Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Possibly Be A Gluten Reaction?


TCW

Recommended Posts

TCW Rookie

Hi everyone,

I have been gluten-free for about six weeks now, after a diagnosis of "subclinical gluten intolerance" (suspicious biopsy through endoscopy, and negative blood work). I was skeptical re: the diagnosis, but have been MUCH better since gluten-free. (No constipation or diarrhea, no cramping, sleeping for the first time in years, less dry skin...) I figured I was fine and had my solution.

Earlier in the week, I started getting an uncomfortable full feeling. Wednesday I had terrible, urgent watery D (didn't even make it to the restroom) and have been crampy with intermittent episodes ever since. (It's Saturday night.) I've also had body aches and headache, but the stomach pain is the twisting sort that I'd been having prior to going gluten-free. The only think I can think of, is I had some pastrami of unknown origin on Sunday last week. I wonder if that could be it?

But could it take that long for symptoms to hit and would it be so hard for so long? What do you guys think? Also, I had started B complex (Whole Foods) and probiotics (365 WF brand) late last week, too. I've since stopped those. I was already taking iron for anemia.

Thoughts?

I'm trying to figure it our because now I'm freaking out and worried that it may be Crohns or something else. I had had an endoscopy and colonoscopy prior to diagnosis.

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

The fact that you were feeling better and then suddenly got D again would sound like a glutening to me. The time it takes for a reaction to start after ingesting gluten can vary from just half an hour or so to three days, so it's not impossible.

You might also want to check what else you have been eating, maybe a product you thought was safe isn't after all. Everybody has those surprises in the beginning...

It can take a while to get back on track after a glutening, and I've noticed that I get a "flare up" of symptoms about a week after the initial glutening. So I would wait a couple weeks before starting to freak out that it's anything else.

Pauliina

Nancym Enthusiast

It could also be a stomach virus. It sounds identical to what I had. But they usually last about 2-3 days. Headache, vomiting, diarrhea, feeling horrid. YUCK!

TCW Rookie
The fact that you were feeling better and then suddenly got D again would sound like a glutening to me. The time it takes for a reaction to start after ingesting gluten can vary from just half an hour or so to three days, so it's not impossible.

You might also want to check what else you have been eating, maybe a product you thought was safe isn't after all. Everybody has those surprises in the beginning...

It can take a while to get back on track after a glutening, and I've noticed that I get a "flare up" of symptoms about a week after the initial glutening. So I would wait a couple weeks before starting to freak out that it's anything else.

Pauliina

Hi Paulina,

Thanks! That's what I was wondering. I've been really careful, but I'm just figuring this out, so...I'm a little better-- still kind of crampy after 5 days. I was thinking of keeping a food diary for awhile to see any patterns.

Btw, I still haven't quite figured out how this forum works, so I could find any response 'til now. Sorry for the delay! I appreciate your thoughts!

TVS

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,131
    • Most Online (within 30 mins)
      7,748

    Itsabit
    Newest Member
    Itsabit
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future. 
    • Skg414228
      Fair enough! I very easily could have misread somewhere. Celiac is very confusing lol but I should know in a little over a month what the final verdict is. Just thought chatting with people smarter than myself would get me in the right mindset. I just thought that DGP IGA was pretty high compared to some stuff I had seen and figured someone on here would be more willing to say it is more than likely celiac instead of my doctor who is trying to be less direct. She did finally say she believes it is celiac but wanted to confirm with the biopsy. I did figure it wouldn't hurt seeing what other people said too just because not all doctors are the best. I think mine is actually pretty good from what I have seen but I don't know what I don't know lol. Sorry lot of rambling here just trying to get every thought out. Thanks again!
    • Scott Adams
      Yes, these articles may be helpful:    
    • trents
      No, you don't necessarily need multiple testing methods to confirm celiac disease. There is an increasing trend for celiac diagnoses to be made on a single very high tTG-IGA test score. This started in the UK during the COVID pandemic when there was extreme stress on the healthcare system there and it is spreading to the US. A tTG-IGA score of somewhere between 5x and 10x normal is good enough by itself for some physicians to declare celiac disease. And mind you, that is the tTG-IGA, not the DGP-IGA. The tTG-IGA is the centerpiece of celiac antibody testing, the one test most commonly ordered and the one that physicians have the most confidence in. But in the US, many physicians still insist on a biopsy, even in the event of high tTG-IGA scores. Correct, the biopsy is considered "confirmation" of the blood antibody testing. But what is the need for confirmation of a testing methodology if the testing methodology is fool proof? As for the contribution of genetic testing for celiac disease, it cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only 1% of the general population actually develops celiac disease. But it can be used to rule out celiac disease. That is, if you don't have the genes, you don't have celiac disease but you might have NCGS (Non Celiac Gluten Sensitivity).
    • Skg414228
      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
×
×
  • Create New...