Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New...and A Question

Hippie

By Hippie
in Coping with Celiac Disease

Recommended Posts

Hippie Newbie
Hippie
Posted

I was just diagnosed...and because I have a bad doctor that didn't tell me much, and I can't figure it out looking anywhere on the internet...will this ever go away? Or am I stuck with this for life?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fedora Enthusiast
fedora
Posted

I am sorry for your frustration. You have arrived at a good place. Welcome. Were you diagnosed with Celiac Disease? If you were, this is lifelong. I am sorry if this upsets you. There are many wonderful people here willing to help you figure it all out. There are also books, magazines, etc.

This is where the real experts are- the ones who are living with it. Good luck, May your healing begin!

home-based-mom Contributor
home-based-mom
Posted
I was just diagnosed...and because I have a bad doctor that didn't tell me much, and I can't figure it out looking anywhere on the internet...will this ever go away? Or am I stuck with this for life?

No, this will not ever go away. It's unfortunate that you have a bad doctor - read for a bit in this forum and you will discover that you are not alone in that one!

This forum is a God send for information and support. Hang out here and you will learn so much.

This may sound harsh, but the whole transition will be much easier for you if you if you ditch the victim mentality. You were stuck being sick and now you know what was wrong. There is a way to make yourself well again and you can do it. There is a learning curve and you will fall as we all have, but we learn and we get better and eating well gets easier. You are now in control of what you eat and have taken the first steps to getting your health back.

Choose to eat healthy - the pre-packaged, over-processed, preservative-laden American isn't healthy for anyone.

Gluten-free eating does not have to be boring. The other night we had lasagna and chocolate cake - all gluten free! :)

Welcome!

Kilika Newbie
Kilika
Posted

I'm sorry to say, but as far as I know any research I've done says you gotta go gluten-free for life. Kinda like needing insulin for life as a diabetic. That's how I understand it, can others confirm??

flourgirl Apprentice
flourgirl
Posted

Celiac isn't exactly like Diabetes....you don't have to conastantly monitor your body sysems! All you have to do is to be careful.....oh, so careful......of what it is that goes into your mouth! The initial healing may take a while...depending on just how sick you are. Patience, and trust, and feel free to lean on any of these wonderful, helpful people who have been there, done that. If you're lucky, gluten may be your only concern. Many have Diabetes as well as Celiac...a very good many have other intolerances as well and have to be doubly vigilant about their foods.

Celiac is more like a LIFE Sentence....in that you must eat healthy. You can eat junk foods, just not gluten foods. The less processed the better. That is true of everyone, I wish I could get all of my loved ones to eat simpler, more natural foods for better health.

Anyway...attitude is a lot of it. Changes may get you feeling down..there is depression that comes with Celiac, but improves with health. If you do your best to look at it all with a positive attitude, it will all go better for you. Get as much info. as you can and just keep trying. Good luck and good health to you!

happygirl Collaborator
happygirl
Posted

Celiac is a life-long condition.

I recommend www.celiacdiseasecenter.columbia.edu and www.celiaccentral.org for more information (besides this site!)

Glutina Rookie
Glutina
Posted

Hi!

I know that this might seem like an obvious question...but have you thought of switching doctors or getting a second opinion..or going to a G.I. specialist? You should never feel like you have to be stuck with a bad doc. I have personally been lucky enough to a have a WONDERFUL doc who referred me to a great specialist, but am realizing after joining this forum that this is not the case for many! This is your life and YOUR health, and you get to choose who helps keep you healthy....docs included!

-Glutina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hippie Newbie
Hippie
Posted
  • Author

Well I have had really bad pain and uh...digestive problems...I'll just call it that? That hit me out of nowhere. Plus I've been sleeping for about 12 hours a day. And I have no energy. This has been going on a for a couple months. First my doctor told me to cut out dairy. I did that and didn't get better. Then they diagnosed me with IBS and gave me pills for that, called bentyl. That didn't help either. It jst kept getting worse. Then I ended up in the hospital. And they still never gave me a GI or a CT scan or anything. They just took my blood and a stool sample and they said everything was fine. They told me to try cutting out wheat, so I've just been eating fruit, vegetables, meat, and corn tortillas for the past couple weeks, and I feel a little better, so my doctor told me this is it. But sometimes I'm still in a lot of pain. I'm going to see a GI doctor on March 13th though just to make sure there's nothing else there.

fedora Enthusiast
fedora
Posted

Hi,

Healing can take a while. If you noticed improvement that's great, but realize it may take awhile. Two weeks is not long enough. There are specific blood tests that doctors can order and a biopsy that a GI can do. someone else would have more info on that than me. However, there are people who test negative on blood test and their biopsy shows no damage, but still are gluten intolerant. Please realize, gluten intolerance is more than wheat. It also includes rye, oats, barley, and spelt. You may not like your doctor, but it sounds encouraging that you DR would suggest this. There are people who have been dismissed by their doctors or their doctors refuse to believe they have gluten intolerance because their tests were negative. Good luck!

nikky Contributor
nikky
Posted

welome to the forum.. as the others have said this is life long, there is no cure

the thing about coeliac is that we are in controll of our health, only you can stop yourself eating gluten and therefore you can stop yourself getting sick.

healing takes time and there is the possibility of deficiencies and other intolerances to conted with (lactose intolerance seems pretty common among coeliacs).

eat healthy, and get as much variation in your diet as possible.

there are good celiac disease aware drs out there, im sorry that youve found one of the many bad ones but with help and support from the people on this site you will get there. Good luck. :)

Lshetler Rookie
Lshetler
Posted
They told me to try cutting out wheat, so I've just been eating fruit, vegetables, meat, and corn tortillas for the past couple weeks, and I feel a little better, so my doctor told me this is it. But sometimes I'm still in a lot of pain. I'm going to see a GI doctor on March 13th though just to make sure there's nothing else there.

I didn't notice much difference at all at first. The only way I knew I was intolerant to gluten was that when I went off it for a week, if I ate a slice of bread I wanted to die, lol. It wasn't until I was on a strict diet of only rice, veggies, and unseasoned chicken/fish that I felt better, and do I mean better! Now I can eat fruit as well; it takes time for the intestines to heal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748
    Dan Bryst
    Newest Member
    Dan Bryst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.