Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Be Polite But...


Glutina

Recommended Posts

Glutina Rookie

sorry....double posted..please go to other thread...:)

-Glutina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Glutina Rookie

Hello all you lovely gluten-free people,

Let me first say hello as I am new to this community (Canadian) and also this way of life.

I was disgnosed with extreme gluten sensitivity a month ago now (yes----my specialist actually took the time to test me and when celiac blood test came back negative (haven't had biopsy...don't want it...) but I still had a ton of symptoms, he tested me further until he could give me an answer!!!) and so far things have been going...okay. I am a 25 year old student, and the budget is posing a bit of a problem as is finding the time to properly cook my own healthy gluten free meals...BUT I feel like my old self again, which is the proof to me that this is what I need to be doing, so it is all worth it I think!

Anyhoo, back to my original topic....

So, I went to a friend's for dinner. There were quite a few people there and it just so happens that another friend who came also has gluten issues, so the chef (our friend as well, the host) said he would cook a gluten free meal. Well, I arrived early and teh place smelled great! I asked if I could help at all and he gave me some things to do. While i was in the kitchen, I noticed him just tossing stuff in like bread crumbs (!!!) and sour cream and other random things. I asked him if this was a non-gluten-free dish, and he said "ooooh right...I'm sorry, I just totally forgot..." and so I got quite concerned at this point. I mean, I feel "bad" having to get him to go out of his way to make a gluten free meal even though I offered to bring my own food (he said NO way as he likes to cook anyway) but then it is also a pain because I know some of the dishes were glutened....and now, 4 hours later, I am feeling bloated and have bad indigestion, gas, and reflux.

My questions are: how do you handle going over to friends' places for dinner without seeming obsessive or rude? How do you ensure that your meal is gluten free? Do you just eat it and suffer later? (Although for true celiacs I know this is not really an option...)

Please feel free to add any other comments pertaining to this topic. Any and all advice is appreciated! Have a great day!

-Glutina

Glutina Rookie

sorry...please reply in other thread...double posted accidentally

Guest Happynwgal2
sorry....double posted..please go to other thread...:)

-Glutina

I cannot find your original posting, but I see this one, and read the one you posted about dinner at a friends house - I got it in my email. You are now bloated because it turned out he forgot to do a gluten free dinner like he promised.

I am sorry that you are feeling bad - and hope that you will just take it as a temporary setback.

When I go to friends for dinner, I sometimes tell them I'd love to bring my gluten free bread, to show them how tasty gluten free food can be. Often this gets a conversation going about gluten, which gives me a chance to tell my friend how sick I become from gluten. My friends all understand how sick I get and I help them by offering to bring a safe dish that is gluten free. It works out great every time. I now have friends who go out of their way to give me gluten free food - and I appreciate it.

So your friend meant well, but probably does not quite understand how seriously impacted your body gets from gluten.

Good luck with your next dinner party!

YoloGx Rookie
Hello all you lovely gluten-free people,

Let me first say hello as I am new to this community (Canadian) and also this way of life.

I was disgnosed with extreme gluten sensitivity a month ago now (yes----my specialist actually took the time to test me and when celiac blood test came back negative (haven't had biopsy...don't want it...) but I still had a ton of symptoms, he tested me further until he could give me an answer!!!) and so far things have been going...okay. I am a 25 year old student, and the budget is posing a bit of a problem as is finding the time to properly cook my own healthy gluten free meals...BUT I feel like my old self again, which is the proof to me that this is what I need to be doing, so it is all worth it I think!

Anyhoo, back to my original topic....

So, I went to a friend's for dinner. There were quite a few people there and it just so happens that another friend who came also has gluten issues, so the chef (our friend as well, the host) said he would cook a gluten free meal. Well, I arrived early and teh place smelled great! I asked if I could help at all and he gave me some things to do. While i was in the kitchen, I noticed him just tossing stuff in like bread crumbs (!!!) and sour cream and other random things. I asked him if this was a non-gluten-free dish, and he said "ooooh right...I'm sorry, I just totally forgot..." and so I got quite concerned at this point. I mean, I feel "bad" having to get him to go out of his way to make a gluten free meal even though I offered to bring my own food (he said NO way as he likes to cook anyway) but then it is also a pain because I know some of the dishes were glutened....and now, 4 hours later, I am feeling bloated and have bad indigestion, gas, and reflux.

