Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Good Doctors Left ? - Just Horrible


motif

Recommended Posts

motif Contributor

Just came back from the doctor totally frustrated - how they're getting their diploma? :o

I told him all my symptoms and he said it's not possible that I had symptoms all over body,

that I read too much internet and impose on myself sickness...

Then I have to suggest him maybe I have spine problem or celiac, so he gave me referral for blood test,

then I ask does it test also for B12 level? He said no, if you want I can add this too to the test...

can you believe this? I have to tell him what possible test to do! And he still gets irritated that I read internet and know something about my symptoms.

Anyway, it's horrible they know nothing, they don't listen to me when I describing my symptoms, they don't try

even to figure out from it what is the cause, all they know is writing drugs prescription which will kill you anyway sooner or later from side effects...No doctor helped me ever to be honest.

I just want to thanks for forums like these, because I can get more information and support here then from so called doctors...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

I feel for ya motif. Went through some of the same myself.

It could be laughable if it weren't so terrible & potentially harmful.

There seem to be several horrible Dr posts EVERY week here.

I told him all my symptoms and he said it's not possible that I had symptoms all over body, that I read too much internet and impose on myself sickness...

The nerve!!

Then I have to suggest him maybe I have spine problem or celiac,

I meant to say earlier - nerve issues, like peripheral neuropathy are awfully common in advanced celiac cases.

Besides tingling & numbness, I had a long stretch where, even tho lying down, I'd suddenly feel like I stepped on a tack, for instance.

Mine went away w/ gluten-free, tho slower than the intestinal problems.

I keep wondering what country you're in. (Hope I'm not guessing wrong) France? Europe anyway?

MDRB Explorer

Yep, I feel for you.

I think this is a really common experience for a lot of people on this forum. I went through 8 years (still a lot shorter than some people) of doctors telling me that I had some unknown virus, or was depressed, or there was nothing wrong with me.

I diagnosed myself with a little research (being a nurse helped) before going to my doctor and demanding blood tests and an endoscopy.

There is a solution to your problem: FIND A NEW DOCTOR!!!!

Take your health in your own hands and demand nothing less than their full attention.

Good luck :)

motif Contributor
I keep wondering what country you're in. (Hope I'm not guessing wrong) France? Europe anyway?

Tom,

I live in US 10 years already, but originally from Europe.

I had same bad experiences in both places though.

Because of that I ended up studying myself alternative medicine and only go to doctor for e.g. X ray referral etc.

In my opinions and many others 90% of physicians are useless and even dangerous.

4 years ago I thought I was almost dying and nobody knows why (now I know it could be because celiac disease), even they did catscan they have no clue what is wrong. Then I started googling internet for alternative cures, first what I found was the oldest and the best method for everything which is enema. After a month of treatment I was like newborn, fresh and young...Why any of the so called doctors couldn't suggest that to me?

motif Contributor
There is a solution to your problem: FIND A NEW DOCTOR!!!!

thanks, but I don't need other doctor, have tried too many. I need them only for lab tests anyway...

Even interpretation I do myself.

MelliDuff Rookie
thanks, but I don't need other doctor, have tried too many. I need them only for lab tests anyway...

Even interpretation I do myself.

rofl that is exactly how I feel! :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,885
    • Most Online (within 30 mins)
      7,748

    susieq312
    Newest Member
    susieq312
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...