Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aches And Pains


happypoole

Recommended Posts

happypoole Newbie

Does anynoe know if eating wheat can cause joint pain?

I stopped eating wheat about 8 months ago due to being bloated having migrains and getting IBS. I've decided to start eating it again in order to do a celiac test. I've been eating it for a week now and have started getting pains in my hips, Shoulders, neck and back. I used to get these pains but have only just realised that they stopped a while after i gave up wheat.

Is it just a coinsidence or is it linked? Can anyone help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HAK1031 Enthusiast

Yes, gluten can aggravate joint pains. I would reconsider eating it for the test- your response to it is enough to convince me that you have problems with gluten. Do you really "need" an official diagnosis?

happypoole Newbie

I don't know really, I suppose not but it would be nice to find out exactly what is wrong with me. do you konw why it can cause joint pains?

HAK1031 Enthusiast

I have no idea actually. Gluten does weird things to our bodies...I would guess it's some kind of inflammatory response? I don't know, but when I eat gluten I feel like I'm 90...and I'm 16!!! I've had joint troubles all my life, and have already had one knee surgery and am looking at another. But gluten affects my entire body (as it does to most) and I feel like my limps are heavy and sluggish and I get really run down.

If you feel like you need a test to stick to the diet, and are willing to suffer the consequences, then that's ok. But you might also want ot consider enterolab testing (enterolab.com) which is a private company (out of pocket unfortunately, $150) that is much more accurate and is good even when you have been gluten-free for a year. It's a home stool test.

mushroom Proficient
Does anynoe know if eating wheat can cause joint pain?

I stopped eating wheat about 8 months ago due to being bloated having migrains and getting IBS. I've decided to start eating it again in order to do a celiac test. I've been eating it for a week now and have started getting pains in my hips, Shoulders, neck and back. I used to get these pains but have only just realised that they stopped a while after i gave up wheat.

Is it just a coinsidence or is it linked? Can anyone help?

Gluten has a definite connection with joint pain. Gluten can cause an autoimmune response in the body of sensitive individuals, i.e., our immune system treats "normal" things as invaders and sends out all these little histamines to fight them, which causes inflammation, swelling, joint pain. In me it caused psoriatic arthritis, which is psoriasis and rheumatoid arthritis together. Even though I have not been eating gluten for a while now I am still fighting this--shoulders, neck, hips, wrist. I would never go back to gluten for the sake of a test, personally, due to the amount of disability it has caused me over the years and the terrible meds to combat it.

MyMississippi Enthusiast

Fibromyalgia can cause pain in those areas you listed.

itchygirl Newbie

I have Sjogren's syndrome and gluten exposure will send me into a "flare". Don't forget to tell your doc your full range of symptoms, maybe they will want to do a sed rate and C-reactive protein etc while you are glutenated. Those are tests measure inflamation. If you're going to gluten up you might as well get your money's worth out of the awful experience :(

I did the challange back in the day. My C-reactive protein goes right up when I'm on wheat. Its pretty fun to observe. Except I feel like bleah. :huh:

Hope you feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
Fibromyalgia can cause pain in those areas you listed.

But is fibromyalgia really a disease, or is it just another of those wastebasket diagnoses like IBS when they don't know what you've really got?

happypoole Newbie

I'd never heard of fibromyalgia. It seems to fit alot of my symptoms but then so do alot of things.

I've decided to come back off the wheat after a week as i'm aching too much and feel exhausted! It was nice to have a donut or five though.

I hadn't even considered that back problems I've had for years could be agrivated by a wheat problem.

Thanks for all the input. This sight is great, I only came across it by chance the other day.

susieg-1 Apprentice

effects of celiac on body are due to nutitional deficiencies I beleive. I suffer great muscle fatige, bone and joint pain to the extent of barely being able to walk. If glutened accidently, these are my symptoms when most complain of stomach ailments. I finally self-diagnosed celiacs after drinking 1/2 beer caused severe reaction in muscle bone and joint within 30 minutes of drinking beer. I had suspected food reactions were causing my physical discomfort and this episode confirmed my suspicions. After many tests, e.g. colonoscopy, MRI, gall bladder, and more diagnosis e.g. IBS, osteoarthritis, shingles, and hot-tub rash ( I also suffer from DH) to name a few, my own research and food log helped me to diagnose myself, which has now been confirmed w/blood tests. I find vitamin b12 in addition to gluten-free diet helps to relieve my pain and discomfort. Good luck to you and use this forum to help manuver the gluten-free lifestyle.

Wonka Apprentice

Good question. I have the diagnosis of fibromyalgia and I'm curious to see if more of those symptoms decrease the longer I am off gluten. The first time, after an elimination diet, that I stopped eating gluten (I was as careful as now and didn't know as much so I'm sure I was only gluten reduced) my fibromyalgia pain and fatigue reduced by 1/2. The thing with fibromyalgia is that it is NOT an imflammatory condition. I have muscle pain (anti-inflammatories do not touch this pain) that is mainly at the insertion areas. But it is interesting how many of the fibromyalgia symptoms are described here as celiac symptoms. I am on meds to sleep, if I over do it in a day I am in pain the next day and have severe brain fog that is not connected to gluten ingestion. I find the cross over symptomology very hard to interpret. Time will let me know. If my pain and fatigue disappear I guess I will have my answer.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - julie falco posted a topic in Coping with Celiac Disease
      0

      NEED TO READ ALL LABELS (FRONT & BACK)

    2. - jimmydee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think a UTI caused by Aspirin, made me a Celiac

    3. - knitty kitty replied to Karen Chakerian's topic in Coping with Celiac Disease
      2

      Getting rid of the belly bloat

    4. - knitty kitty replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia

    5. - trents replied to SaiP's topic in Related Issues & Disorders
      18

      Dangerously underweight, Perfect gluten free and insomnia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,449
    • Most Online (within 30 mins)
      7,748

    Gilly B
    Newest Member
    Gilly B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
    • trents
      Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
×
×
  • Create New...