Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

504 Plans


buffettbride

Recommended Posts

buffettbride Enthusiast

Well, this thread is starting with some great news. My daughter was accepted into a local public school with an arts focus. She'll get to spend 90 minutes a day in a theatre class, in addition to a rigorous academic program. She has attended a private, Catholic school up to this point, where a 504 plan would not apply.

If it was just a "normal" public school, I would probably address the issue of exposure to gluten the way I have now--by working with the teachers and staff directly.

However, because of the arts-focus of the school, they will be doing work with face makeup as well as visual arts programs (I have visions of mass-flour floating around from paper machier projects), I think it is just a gluten-disaster waiting to happen. Not to mention a lot of other activities, such as travel, that happen as part of this program. So, we're thinking a 504 plan might be for us, to ensure she has a safe environment as well as ensure her teachers know (as well as they possibly can) the true risk gluten exposure can cause and finding alternative activities and products for her, if necessary. We might ask for the use of a microwave during lunch to eat up that ever-so-awful-cold gluten-free food.

I've seen a few samples of 504 plans I really like, so I think I know what direction I want to go with it. This is a really great opportunity for her (she auditioned against over 100 other students to get 1 of 14 spots in the theatre program).

Any experiences, good and bad you want to share about your 504 plan, or why you chose not to go that route?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Congrats to your daughter on getting into such a great school! That's quite an achievement. That said, I know nothing about 504 plans :) Hopefully someone who knows something about them will reply soon.

buffettbride Enthusiast
Congrats to your daughter on getting into such a great school! That's quite an achievement. That said, I know nothing about 504 plans :) Hopefully someone who knows something about them will reply soon.

Thanks so much! (I guess no one is in the mood to discuss 504 plans, and I'm scouring the earth for gluten-free stage makeup!)

She had to write an essay on why she wanted to go to school there, and the theme was that as isolating as celiac can be, when she is on stage, she gets to be like everyone else and that performing makes her feel normal and free from the disease.

I am a very, very proud mama. (what's even better is since it is a public magnet school, it is not tuition-based, so it was like getting a $600 raise per month when she starts!). So, now we'll have more money to buy her gluten-free food. LOL.

dbmamaz Explorer

My son has an iep due to emotional difficulties, so I dont really know much about a 504, but I can tell you, getting an IEP was a total fight - the school kept saying that if his disability didnt get in the way of his education, they were not obligated to give him any specail treatment. Finally he failed out of the gifted program, and they agreed to help him :huh:

Anyways, there's a website called wrightslaw, i think, which is all about IEP and I believe also 504, you might want to check there.

Also, with or without a 504, you'll still have to work with the teachers a lot - no matter what the IEP (or 504) says, if its not enforced, or there's no buy-in, the teachers will feel free to ignore it or 'forget'.

good luck and congrads to your daughter

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,965
    • Most Online (within 30 mins)
      7,748

    JenniferNOhio
    Newest Member
    JenniferNOhio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • gregoryC
      The best gluten-free pizza is on the Celebrity Summit, but the Celebrity Beyond Pizza still beats and land gluten-free pizza. 
    • gregoryC
      The gluten-free cakes at cafe al Bacio
    • gregoryC
      The gluten-free section on the buffet 
    • gregoryC
    • knitty kitty
      @glucel, I agree with @trents.  You can still do the AIP diet while taking aspirin.   I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin.  Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part of the problem is that those drugs, aspirin and warfarin, as well as others, can cause nutritional deficiencies.  Pharmaceuticals can affect the absorption and the excretion of essential vitamins, (especially the eight B vitamins) and minerals.   Potential Drug–Nutrient Interactions of 45 Vitamins, Minerals, Trace Elements, and Associated Dietary Compounds with Acetylsalicylic Acid and Warfarin—A Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC11013948/   Aspirin causes a higher rate of excretion of Thiamine Vitamin B1.  Thiamine deficiency can cause tachycardia, bradycardia, and other heart problems.  Other vitamins and minerals, like magnesium, are affected, too.  Thiamine needs magnesium to make life sustaining enzymes.  Without sufficient Thiamine and magnesium and other essential nutrients our health can deteriorate over time.  The clinical symptoms of Thiamine deficiency are subtle, can easily be contributed to other causes, and go undiagnosed because few doctors recognize Thiamine deficiency disorders. Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Celiac Disease causes malabsorption of vitamins and minerals.  Supplementing with essential vitamins and minerals can boost absorption.   Our bodies cannot make vitamins and minerals.  We must get them from our diet.  The Gluten free diet can be low in Thiamine and the other B vitamins.  Gluten free processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts. You would be better off supplementing with essential vitamins and minerals than taking herbal remedies.  Turmeric is known to lower blood pressure.  If you already have low blood pressure, taking turmeric would lower it further. Curcumin/turmeric supplementation could improve blood pressure and endothelial function: A grade-assessed systematic review and dose-response meta-analysis of randomized controlled trials https://pubmed.ncbi.nlm.nih.gov/38220376/ I've taken Benfotiamine for ten years without any side effects, just better health. Other References: Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation https://pmc.ncbi.nlm.nih.gov/articles/PMC7230706/ Bradycardia in thiamin deficiency and the role of glyoxylate https://pubmed.ncbi.nlm.nih.gov/859046/ Aspirin/furosemide:  Thiamine deficiency, vitamin C deficiency and nutritional deficiency: 2 case reports https://pmc.ncbi.nlm.nih.gov/articles/PMC9023734/ Hypomagnesemia and cardiovascular system https://pmc.ncbi.nlm.nih.gov/articles/PMC2464251/ Atypical presentation of a forgotten disease: refractory hypotension in beriberi (thiamine deficiency) https://pubmed.ncbi.nlm.nih.gov/31285553/
×
×
  • Create New...