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What To Do For A Headache Because Most Pills Have Gluten

bon appetit

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YoloGx Rookie
YoloGx
Posted

Hi gpf,

Just wanted to add that with feverfew you have to take it for a month or two (I have forgotten the exact details--however I am sure you can look it up) every day for it to work. Its a kind of prophylactic that makes it so you just don't get the migraines (or at least as much). Feverfew helps make it so excess blood does not easily get stuck in your head. Though I will say it also helps to take it again while you do have a migraine too--especially as a tea. The prophylactic however could just be pills. Buy a bush, its cheap enough and once started hard to get rid of.

And you are right about the fibronylitic enzymes--they take down inflammation as well as get rid of excess fibrin which is what creates scar tissue. I use the bromelain/papain and nattokinase on an empty stomach (usually with my co-enzyme B vitamins) away from food. This way (i.e., taken away from food) the enzymes act as systemic enzymes. You can take serrapeptidase instead of nattokinase in case trace amounts of soy bother you.

Nattokinase is derived from Natto--fermented soybeans -- the bacillus is found in straw. You can also use Natto cakes--and get no doubt lots msore other enzyems too as well as the pungent taste. The ancient Samurai discovered its healing benefits curing scar tissue and giving the warriors extra energy (since it also clears the plaque buildup in the blood vessels etc.) over 1000 years ago.

Serrapeptidase functions similarly--its produced by silkworms so they can break through their silk chrysalis. Apparently its difficult to even shoot a bullet through silk, instead it often stretches.

I have found yes, taking down the source of the migraines really works. This not only means avoiding food sensitivities etc. as well as also taking down the inflammation itself (when avoidance doesn't happen or work) is crucial.

Bea

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bon appetit Newbie
bon appetit
Posted
  • Author

Thank you for all of your advice I'm sitting here with a pen trying to get it all down. Nothing seems to be getting rid of this headache though. I had my biopsy today, Oh what fun. My GI specialist said I needed to adopt a high fiber diet but this confuses me because I eat tons of high fiber foods; popcorn, brocholi, culiflour, zuchinni, rice etc. basically everything I eat has high fiber content. Perhaps I'm simply not absorbing it because of the celiac disease?

tarnalberry Community Regular
tarnalberry
Posted

I have had chronic headaches. Going gluten and casein free didn't get rid of them (though casein was a headache trigger). I never was able to isolate a particular migraine trigger really, and I'm on daily preventatives, because twice weekly migraines that last 2-3 days a piece is a bit of a problem. What was also contributing to my headaches, however, was a forward head posture and lack of curve in my cervical spine, from poor posture and musculature. Working with a chiropractor (almost entirely me doing exercises and traction, and then a few adjustments), I made a lot of progress in this area. I would add that suggestion that anyone with chronic headaches (migraine or not) to work with a structurally based chiro, or a PT or massage therapist.

YoloGx Rookie
YoloGx
Posted
I have had chronic headaches. Going gluten and casein free didn't get rid of them (though casein was a headache trigger). I never was able to isolate a particular migraine trigger really, and I'm on daily preventatives, because twice weekly migraines that last 2-3 days a piece is a bit of a problem. What was also contributing to my headaches, however, was a forward head posture and lack of curve in my cervical spine, from poor posture and musculature. Working with a chiropractor (almost entirely me doing exercises and traction, and then a few adjustments), I made a lot of progress in this area. I would add that suggestion that anyone with chronic headaches (migraine or not) to work with a structurally based chiro, or a PT or massage therapist.

I ditto that thought! Structural work is so important--and then self care. Thus the yoga and the tiny tennis ball for pressure point relief when you can't go to the therapist.

Bea

gfp Enthusiast
gfp
Posted
Thank you for all of your advice I'm sitting here with a pen trying to get it all down. Nothing seems to be getting rid of this headache though. I had my biopsy today, Oh what fun. My GI specialist said I needed to adopt a high fiber diet but this confuses me because I eat tons of high fiber foods; popcorn, brocholi, culiflour, zuchinni, rice etc. basically everything I eat has high fiber content. Perhaps I'm simply not absorbing it because of the celiac disease?

No because you don't adsorb fibre, that is basically what fibre is... (the part of food that is passed through in simple terms).

Rice, especially white has not so much fibre... basically its the part that is gotton rid of in white rice BUT the figures can be misleading because they often refer to uncooked rice. Hence per oz or hundred grams uncooked it appears quite good but when you adsorb all that water there is little left percentage wise.

Zuccini is similar, its lots of water .. take away the water and its not much fibre ... however eating food naturally high in water like zuccini, celery and cucumber is pretty good overall.

YoloGx Rookie
YoloGx
Posted
No because you don't adsorb fibre, that is basically what fibre is... (the part of food that is passed through in simple terms).

Rice, especially white has not so much fibre... basically its the part that is gotton rid of in white rice BUT the figures can be misleading because they often refer to uncooked rice. Hence per oz or hundred grams uncooked it appears quite good but when you adsorb all that water there is little left percentage wise.

Zuccini is similar, its lots of water .. take away the water and its not much fibre ... however eating food naturally high in water like zuccini, celery and cucumber is pretty good overall.

Have you tried using freshly ground flax seed? Grind 1 tablespoon in a small coffee grinder with 1/4 tsp. apple pectin. Mix in water, drink then chase with more water. Excellent as fibre. Really does the job without stressing the intestines. Plus gives you Omega 3's. The apple pectin also helps pull out excess toxins that might be hanging out as well as acting as a bulking agent and demulscent. Very inexpensive too.

bon appetit Newbie
bon appetit
Posted
  • Author

I will definitely give that a try, I do like flax seed so perhaps I just start tossing it in with my cereal in the mornings as well. Giving up diet coke is proving to be rather difficult. I can't wait to experience the benefits of this profound dietary change, I had such a bad diet before chocolate, pizza etc. The other day when I left the library after hours of research I was hungry and there were tons of restaurants it was so tempting - water, water everywhere and not a drop to drink!

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ellen123 Apprentice
ellen123
Posted

I just got off the phone with the company that makes Longs Drugs brand ("generic") ibuprofen and their 200 mg coated caplets are gluten-free. They're the same thing as Advil but a lot cheaper.

I'm waiting for an email back from the company that makes Traumeel (a homeopathic antiinflammatory tablet) that my friends swear by but I've never tried. If it's gluten-free too, I'll post it here and also on the Products forum.

Ellen

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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