Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We've Decided To Start A Kids Support Group


CeliacMom2008

Recommended Posts

CeliacMom2008 Enthusiast

OK, we've mulled it over and decided we want to start a kids support group. I have the information from Danna Korn on ROCK. Does anyone have any advice for how to start, what to do, what you like in your group, what you'd like in a group if you could have one?

We're new to Celiac, but I'm not one to sit idly by when I see a need. My son has said he wants to meet other Celiac kids. He's said at least once that he wishes he was a "normal" kid. I'd like to meet other Celiac parents. So we've decided to embark on this next journey.

I'd love lots of advice, so please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast

Good For You!!!!! I know my daughter would like something like that.

It would be nice if you could always have the same day, same time, same place to meet every month. The local (adult) Celiac support group here meets in a room at the library. I don't know if they get it for free or not, something to look into.

Once you have a time and place, have a flyer that you can give to the pediatric GI's in your area so that they can pass on the info to any newly diagnosed families. Or maybe dieticians, too . . . the dietician is the one that told me about our local support group. Also check with your local Whole Foods/Wild Oats/Health Food store to see if you can post info on a bulletin board there . . . then you can ask them to provide free samples for your meetings :rolleyes:

Good Luck and keep us up to date on how you're doing!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,038
    • Most Online (within 30 mins)
      7,748

    RobinMary Johnston
    Newest Member
    RobinMary Johnston
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • LCO
      Thank you very much!
    • Aleda D
      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
    • trents
      I think you would do well to take a high potency B-complex such that you get more balanced dosage across the spectrum of B vitamins. They work in concert.
    • Scott Adams
      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
    • Scott Adams
      Be careful about how much B6 you take, as it can cause issues if you take too much of it over time.
×
×
  • Create New...