Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy


Mr. Pep'r

Recommended Posts

Mr. Pep'r Contributor

I am once again getting frustrated. There have been a few times that I was CC and we have figured out why. At the time of sending in my Entrolab sample was one of the times I was CC. My casein IgA antibody was 26 units. So the past two weeks I took dairy out of my diet. Dairy is something I would have everyday from milk to yogurt to cheese. I never felt bad after having dairy. I tried a goats milk cheese on Monday and all week I have not been right. What is going on?

Did my IgA antibody show high because I CC myself?

Is taking dairy out of my diet really a good idea?

Could this IgA antibody reading come down over time and is this a real accurate test? (all the email just gave me was numbers, when I send my truck's oil in for an analysis ($26) I get the lab tech statement on how my oil is doing and what I could expect. This test I ordered was $300 and got nothing... just numbers.)

When does this all end and when will a normal life begin?

How do I get my GI to return my two phone calls from December and January?

,

When can I get some kind of help or information other than "watch what you eat" from my GP and GI?

In order for me do my job I need to get this under control, when it seems it be something else gives me a problem. Any addition resources or pointing me in another direction would be very helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I would go straight to the enterolab site and read your results, cause i bet the rest got cut out of the info you got in email. I had to do that cause all i got was numbers and no range and i thought i was normal til i read on the site that i was far from normal lol.

I would cut out all casein for at least 6 months to an year and then see if u can add back it back in. I keep telling myself i need to try it back in but im so afraid to.

paula

Mom23boys Contributor
I am once again getting frustrated. There have been a few times that I was CC and we have figured out why. At the time of sending in my Entrolab sample was one of the times I was CC. My casein IgA antibody was 26 units. So the past two weeks I took dairy out of my diet. Dairy is something I would have everyday from milk to yogurt to cheese. I never felt bad after having dairy. I tried a goats milk cheese on Monday and all week I have not been right. What is going on?

Did my IgA antibody show high because I CC myself?

a single CC will not spike an Enterolab test that high, that fast.

It takes more than 2 weeks to get dairy out of your system. Plan on at least 2 months.

Goats cheese has a similar casein to cow cheese. Some react more to goat while some react more to cow. It you are testing casein/dairy, take it all out.

Nancym Enthusiast
Did my IgA antibody show high because I CC myself?

No, it is casein, not gluten. Two different things.

Is taking dairy out of my diet really a good idea?

Yes. You can get plenty of calcium in your diet by eating things like broth made from cooking chicken bones for a long time, or veggies like broccoli. Remember that dairy is kind of new to human kind, humans didn't start dairying until at most 10,000 years ago, in some places in the world they still don't eat dairy products and they're doing pretty good (parts of Africa, lots of Asia).

When does this all end and when will a normal life begin?
This is your life. Your labels of normal or whatever don't really mean anything. You get to choose now between doing things to improve your health or not. We all have to make choices like that. I suppose when I was a smoker I could call that "normal" and I could be resentful of having to give up something that is harmful to me. Or being someone that has to struggle with my weight I could call eating sugar and flour everyday all day "normal" and be resentful that I'm not normal. Or I could actually come to grips with reality as it stands and realize that I have choices here and that making the wrong choices will have consequences. Maybe not today, but years down the road.

Also, goat cheese or milk is dairy too. I also react to it. My reactions to dairy are much different than to gluten. I break out, I get muscle spasms and I get sinus problems. On dairy, I can't breathe through my nose at night. Off dairy, I can. Also dairy sometimes constipates the heck out of me.

Try to give it a few weeks dairy free... really dairy free this time, and see if you feel better. Yes making changes is tough but it is a mental game. Once you figure out what to eat it becomes easy.

In order for me do my job I need to get this under control, when it seems it be something else gives me a problem. Any addition resources or pointing me in another direction would be very helpful.

Probably the best resources are right here asking people that are going through it questions, like you're doing.

fedora Enthusiast

I have been having dairy questions also.

I got my enterolab test results back last monday.

Fecal anti-casein (cow's milk) IgA antibody 26 Units (Normal Range <10 Units)

I have only noticed problems with lots of cheese. But I realized it could be damaging me without me knowing. Someone on here said that casein and gluten are similar on a molecular level. Does this mean I need to stay off casein forever or that eventually I might be able to reintroduce after I heal the damage from gluten. I know I should not eat any now, Just wondering about many months down the road. If you make antibodies to other things than gluten(casein, egg, soy....) are these also life time intolerances or just caused from the intestional damge from gluten. Thanks

Mom23boys Contributor
But I realized it could be damaging me without me knowing. Someone on here said that casein and gluten are similar on a molecular level. Does this mean I need to stay off casein forever or that eventually I might be able to reintroduce after I heal the damage from gluten. I know I should not eat any now, Just wondering about many months down the road. If you make antibodies to other things than gluten(casein, egg, soy....) are these also life time intolerances or just caused from the intestional damge from gluten.

I was told by our nutritionist that you don't mess with gluten and casein -- they are life long issues. The problem with this is that they often do not remain constant -- symptoms can morph and fool people into thinking they are healed yet often new symptoms show up that the sufferer doesn't always associate with the trigger.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,211
    • Most Online (within 30 mins)
      7,748

    meseke
    Newest Member
    meseke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • jeema
      In addition to cutting out oats, you may want to investigate any medications or supplements you're taking - they can sometimes contain gluten.  You can check medication ingredients online at sites like DailyMed (www.dailymed.nlm.nih.gov).
    • thejayland10
      thank yo, i still eat a bit of dairy and a fair amount of processed foods. I wonder if I have sibo... I will look into that 
    • trents
      I think the best you will be able to do is to find out if gluten, or at least wheat, barley or rye is an intentional ingredient in a smoke product and only the manufacturer can answer that question. Since smokes are regulated by the AFT and not the FDA, allergens are not required to be declared in the labeling.
    • brian weinstein
      yes i understand that pectin is gluten free ty.  i want to know if any cigars are gluten free its a simple question
    • trents
      Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the same as saying the cigar is gluten free.  Personally, I am reluctant to text you. I think most of us would feel the same way. Too many people already have access to our cell phone numbers.
×
×
  • Create New...