Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problem


Babygirl6915

Recommended Posts

Babygirl6915 Explorer

Ok, so I am still having problems with my thyroid & have yet to find a doctor willing to do anything about it. According to them it is not enough that I lose a handful of hair 2x a day, am constantly tired & cold, have terrible skin, insanely high cholesterol levels, & have extra body hair creeping up everyday. Somehow they find it


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

While I have not had thyroid issues (that I know of), I have run into info on the subject from time to time. Two things which come to mind are coconut oil, and a zinc picolinate supplement. Coconut oil is great for skin, hair, and nails. Plus it helps to raise thyroid function because it is so easily burned for energy. A zinc deficiency seems to be associated with hypothyroid from the reading I've done. Other nutrients are also involved with keeping the thyroid healthy.

Here's a place to start:

Open Original Shared Link

HTH

loraleena Contributor

Did you just have a TSH test? If so, what was the referance range. It should be between .3-3. Anything over 2 can cause hypo symptoms in some people and should be treated if there are symptoms. Many docs are using the old referance range of .3-5. Also you need to get the full thyroid panel including thyroid peroxidase antibodies. These should be under 20. If high that means you have hashimotos hypothryoidism which is an autoimmune version common in celiacs. Your body is essentially attacking your thryoid! Check out dr.lowe.com. This is my doc and you can do long distance consulting if you have to. Keep trying to find a doc who will listen. Endos are often the worst. Ask your regular doc for the tests. Good luck. Pm me with any questions.

Sugarmag Newbie

I'm sorry you are having to deal with these "less than pleasant" doctors! I've been hypothyroid (and Hashimoto) for about 7 yrs now, and I'm finally now (I think anyways) seeing a good endocrinologist. I don't know much about supplements, as I've always been on prescribed medication for it. I do know that my new doctor who I just saw a few weeks ago, recommends to take zinc picolinate (body absorbs this form better than the other zinc supplement) as well as selenium. He changed my meds up, and is also sending me to the hospital for the ACTH stimulation test, as he suspects some of my symptoms are adrenal related, not thyroid. I will say, my hair seems to not be falling out quite as much..but I'm still freezing all the time! I live in Florida...soooo, yeah...it's not normal! He suspects my coldness has to do with nerve damage, and will be checking into that too.

I would definitely try to get a good selenium and zinc picolinate supplement to start with. I've also heard coconut oil is great like RiceGuy said. Also, taking B12 sub lingual is a good idea too, if you are low on energy and always fatigued. Good luck! If you have any questions...feel free to PM me.

Babygirl6915 Explorer

Ok, so here are my previous test results. Comment away!

Cortisol (Free) - 24.2 (4.0-50.0)

Urine Creatine- 0.92 (0.63-2.50)

Testosterone (Free) - 1.3 (0.1-6.4)

Testosterone (Total) - 23 (2-45)

DHEA- 147 (45-320)

Progesterone level was a 32 in a range of 30-100

FSH- <0.7

LH- <0.2

TSH- 1.80 (0.40-5.50)

T-4 (Free) - 1.1 (0.8-1.8)

Like I said before I am 24 if my age is @ all important. Also these tests are from this time last year when I had only been off of BC for about 3 months. I have seen a huge increase in the severity of my symptoms since that time so I am wondering if the BC was still in my system @ the time of this test.

Babygirl6915 Explorer

Anyone?

Joni63 Collaborator

Hi,

I'm sorry I can't comment on the blood results, but I have just been diagnosed with low serum, ferritin. I've read through tons of information that says if your serum ferritin is low you can lose hair. Your TIBC, UIBC, Iron serum, and iron saturation can all be in normal range.

Have you had any bloodwork for vitamins/minerals lately?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

First of all the TSH range your doc used is old. The new range is .3-3. Even though your TSH shows normal that means squat. This test is highly innaccurate. You need to have many more tests done. There is a whole panel including FRee t3 and some others. You need to have your thyroid peroxidase antibodies checked. These should be less than 20. Elevated antibodies is indicitive of hashimotos hypothyroidism. This is an autoimmune hypo that causes the body to attack your thyroid. It is very common in people with celiac. Your doc should also be looking at symptoms which you have. I have this condition and I work long distance with Dr. Gina Honeyman (type in her name to get her website. I used to consult with both her and her husband Dr. John Lowe. They are not together anymore and each have their own practice. They work with my regular doc. Their websites are extremely informative. Also check out stopthethyroidmadness.com. If your doc won't help leave! It can be hard to find one who won't just look at the darn TSH!! There are lots of threads on here about thyroid that I and others have posted on so check them out also. Georgie has lots of good info. Maybe she will post here also. If treated you should take either ARmour thyroid or Cytomel. The typically prescribed Synthroid does not work for a lot of people. Feel free to pm me with more questions. Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,190
    • Most Online (within 30 mins)
      7,748

    Gonville
    Newest Member
    Gonville
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...