Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Expertise Please

lyoung2

Recommended Posts

lyoung2 Rookie
lyoung2
Posted

I'll start by saying that my Dr. is a quack and I need to find a new one. In the meantime, I've done some testing of my own and would love to hear what your thoughts are on the results.

Blood work from Dr.'s lab:

IgA <20

IgG H39 (moderate to stong positive)

Ttg <20

Kimball Genetics cheek swab:

DQ2 (DQA1*05/DQB1*02) negative

DQA1*0501 or *0505 detected

DQB1*0201 or *0202 not detected

DQ8 (DQB1*0302) positive

DQB1*0302 detected

EnteroLob stool sample:

IgA 39 units (negative <10)

Ttg 37 units (neative <10)

Fecal Fat 88 units (negative <300)

I also tested positive for yeast (21 units) and milk (27 units).

I had a colonoscopy in August (but not an endoscopy). I have been gluten-free since the blood work done in August of 2004. I do feel somewhat better but still need to cut out yeast and milk from my December results.

I'm wonder what your thoughts are on whether I have celiac, or possibly just an intolerance to these items. Regardless I'm going to stay gluten-free, it would just be nice to know that if I do make a mistake, it won't ruin my intestines.

Thanks for your feedback.

Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest sriddle78
Guest sriddle78
Posted

I feel bad no one has replied to your post! I'm guessing that no one wants to give you bad advice. :D

I certainly can't say whether you are celiac or not because I 'm not even sure if I'm celiac! I just had blood tests yesterday and did a stool test and sent it away yesterday as well. What's really scary is my doctor didn't even know there were blood tests for gluten sensitivity! She was ready to send me for a biopsy without any blood work. I showed her a book about gluten sensitivity/celiac and she was really open-minded at least. She read the book and ordered the exact blood tests it said to order (the same ones you had). She also read about the stool tests and got really excited, because she didn't know about them. What can I say? Doctors aren't taught good medicine in school. At least she's open minded...I also convinced her to let me take natural thyroid replacement (Armour) instead of synthetic (Synthroid) a couple months ago. I'm already feeling better than I was, even with just the new thyroid replacement.

I just wanted to encourage you to stay gluten free and cut the yeast and milk out and see if you feel better. It's really difficult to go gluten free, dairy free, and yeast free, but from what others say, it's so worth it. I have yet to eliminate all my issues because my doctor said to wait for the tests to see if I need a biopsy. I also have to eliminate soy. <_< I really like soy products, but it's not worth it to mess up my thyroid even more (soy affects thyroid function in some...plus it hurts my stomach).

Anyway...I just wanted to say I hope you're feeling better and good luck finding a doctor who isn't a quack! ;)

lyoung2 Rookie
lyoung2
Posted
  • Author

sriddle78, thanks for your response. Maybe I just worded my topic incorrectly. Those that write "could this be celiac" seem to get responses. Oh well.

I hope that you also get some confirmation on your issues and start feeling better soon.

Laura

plantime Contributor
plantime
Posted

I wanted to respond, but I never had those tests done, so I don't know anything about the results! I had the endo with biopsy, and it was positive. I wish I could answer your questions!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,967
    • Most Online (within 30 mins)
      7,748
    Tashausten
    Newest Member
    Tashausten
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Increasing symptoms after going gluten free

      By cristiana · Posted

      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
    • Jy11
      Conflicting results

      By Jy11 · Posted

      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      Increasing symptoms after going gluten free

      By Pasballard · Posted

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
×
×
  • Create New...