My questions are: how do you handle going over to friends' places for dinner without seeming obsessive or rude? How do you ensure that your meal is gluten free? Do you just eat it and suffer later? (Although for true celiacs I know this is not really an option...)

Please feel free to add any other comments pertaining to this topic. Any and all advice is appreciated! Have a great day!

-Glutina

I am starting to think its always important to bring some gluten free food anyway just in case its needed. You can put it in a small ice chest so it will keep in case you don't need it--and/or share it with others. This goes for eating at a restaurant too.

When I put on a potluck with poetry and art event I always make an inexpensive but good main dish and salad so I will have something to eat that I can share with others. Everyone loves it and gradually they are becoming aware there are people like me who need to be gluten etc. free and that, hey, its not so bad after all!

Yolo

ptkds Community Regular

With as sick as I get, I wouldn't just "eat it and deal w/ the consequences". I will never eat gluten intentionally. If it is an accident, that is a different story. Just explain to your friend that you really can't be sick in the next few days, and you would rather be safe than sorry.

tarnalberry Community Regular

in a case like that, you knew it had gluten, so you simply say, "I really appreciate the effort that went into the meal, but I can't eat it. I'll still enjoy spending time with you guys, though!" And DON'T EAT IT!!!! you do not have to make yourself sick, and do bodily harm to yourself 'to be polite'.

in many cases, you don't know. which is why, if I don't know a friend WELL, and don't know that they really get the idea that gluten hides in all kinds of things, I'll often just say "I'll just bring my own food; I'm more comfortable with that." again, you do not have to risk making yourself sick and doing bodily harm to yourself in order to be polite.

in the case of a friend whom I am confident of knowing the diet, and who's worked with me on ingredients, I will usually let them cook, but will ask questions and offer suggestions, based on what they're cooking. it might be more 'polite' to stay quite, but you do not have to risk making yourself sick and doing bodily harm to yourself in order to be polite.

(they say you have to repeat yourself three times to be remembered... ;) )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

I would never eat a friend's cooking if I knew it contained gluten. When friends offer to cook for me, I either say I'll bring my own food or I go over and help them prepare the food. That way I can supervise. I've got great friends, though. They'll send me the menu and recipes, I can reply with the potential gluten trouble spots.

debmidge Rising Star

My sister in law did that routine to her brother (my husband) --- peeling potatoes (a good thing) to make mashed potatoes BUT while she was peeling the potatoes she was eating gluten Italian bread and the crumbs were flying on the newly peeled potatoes, flying in the pot of cut potatoes. We were aghast (I tried to arrive there early on so that I could do that job but I couldn't get out of work early enough). So I pointed out to her that the bread crumbs shouldn't be in the same area of the gluten free food preparation. She casually answered, "Well the bread crumbs will come out when we drain the boiled potatoes!" We inwardly cringed and freaked out. In her case, it's a combination of "passive-aggressive" thing going and a bit of really thinking the crumbs can "rinse" away after they are boiled with the potatoes. I quietly rinsed off the cut uncooked potatoes one at a time to make sure that there was no residue of crumbs while she took umbrage that I was doing this (thinking I was taking too much precaution). Mike ate it and was Ok. But we never ate there again after that.

MaryJones2 Enthusiast

Eating at others houses is the most difficult because you have an emotional attachment to the people you're visiting with and saying NO is so much harder (at least for me). But I always say NO if there is any doubt. Better safe than sorry.

I totally sympathize with you. We have a group of friends who really believe they understand gluten-free cooking and always make a big production of making a gluten-free meal for me. No matter how many times I tell them I'm more comfortable bringing my own food and prefer to do so they insist on making the entire meal 'gluten-free'. The problem is they use many questionable ingredients, don't always remember that things like soy sauce aren't gluten-free, cook things on the same grill, etc. To top things off they cook a huge loaf of bread and warm everything in the same oven and then put the bread on the same plate as the vegetables and serve it buffet style so bread crumbs cover every dish. I get around eating their food by eating before I leave home and snacking on the food I bring. I never eat their stuff and they are always dissappointed but insist on trying every time. I hope eventually they will get it and move on.

