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Possible Celiac?

ruthykins

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ruthykins Newbie
ruthykins
Posted

Hi I'm new today! :D

I've been reading the forum pages and I have soooooooo many symptoms. One of my colleagues is celiac and has advised me to try a gluten free diet, but everyone recommends staying on gluten till you are diagnosed.

My symptoms are constipation (at the moment) but still going to the toilet, only to pass very small stools and still feeling like I need to go. Bloating and wind. Roscea (which I have had for years). Lower back pain. Pains (on occasion) right up to my shoulders. Tiredness. Not able to get a full nights sleep. Tingling of my hands and now my lips. Constant hunger. Weight gain but not a massive amount. Huge looking stomach. Joint pains, some days even my teeth feel tired and aching?! I used to be able to go to the toilet about 5-6 times a day, but now its about 3-4 unless I have a bout of the runs!!! If I eat anything spicy (like chillies) I can feel the passing through my intestines and then the pain is unbeleiveable when they are passed out (ouch :( )

Any advice would be helpful!

Thanks

ruthykins :D

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darlindeb25 Collaborator
darlindeb25
Posted

Have you had any tests done? Seen a doctor at all? Do you want to be tested? Not much to go on here. It does sound like you do have symptoms that could be a gluten intolerance. If you want to know though, you shouldn't go gluten free before being tested. Once you are gluten free, the testing will come back negative.

ruthykins Newbie
ruthykins
Posted
  • Author
Have you had any tests done? Seen a doctor at all? Do you want to be tested? Not much to go on here. It does sound like you do have symptoms that could be a gluten intolerance. If you want to know though, you shouldn't go gluten free before being tested. Once you are gluten free, the testing will come back negative.

Hi darlindeb

not had any tests done, but I'm thinking of buying one of those test kits so I can go armed with evidence (if any) to my GP. I,m not going to go gluten free before doing a test, but its suprising how less bloated etc i feel if I dont eat gluten for a couple of days. Thanks for the advice

ruthykins :)

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    • knitty kitty
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By knitty kitty · Posted

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
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