Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Be Eating Gluten To Be Tested?

DMarie

Recommended Posts

DMarie Apprentice
DMarie
Posted

Hi,

I

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted
I
tarnalberry Community Regular
tarnalberry
Posted

Yep, you need to be eating gluten to do blood tests (or biopsies) for it.

Dustyman Newbie
Dustyman
Posted

Hi. I think I need some help...quick. Many years ago an allergist told me I had a mild wheat allergy. I didn't pay a whole lot of attention to it until recently when my symptoms got totally out of control. Told my GI I thought I might have celiac disease and I am going to have blood work done this Wednesday and a biopsy the following Wednesday (have an endoscopy yearly for another digestive problem). Anyway, in early December I stopped eating anything with glutin and I feel amazingly better. The problem is, it occurred to me that perhaps my blood work and biopsy will turn up negative because I've changed the way I eat. Checked with the doctor's office to see if I should start eating wheat again for these tests and they told me it's not necessary. After reading the postings on this site, I'm really nervous that I'm going to end up with negative results. What say you all? I don't want to do it, but if it means positive versus negative results... Obviously, at this point I don't have a month to do it, but I know what some of my worst triggers are.

By the way...I am thrilled to have found this site! Thanks for any input.

Carol

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

If the diet is working well for you you can stick with it if you'd like but if you really want the test diagnosis then should eat gluten.

celiac3270 Collaborator
celiac3270
Posted

Your other option is Open Original Shared Link (depending on how long you've been gluten-free). You can order a test kit for celiac and you'll get accurate results as long as you haven't been solidly gluten-free for a few years....and I assume you haven't been gluten-free for 4 years or something :)

P.S. It's unlikely that your doctors would accept Enterolab, but many here have used it and been very satisfied. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,151
    • Most Online (within 30 mins)
      7,748
    whor3ys
    Newest Member
    whor3ys
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Muscle Twitching

      By knitty kitty · Posted

      Oh, @Yaya! Five years???  How awful for you to suffer so long! My Vitamin D came up in a matter of months.  High dose Vitamin D has been used in the past to correct rickets and is a safe method to correct Vitamin D deficiency.   I took 1000 IU several times a day, every day for several weeks.  I ate them like m&m's when I was severely deficient.  My brain craved them.  I felt so much better afterwards.  On maintenance dose now.  Yes, the craving went away as my level reached 80-95.   Ask your cardiologist about supplementing with.Benfotiamine.
    • knitty kitty
      GLUTEN FREE OCD MEDICATION

      By knitty kitty · Posted

      @CeliacPsycho246, My OCD symptoms resolved after I took supplements of the active form of Pyridoxine B6 called P5P and L-Theanine, an amino acid.   Pyridoxine B6 is absorbed from foods or supplements and then must be changed to its active form.  P5P is the active form.  Inflammation and malabsorption can impede this process.  Taking the active form is beneficial because it is ready to be used immediately.   L-Theanine is a natural amino acid that helps immensely with anxiety.   Together these two supplements really work to relieve OCD. I like Life Extension brand of P5P, but there are others that are labeled gluten free, too.  L-Theanine is found in chocolate, but as much as I love chocolate, Theanine  supplements work better.   Hope you are open to trying these as a stop-gap until your doctor's appointment.  Keep us posted on your results.
    • Scott Adams
      GLUTEN FREE OCD MEDICATION

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      On the cusp of facing a new life of managing a life with Celiac Disease

      By Scott Adams · Posted

      Happy Thanksgiving!
    • Scott Adams
      Help with results please. As I have a appt after the New Year.

      By Scott Adams · Posted

      One positive blood test result means you likely have celiac disease, but to confirm it they may want to do an endoscopy to verify it with biopsies. Unless you have severe symptoms now, you likely should continue eating gluten daily until all testing is completed, and should eat tons of gluten daily in the 2 weeks before an endoscopy.
×
×
  • Create New...