My friends have the absolute best intentions and I love them for being sensitive and trying but I've long passed the point of eating something to prevent hurting others feelings. I am only hurting myself if I do and I'm not willing to compromise myself.

I'd like to say these situations will get better over time but you're always going to have to deal with this. What will get easier is being able to say NO with conviction.

YoloGx Rookie
Eating at others houses is the most difficult because you have an emotional attachment to the people you're visiting with and saying NO is so much harder (at least for me). But I always say NO if there is any doubt. Better safe than sorry.

I totally sympathize with you. We have a group of friends who really believe they understand gluten-free cooking and always make a big production of making a gluten-free meal for me. No matter how many times I tell them I'm more comfortable bringing my own food and prefer to do so they insist on making the entire meal 'gluten-free'. The problem is they use many questionable ingredients, don't always remember that things like soy sauce aren't gluten-free, cook things on the same grill, etc. To top things off they cook a huge loaf of bread and warm everything in the same oven and then put the bread on the same plate as the vegetables and serve it buffet style so bread crumbs cover every dish. I get around eating their food by eating before I leave home and snacking on the food I bring. I never eat their stuff and they are always dissappointed but insist on trying every time. I hope eventually they will get it and move on.

My friends have the absolute best intentions and I love them for being sensitive and trying but I've long passed the point of eating something to prevent hurting others feelings. I am only hurting myself if I do and I'm not willing to compromise myself.

I'd like to say these situations will get better over time but you're always going to have to deal with this. What will get easier is being able to say NO with conviction.

I totally agree with you. I wasn't as proactive as I should have been and then had 2 relapses with this flu and now my old scarred right kidney is acting up. Fortunately I know what detox herbs to take (and have them boiled up) and soothing marsmallow root plus am eating some cranberries with stevia so the worst is over. I still have a headache and some tenderness but it seems it will pass. The burning has stopped.

However I really have learned my lesson the hard way. I cannot even have tea a food preparer has made up without reacting unless they wash their hands and have me open the tea bag. I just wasn't so reactive when I was regularly eating or being exposed to hidden gluten. But its worth it since my joints are now stronger and overall I am getting to be a lot healthier--and presumably will get back to that any day now. At least this damn flu/bronchitis is gone and over with!

From now on I am taking my ice cooler bag and thermos with me everywhere.

Yolo

Wonka Apprentice
I am starting to think its always important to bring some gluten free food anyway just in case its needed. You can put it in a small ice chest so it will keep in case you don't need it--and/or share it with others. This goes for eating at a restaurant too.

When I put on a potluck with poetry and art event I always make an inexpensive but good main dish and salad so I will have something to eat that I can share with others. Everyone loves it and gradually they are becoming aware there are people like me who need to be gluten etc. free and that, hey, its not so bad after all!

Yolo

I do the same. I am having a pot luck on friday for my mom friends (this is an regular Feb thing). I am making a Greek Briami and a gluten free chocolate cake so that I have a safe main dish and a dessert I can partake in.

Gwen B Rookie
Hello all you lovely gluten-free people,

Let me first say hello as I am new to this community (Canadian) and also this way of life.

I was disgnosed with extreme gluten sensitivity a month ago now (yes----my specialist actually took the time to test me and when celiac blood test came back negative (haven't had biopsy...don't want it...) but I still had a ton of symptoms, he tested me further until he could give me an answer!!!) and so far things have been going...okay. I am a 25 year old student, and the budget is posing a bit of a problem as is finding the time to properly cook my own healthy gluten free meals...BUT I feel like my old self again, which is the proof to me that this is what I need to be doing, so it is all worth it I think!

Anyhoo, back to my original topic....

So, I went to a friend's for dinner. There were quite a few people there and it just so happens that another friend who came also has gluten issues, so the chef (our friend as well, the host) said he would cook a gluten free meal. Well, I arrived early and teh place smelled great! I asked if I could help at all and he gave me some things to do. While i was in the kitchen, I noticed him just tossing stuff in like bread crumbs (!!!) and sour cream and other random things. I asked him if this was a non-gluten-free dish, and he said "ooooh right...I'm sorry, I just totally forgot..." and so I got quite concerned at this point. I mean, I feel "bad" having to get him to go out of his way to make a gluten free meal even though I offered to bring my own food (he said NO way as he likes to cook anyway) but then it is also a pain because I know some of the dishes were glutened....and now, 4 hours later, I am feeling bloated and have bad indigestion, gas, and reflux.

