually use to make fun of all the pills she took, now im thinking i will be her soon lol.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor

From what I understand dermatitis herpetiformus and shingles look alike so my question would be "is it REALLY shingles and not DH????"

AllieB Newbie

One of my symptoms of being "glutened" is a decreased ability to fight off colds and other junk. I live in MN USA, so our 5 months of winter gives us a long cold and flu season. Isn't that what Shingles is? A dormant infection in our bodies that reappears? So I would say yes, if your mom's immune system is busy processing gluten it might have lost hold on Chicken Pox virsus and allowed it to surface again.

darlindeb25 Collaborator

This is from WebMD:

What is shingles?

Shingles (herpes zoster) is a viral infection of the nerve roots. It causes pain and often causes a rash on one side of the body, the left or right. The rash appears in a band, a strip, or a small area. Shingles is most common in older adults and people who have weak immune systems because of stress, injury, certain medicines, or other reasons. Most people who get shingles will get better and will not get it again.

What causes shingles?

Shingles occurs when the virus that causes chickenpox starts up again in your body. After you get better from chickenpox, the virus "sleeps" (is dormant) in your nerve roots. In some people, it stays dormant forever. In others, the virus "wakes up" when disease, stress, or aging weakens the immune system. It is not clear why this happens. But after the virus becomes active again, it can only cause shingles, not chickenpox.

That being said, it is nothing like DH. My daughter got shingles when she was 15 from stress. She was taking driver's training and had a totally obnoxious teacher. This teacher would tell the kids to do something such as driving up and off ramp, then as they did it, he would scream at them for going the wrong way--which they really didn't understand what was going on because they were simply doing what they were being told. She got so nervous and stressed out, that she came down with shingles, diagnosed by the doctor. She is 25 now and still will have very painful ribs at stressful times and to this day, does not have a driver's license.

I do know that the stress of celiac disease could "wake" up the dormant virus, which will be shingles and not chicken pox, once you have had chicken pox. Do a search on "shingles and celiac disease".

nb-canada Apprentice
I was talking to my mom today and she was talking to my aunt yesterday and she was telling my mom that she went gluten free after she got the shingles for like the 3rd time and feels so great now. I was excited to heat she went gluten free, but didnt know if it could correlate with shingles.

But she did say she keeps getting headaches now, and i told my mom maybe she needs to get rid of casein or soy. And she was like well she was telling me how everything she eats and drinks now has to do with soy. So i was going to call her tommorow and tell her to give up soy. She is in her late 60's and has been taking many supplements for years, i actually use to make fun of all the pills she took, now im thinking i will be her soon lol.

paula

You read my mind. I have been wondering the same thing - in fact I have been searching on this site for any posts about Shingles and was going to start a post asking the same question.

I have had shingles 4 times. :( I had them twice within a year about 14 years ago & then again twice in the same year about 2 years ago. Thankfully they were on my neck so I noticed them before they got out of hand. I was able to get medication which stopped it in its tracks. :blink:

My son was diagnosed 4 months ago with celiac disease & I am being tested. I am discovering that a lot of my problems over my life are connected to celiac disease. So do you think Shingles is connected to celiac disease too? Is there anyone else out there that has had shingles multiple times or just once?

P.S. My son also has DH

Fiddle-Faddle Community Regular
From what I understand dermatitis herpetiformus and shingles look alike so my question would be "is it REALLY shingles and not DH????"

I've had both, and while they may LOOK alike, they do not FEEL alike.

With shingles, in addition to the unbearable itchy burney oozing blisters, the entire nerve is inflamed. If you have ever had a pinched nerve, you know how painful that is. Now imagine that kind of pain, along a spinal nerve, from the spine all the way to wherever that nerve ends. In my case, it was a nerve that ran from my neck all the way down to my left hand, and it was way worse than childbirth.

The similarity IS striking, though. When I had my DH outbreak, I thought it was a repeat episode of shingles at first, because it LOOKED like it--but it was on both arms, not one, and it was perfectly symmetrical, and there was no nerve pain at all.

In fact, that's how I ended up here: I googled "symmetrical rash" and "thyroid," and guess what popped up?! :P

confused Community Regular

Thanks for everyones input. I know she has said her "shingles" is very painful, but that is all i can remmeber she has said. I am calling her tommrow if i have the energy, this flu is kicking my butt.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,960
    • Most Online (within 30 mins)
      7,748

    jujubean
    Newest Member
    jujubean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluyen free earing may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
    • Wheatwacked
      My mom said when he was born "you got what you gave".  Until 5 years of he was gluten free, was well liked by his friends, although did get them into mischief at times, a leader of his group of friends, physically active and paid attention, as much as any preschooler.      At 5 years old we moved to my hometown and had to rely on our friends, my pediatrition (still the best doctor I ever had), my wife was a nurse so her aquaintences and doctor friends.  They all still believed back in 1980's that Celiac was a growing phase, and he wanted to be like everyone else.  So everyone's opinion was that if he tolerates gluten with no symptoms he had outgrown it.  He passed the summer at the beach (lots of vitamin D) was a prodegy swimmer and the whole team liked him and he fit in well.     Fall came, he started kindergarden school, less sun ( low vitamin D, Seasonal Affective Disorder is real), new people and a morning schedule that did not end up in a fun, active day at the beach.  Getting him going got more difficult.  By the first teacher-parent meeting in December, they brought up the subject.  He was disruptive in class.  By then we had forgotten what his doctor said 5 years earlier.  So he was diagnosed as ADHD.      Competitive swimming was his saving grace.  All though High School he continued to swim with his competetive team most days after or before school and with the beach club team in addition in the summer.  Some records he set lasted years.  After high school he became a professional ocean guard. Now getting close to retirement.  But always had difficulty concentrating on schoolwork.      He, and his wife, incidentally, is now having the health problems that I just have just gotten rid of.  I had forgotten what the doctor said to us 60 years earlier, bout Celiac Disease being hereditory.  He is starting to listen, but still in denial.  Loves his pizza.  At 63 I had arthritis, fibromyalgia, sleep apnea, enlarged prostate, alcoholism and I got dumber as the years passed.  They all are gone with gluten free and vitamin replenishment. My wife had allergies, endometriosis, fertility problems and miscarriages.  She passed 18 years ago. Sorry for the long story.  Reminds me of a Joni Mitchell song.  "L've looked at life from both sides now. From win and lose, but still somehow, it's life's illusions I recall. I really don't know life, at all"  
    • Beverage
      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
×
×
  • Create New...