Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh

Oriana

By Oriana
in Coping with Celiac Disease

Recommended Posts

Oriana Newbie
Oriana
Posted

So, I have been sticking to this diet very carefully. I've been eating fresh fruits and veggies, rice, etc. I was doing sooo well. today I ate fresh veggies and a can of baked beans. I read the ingredients very carefully. I saw nothing that I did not recognize and nothing was gluten! Then a little while later I had problems. A few hours later. All it could possibly have been was those beans. I thought back about what I ate yesterday and I had nothing but fresh foods that I made myself... I'm just really frustrated because how can you keep from getting glutened if products that do not say they contain gluten still contain it!? Its so frustrating. I guess its just going to take me a long time to learn what I can and can't eat. Now I'm scared to eat anything that isn't a fresh vegetable. grr

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

You may not have been glutened. Rice and beans sometimes (not always, strangely) give me similar symptoms as gluten. Gluten is a lectin, and lectin foods include all grains (rice is a grain) and beans, amongst others.

Lisa Mentor
Lisa
Posted

I don't know your personal history but generally for most people it takes some time to heal.

It took me several months before I could eat a meal and it followed a "normal" route. If your villi are damaged think of your intestines like a water slide....whooooosh. :blink:

When the villi grow back they are able to absorb nutrients from the food we eat.

YoloGx Rookie
YoloGx
Posted
So, I have been sticking to this diet very carefully. I've been eating fresh fruits and veggies, rice, etc. I was doing sooo well. today I ate fresh veggies and a can of baked beans. I read the ingredients very carefully. I saw nothing that I did not recognize and nothing was gluten! Then a little while later I had problems. A few hours later. All it could possibly have been was those beans. I thought back about what I ate yesterday and I had nothing but fresh foods that I made myself... I'm just really frustrated because how can you keep from getting glutened if products that do not say they contain gluten still contain it!? Its so frustrating. I guess its just going to take me a long time to learn what I can and can't eat. Now I'm scared to eat anything that isn't a fresh vegetable. grr

Its possible there was cross contamination, but then again a lot of people with celiac initially can't digest beans very well--except for green ones that is. I still can't eat several kinds of them very often. My ex can't handle them hardly if at all. And yes its true, I find if I have potatoes instead of rice with soaked, slow cooked beans (really a safer route) its way more digestible. Actually if I use lentils or split pea they are easier to digest for me too. I often soak them for 24 hours so they are partially sprouted. I usually slow cook them with some meat which makes them a lot tastier--and then add a bunch of vegetables. This makes them way easier to digest.

Oriana Newbie
Oriana
Posted
  • Author

I usually eat beans because I don't eat meat. And I haven't had any problems until the baked beans. its weird. I don't really understand if it wasn't gluten then what it was. If it was the fact of beans I don't understand why it wouldn't have happened before this. I didn't even eat rice with them yesterday, I normally do but yesterday I had beans and fresh veggies for that meal. I don't know.. All I know to do is just keep trying and not eat those beans again. grr.

ravenwoodglass Mentor
ravenwoodglass
Posted
I usually eat beans because I don't eat meat. And I haven't had any problems until the baked beans. its weird. I don't really understand if it wasn't gluten then what it was. If it was the fact of beans I don't understand why it wouldn't have happened before this. I didn't even eat rice with them yesterday, I normally do but yesterday I had beans and fresh veggies for that meal. I don't know.. All I know to do is just keep trying and not eat those beans again. grr.

Does the can list any natural and/or artificial flavors? It could have been lurking in there. I don't know what brand you purchased but Hormel makes some gluten-free and they have a list on their website of the ones that are.

Darn210 Enthusiast
Darn210
Posted

Also check your can opener as a possible source of cc . . . most of them develop a ring of "buildup". I replaced mine. What brand of beans was it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Oriana Newbie
Oriana
Posted
  • Author

Thank you everyone for your replies. I think the brand was Daucy. My roommate took out the trash so I didn't get to check for "natural flavors" but I might go to the store tomorrow and read the can again and see! And make sure thats the brand name! hehe I remember what the can looks like! I haven't eaten that in years. So we'll see! But thanks again everyone!

dksart Apprentice
dksart
Posted

I usually make sure with the manufacturer if a product is not specifically labeled Gluten-free. The last time I didn't do that, I got poisoned. I was so excited to find a convenience product in Sam's that I could eat. It was chicken Marsala and it said "just add your own pasta." I ran home and made some Tinkyada fettuccine and baked this delicious looking tray of chicken breasts in a deep brown wine sauce with mushrooms. I even doctored it up with some fresh herbs, lemon zest and capers. It took a little over ten minutes to know that it WAS too good to be true. I called the company and they informed me that they sometimes used different thickeners and were not sure if there was wheat in one of them! Plus there was no warning about "this made in a facility...." blah, blah, blah.

Never again. Whole fresh foods and a minimal amount of canned or frozen. No processed, preserved or packaged poisons for me!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    2. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    4. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    5. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.