My questions are: how do you handle going over to friends' places for dinner without seeming obsessive or rude? How do you ensure that your meal is gluten free? Do you just eat it and suffer later? (Although for true celiacs I know this is not really an option...)

Please feel free to add any other comments pertaining to this topic. Any and all advice is appreciated! Have a great day!

-Glutina

I sympathise with you. It is difficult to explain to people and while I agree with others on this thread that you need to take charge of your health and avoid food you cannot be sure about, I managed to not eat anything except what I brought at four parties over the holidays, but was not able to avoid refusing food at some newer friends when invited to join them for dinner. My friend is Japanese and wanted to provide a new experience for us. She tried hard to cook something that I could eat, gluten-free,CF, soy free but not knowing the ingredients of her salads was difficult to explain. I had a great seaweed/cucumber salad with a dressing which was probably made with a vinger/sugar, and my own gluten-free sushi, vegetables but I was sick that night, the next day and felt tired and depressed all week. I would have liked to question her more about ingredients (most Mirin is not, gluten-free and I suspect was the sweet vinegar in the dressings)but felt unable to trouble her when she had put on such a splendid spread for us all. She is very polite and sensitive, I think. She won't even cook any meat in the house for herself or husband because she says it would be impolite to her daughter who has chosen to be vegetarian.

Oh well. Next time I will get more involved in the preparation. Hope you feel better soon and have courage to say 'no thanks'.

Glutina Rookie

Hi again everyone,

Thanks sooo much for all the responses!

It is really nice to see that other gluten-intolerant poeple out there have ben put in this same situation and had the courage to just bring their own food and be firm.

I realize now that this is MY body and MY health, and people inviting me over for dinner will never really understand the hell I go through when I am glutened, despite their best intentions.

Also, you guys made me see that there is no need to just "put up with it"....I mean, it really does affect me badly for a few days after, as you all know. So for them it's a temporary thing and they think that a "pinch" of this or a dash of something else with gluten won't hurt because they think it's not enough. But the truth is, I know that I am very sensitive and therefor I should take charge of my own health and speak up.

Thanks for reminding me that this is my body and it is okay to say no to poeple and bring my own food....and that's just what I have to do.

Wishing you all a grrrreat rest of the week! Thanks again for the replies! I look forward to making this community a part of my new gluten-free life.

:)

-Glutina :D

YoloGx Rookie
Hi again everyone,

Thanks sooo much for all the responses!

It is really nice to see that other gluten-intolerant poeple out there have ben put in this same situation and had the courage to just bring their own food and be firm.

I realize now that this is MY body and MY health, and people inviting me over for dinner will never really understand the hell I go through when I am glutened, despite their best intentions.

Also, you guys made me see that there is no need to just "put up with it"....I mean, it really does affect me badly for a few days after, as you all know. So for them it's a temporary thing and they think that a "pinch" of this or a dash of something else with gluten won't hurt because they think it's not enough. But the truth is, I know that I am very sensitive and therefor I should take charge of my own health and speak up.

Thanks for reminding me that this is my body and it is okay to say no to poeple and bring my own food....and that's just what I have to do.

Wishing you all a grrrreat rest of the week! Thanks again for the replies! I look forward to making this community a part of my new gluten-free life.

:)

-Glutina :D

the other difficult thing with eating at friends and relatives and restaurants is that they usually have been cooking with utensils exposed to gluten, not to speak of pots and pans and counters... The best way to deal with this is to bring your own no matter what the host says. Tell them its a medical problem and you can't compromise whether they would be disapointed or not. If its not in a restaurant make enough to share so your friends can find out gluten free doesn't have to be bad or tasteless... Or maybe suggest a picnic instead...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    2. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    3. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    5. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,767
    • Most Online (within 30 mins)
      7,748

    Sharon Bing
    Newest Member
    Sharon Bing
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...