Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergen Bill


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

I have a question about the Allergen Bill. In addition to clearly listening other hidden ingredients (ie, "modified food starch-wheat"), how about spices and artificial flavors? Will companies clearly state those as well?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

If any of the top eight allergens are present in any form they will have to be clearly listed.

richard

granny Rookie
If any of the top right allergens are present in any form they will have to be clearly listed.

richard

Richard, You are writing to people who suffer from foggy mindedness and maybe I'm worse than most. I've wondered about this and was eager to see what you had to say because I usually admire your knowledge, but honestly, you didn't tell me a thing. What do you mean, "top right allergens" ?? granny

angel-jd1 Community Regular

Granny-

I think it was just a typo.....he meant to say "top 8 allergens" meaning milk, egg, peanuts, tree nuts, fish, Crustacean shellfish, soy, and wheat.

The bill also

requires the Food and Drug Administration to issue final regulations defining
granny Rookie
Granny-

I think it was just a typo.....he meant to say "top 8 allergens" meaning milk, egg, peanuts, tree nuts, fish, Crustacean shellfish, soy, and wheat.

Thanks Jessica, when I read Richards message it just didn't click. granny

lovegrov Collaborator

Yes, sorry for the typo. Must proof more carefully. The top EIGHT allergens, including wheat, must be clearly listed.

richard

MySuicidalTurtle Enthusiast

So, will this not cover gluten?

I know that gutenfree is wheatfree. . .but that wheatfree is not always glutenfree.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kvogt Rookie

We really must have barley added to the allergen list. Rye is probably easy enough to detect in an ingredients label as is.

MySuicidalTurtle Enthusiast

Are there really enough people allergic to barely to make it one of the top ones?

kvogt Rookie

There are enough people with gluten sensitivity (i.e. barley) to warrant, I think.

tarnalberry Community Regular

The panel decided that the immediate death risk exists for those eight allergens, not for barley, so it's highly unlikely it'll be added to the list. There is a provision in the bill for defining what "gluten-free" means, but this bill is not going to cover all cases. We simply don't have the immediate, serious health risk from a single exposure. (No, I'm not belittleing the celiac response, I'm merely talking that, in terms of dollars, one person dying from anaphylactic shock is going to be more expensive, on net, than - say - three people (a little assumption there than anaphylactic allergies are only present in 0.3% of the population - not based on fact, so no quoting! ;-) ) feeling very bad and being miserable and out of work for a week. They're not going to look at chronic exposure quite as much as immediate reactions.

MySuicidalTurtle Enthusiast

So, it will be wheat and not gluten?

Kvogt, if it says gluten then it wouldn't have to list barley, rye, or oats.

I hope it says gluten!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,861
    • Most Online (within 30 mins)
      7,748

    bobgmoab
    Newest Member
    bobgmoab
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
    • trents
      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find it in like soy sauce and canned tomato soup, just to site two examples. This might help:  
    • jnstefan
      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
    • thejayland10
      thank you for the insight  Thank a small elevation can be due to this or is it more likely to be cross contamination ? 
    • Championjaidlyn
      HEY HB333!! Did you ever find out what you had???  I’ve been having those same things for 10 months almost a year now!! but I’ve also been in extreme agonizing hell!!  With those bumps, I’ve become itchy everywhere to the point we’re not be able to do anything but itch and cry for hours!! they have gotten so bad they’re all over my body head to toe. I have stuff coming off my scalp and stuff coming out of my ears and all my nails are brittle and breaking and I’ve got stuff under my nails and it’s even in my nose and my eyebrows, and I don’t know what to do!!!   But I’m having those little bumps just like you and white stuff around them and then my hair follicles have white stuff on them and my skin is breaking open and leaking white stuff and my dermatologist in the ER won’t help and I don’t know what to do!!! nobody knows what it is!! I really need help!! did you ever figure out what it was??? 
×
×
  • Create New...