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New...and A Question

Hippie

By Hippie
in Coping with Celiac Disease

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Hippie Newbie
Hippie
Posted

I was just diagnosed...and because I have a bad doctor that didn't tell me much, and I can't figure it out looking anywhere on the internet...will this ever go away? Or am I stuck with this for life?

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fedora Enthusiast
fedora
Posted

I am sorry for your frustration. You have arrived at a good place. Welcome. Were you diagnosed with Celiac Disease? If you were, this is lifelong. I am sorry if this upsets you. There are many wonderful people here willing to help you figure it all out. There are also books, magazines, etc.

This is where the real experts are- the ones who are living with it. Good luck, May your healing begin!

home-based-mom Contributor
home-based-mom
Posted
I was just diagnosed...and because I have a bad doctor that didn't tell me much, and I can't figure it out looking anywhere on the internet...will this ever go away? Or am I stuck with this for life?

No, this will not ever go away. It's unfortunate that you have a bad doctor - read for a bit in this forum and you will discover that you are not alone in that one!

This forum is a God send for information and support. Hang out here and you will learn so much.

This may sound harsh, but the whole transition will be much easier for you if you if you ditch the victim mentality. You were stuck being sick and now you know what was wrong. There is a way to make yourself well again and you can do it. There is a learning curve and you will fall as we all have, but we learn and we get better and eating well gets easier. You are now in control of what you eat and have taken the first steps to getting your health back.

Choose to eat healthy - the pre-packaged, over-processed, preservative-laden American isn't healthy for anyone.

Gluten-free eating does not have to be boring. The other night we had lasagna and chocolate cake - all gluten free! :)

Welcome!

Kilika Newbie
Kilika
Posted

I'm sorry to say, but as far as I know any research I've done says you gotta go gluten-free for life. Kinda like needing insulin for life as a diabetic. That's how I understand it, can others confirm??

flourgirl Apprentice
flourgirl
Posted

Celiac isn't exactly like Diabetes....you don't have to conastantly monitor your body sysems! All you have to do is to be careful.....oh, so careful......of what it is that goes into your mouth! The initial healing may take a while...depending on just how sick you are. Patience, and trust, and feel free to lean on any of these wonderful, helpful people who have been there, done that. If you're lucky, gluten may be your only concern. Many have Diabetes as well as Celiac...a very good many have other intolerances as well and have to be doubly vigilant about their foods.

Celiac is more like a LIFE Sentence....in that you must eat healthy. You can eat junk foods, just not gluten foods. The less processed the better. That is true of everyone, I wish I could get all of my loved ones to eat simpler, more natural foods for better health.

Anyway...attitude is a lot of it. Changes may get you feeling down..there is depression that comes with Celiac, but improves with health. If you do your best to look at it all with a positive attitude, it will all go better for you. Get as much info. as you can and just keep trying. Good luck and good health to you!

happygirl Collaborator
happygirl
Posted

Celiac is a life-long condition.

I recommend www.celiacdiseasecenter.columbia.edu and www.celiaccentral.org for more information (besides this site!)

Glutina Rookie
Glutina
Posted

Hi!

I know that this might seem like an obvious question...but have you thought of switching doctors or getting a second opinion..or going to a G.I. specialist? You should never feel like you have to be stuck with a bad doc. I have personally been lucky enough to a have a WONDERFUL doc who referred me to a great specialist, but am realizing after joining this forum that this is not the case for many! This is your life and YOUR health, and you get to choose who helps keep you healthy....docs included!

-Glutina

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Hippie Newbie
Hippie
Posted
  • Author

Well I have had really bad pain and uh...digestive problems...I'll just call it that? That hit me out of nowhere. Plus I've been sleeping for about 12 hours a day. And I have no energy. This has been going on a for a couple months. First my doctor told me to cut out dairy. I did that and didn't get better. Then they diagnosed me with IBS and gave me pills for that, called bentyl. That didn't help either. It jst kept getting worse. Then I ended up in the hospital. And they still never gave me a GI or a CT scan or anything. They just took my blood and a stool sample and they said everything was fine. They told me to try cutting out wheat, so I've just been eating fruit, vegetables, meat, and corn tortillas for the past couple weeks, and I feel a little better, so my doctor told me this is it. But sometimes I'm still in a lot of pain. I'm going to see a GI doctor on March 13th though just to make sure there's nothing else there.

fedora Enthusiast
fedora
Posted

Hi,

Healing can take a while. If you noticed improvement that's great, but realize it may take awhile. Two weeks is not long enough. There are specific blood tests that doctors can order and a biopsy that a GI can do. someone else would have more info on that than me. However, there are people who test negative on blood test and their biopsy shows no damage, but still are gluten intolerant. Please realize, gluten intolerance is more than wheat. It also includes rye, oats, barley, and spelt. You may not like your doctor, but it sounds encouraging that you DR would suggest this. There are people who have been dismissed by their doctors or their doctors refuse to believe they have gluten intolerance because their tests were negative. Good luck!

nikky Contributor
nikky
Posted

welome to the forum.. as the others have said this is life long, there is no cure

the thing about coeliac is that we are in controll of our health, only you can stop yourself eating gluten and therefore you can stop yourself getting sick.

healing takes time and there is the possibility of deficiencies and other intolerances to conted with (lactose intolerance seems pretty common among coeliacs).

eat healthy, and get as much variation in your diet as possible.

there are good celiac disease aware drs out there, im sorry that youve found one of the many bad ones but with help and support from the people on this site you will get there. Good luck. :)

Lshetler Rookie
Lshetler
Posted
They told me to try cutting out wheat, so I've just been eating fruit, vegetables, meat, and corn tortillas for the past couple weeks, and I feel a little better, so my doctor told me this is it. But sometimes I'm still in a lot of pain. I'm going to see a GI doctor on March 13th though just to make sure there's nothing else there.

I didn't notice much difference at all at first. The only way I knew I was intolerant to gluten was that when I went off it for a week, if I ate a slice of bread I wanted to die, lol. It wasn't until I was on a strict diet of only rice, veggies, and unseasoned chicken/fish that I felt better, and do I mean better! Now I can eat fruit as well; it takes time for the intestines to heal.

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  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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