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New Here And Question About Enterolab Results


lanam80

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lanam80 Newbie

Hi everyone

I'm new here. Just today recieved my enterolab results.

I have definite gluten sensitivity (yaay! I seriously felt like celebrating. I feel vindicated.) and my number was quite high :

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 150 (Normal Range <10 Units)

With a number that high and autoimmune thyroid disorder, would you consider yourself celiac? or "just" gluten sensitive? I've seen lots of posts with WAY lower numbers than that. Has me wondering how much possible damage is done on my intestines.

I really do want a definitive answer. I dont' want to go around saying I'm celiac if I'm not, but I also don't want to minimize it by saying 'sensitive' or 'intolerant' you know?

I am going to stay gluten -free though, just this is sooo new to everyone around me, they act like still it's not a 'big deal'.

Thanks in advance.

M


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GlutenWrangler Contributor

Your high number only indicates that your body responded to gluten by releasing A LOT of antibodies. It could just be the way your body responds to gluten, but it does not indicate how severe your condition is. Personally, I really don't think that there's a difference between Celiac Disease and Gluten Sensitivity. My opinion is that Celiac Disease is just a more advanced case of Gluten Sensitivity. Either way, you have to be gluten-free. So it really doesn't make much of a difference. Good luck,

-Brian

ravenwoodglass Mentor

Brian put it so well I don't have anything to add other than agreement.

Panopticism Rookie

Well, I dunno about the similarity between the two... wouldn't gluten sensitivity be more of a... sensitivity, intolerance, inability to digest, etc.

Whereas, Celiac Disease is where your liver goes into fight mode and releases antibodies and tries to fight gluten, thinking it's a seriously harmful intruder?

I always just assumed that, from a scientific standpoint, gluten sensitivity was like lactose intolerance. I haven't heard of too many people dying in their 50s from cancer that was probably related to damage done to the intestines as a result of lactose intolerance...?

This does appear to be happening with Celiac disease.

Please, correct me if I'm wrong.

mftnchn Explorer

My caution would be that Enterolab does not diagnose celiac. Gluten sensitivity can be caused by other things besides celiac, and could be temporary or not depending on the cause. So I think it is wise to keep that in mind, especially if the gluten-free does not result in a complete resolution of your health concerns. There are some on the board who have discovered other causes and are no longer gluten-free.

I have a clinical diagnosis of celiac, since I didn't have blood tests or biopsy. I have kept my diagnosis tentative in my mind while still being very careful about being gluten-free in every way. 11 months out, my doctors and I are convinced, and I am now confortable about telling people I am celiac.

In my case, with people I was close to, I explained more about the process of discovery and trial of the diet. With others, I just said I was celiac or said that I am very sensitive to gluten and have to strictly avoid it.

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    • trents
      Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future. 
    • Skg414228
      Fair enough! I very easily could have misread somewhere. Celiac is very confusing lol but I should know in a little over a month what the final verdict is. Just thought chatting with people smarter than myself would get me in the right mindset. I just thought that DGP IGA was pretty high compared to some stuff I had seen and figured someone on here would be more willing to say it is more than likely celiac instead of my doctor who is trying to be less direct. She did finally say she believes it is celiac but wanted to confirm with the biopsy. I did figure it wouldn't hurt seeing what other people said too just because not all doctors are the best. I think mine is actually pretty good from what I have seen but I don't know what I don't know lol. Sorry lot of rambling here just trying to get every thought out. Thanks again!
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      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
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