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Recent Activity
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- Scott Adams replied to Brianne03's topic in Gluten-Free Foods, Products, Shopping & Medications5Chapstick, gum, cough drops, medications...HELP!
I am in the same boat--my daughter is in a junior college and staying with us now, but will be going away this summer to a school far from home. We're doing the research now on their food options. -
- aperlo34 replied to CeliacChica's topic in Related Issues & Disorders24Muscle Twitching
How are you feeling now? I’m 2.5 Months in and feeling similar. Muscles twitching, some cramps in my muscles etc. -
- Cindy Neshe posted a topic in Super Sensitive People0Cross contamination issues with Food Processing Companies
I purchased food items online seeing the gluten-free symbol. No where online did it say the products were cross contamination with Gluten in their facility. Has anyone else found this with products? We need better communication to make sure people who have sensitivity issues properly notified before purchasing the item. I have actually emailed companies and... -
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- Brianne03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Daughter recently diagnosed with Celiac and I am questioning my results...
Our daughter was recently diagnosed with Celiac. Everyone else in the family was subsequently tested. My results are the only ones I'm not confident with, despite my doctor saying they were normal. I guess I'm just looking for peace of mind because my research shows that TTG-IGA numbers greater than 10 U/mL are considered positive for Celiac and mine was...
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By Scott Adams · Posted
I am in the same boat--my daughter is in a junior college and staying with us now, but will be going away this summer to a school far from home. We're doing the research now on their food options. -
How are you feeling now? I’m 2.5 Months in and feeling similar. Muscles twitching, some cramps in my muscles etc.
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By Cindy Neshe · Posted
I purchased food items online seeing the gluten-free symbol. No where online did it say the products were cross contamination with Gluten in their facility. Has anyone else found this with products? We need better communication to make sure people who have sensitivity issues properly notified before purchasing the item. I have actually emailed companies and asked about their statement on the product that it is gluten-free but found out their facility is not dedicated gluten-free, which means Gluten can come in contact with the gluten-free food item. I had to call, nothing listed on the product. I know that a "Dedicated gluten-free Facility" will be listed but why are these manufacturers not listing cross contamination? The answer is probably they don't want to be accountable. -
Our daughter was recently diagnosed with Celiac. Everyone else in the family was subsequently tested. My results are the only ones I'm not confident with, despite my doctor saying they were normal. I guess I'm just looking for peace of mind because my research shows that TTG-IGA numbers greater than 10 U/mL are considered positive for Celiac and mine was 11.6 U/mL. I am happy to be wrong and not have Celiac, but need reassurance and expertise either way because my PCP said he was just going by the labs consideration of normal and wasn't sure beyond that. Could the test be indicative of other autoimmune issues, beyond Celiac, because I do have Hashimoto's? In addition to having another autoimmune disease, I have had a chronic case of "dermatitis" in my genital/rectum area since 2020. I've seen tons of specialists, used many creams, taken pills and vitamins, have had biopsies, allergy tests (patch and skin prick), changed up all sorts of things, etc. with no real answers or solutions to make it go away. I have resorted to using a daily topical cream just to keep it at bay because otherwise I often feel like I am on fire...red, sore, bleeding, and oh so itchy! The other thing that makes me question my results, is that I did a 23andMe genetic test years ago and it shows I have two copies of a genetic variant indicative of Celiac disease. Just looking for some clarification; thank you!! PS, I've tried figuring out how to attach screenshots of my test results, but no luck.
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Thank you for all the helpful suggestions. She has had stomach issues since the day she was born; when a baby projectile vomiting, as a big kid mostly cramping and stabbing pain after eating and just overall feeling of not feeling great...headaches, tired. We've talked to her doctor about it several times over the years; the did some testing when she was about 2 years old, prescribed a few stomach meds over the years that never helped and most recently did a simple blood test and an endoscopy to confirm and voila....answers!! Her iron and vitamin D were both super low. Wish it didn't take so long for her to get some relief, although honestly she's wishing she didn't know because she's already feeling like she's missing out because everything in our world revolves around food. She graduates this year and going to college is going to bring on a whole new level of stress...for her and me. I'm hoping by then she'll be confident in reading labels and advocating for herself and what she can and cannot eat, etc.
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