Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prep For Specialist

Octoberme

Recommended Posts

Octoberme Apprentice
Octoberme
Posted

Okay

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Octoberme Apprentice
Octoberme
Posted
  • Author

Oh........and should I take a probiotic? What is the deal with these? I used to be able to handle s amll sihlohette yogurt and be fine before I got sick. After I got sick I thought all these yogurts with probiotics woudl help, so I started taking activia and that only made my D symptoms worse. Any thoughts on these?

Celiaction Rookie
Celiaction
Posted

Octoberme,

Perhaps I should be first to welcome you to the club. Every one of your concerns has been addressed in these blogs and soon you'll have some specific advise from the great people here who are more experienced than me. You can search the past blogs for specific past discussions to your concerns.

At least know that you are not alone. These blogs probably saved my life.

David

Octoberme Apprentice
Octoberme
Posted
  • Author

Lol, thank you and yes, I am finding that already. These posts are all so very halpful, but I have to say after becoming obsessed with my health problems and reading these sometimes for 6 hours a day ( ya, no kidding, I am sure my work LOVES me right now ) my mind is just SWIMMING and I am not even sure which was is up anymore.

My concern is just that the specialist will just blow me off. And while I do not want to go in there all pompous and like I know more then him, I do not want him to think of me as a push over that will just take a " oh, it is just IBS " answer and walk out. NOT saying that I KNOW I have a gluten intolerance for sure, or that IBS is not a horrible thing to have.....but I want tests after test and I want to make SURE what it is that is wrong with me so that I can do all that I can to make myself better :-)

Lol....I need to know my stuff.....these male doc's tend to get " weirded " out when I cry, hahaha *jokes*

MDRB Explorer
MDRB
Posted

Hi and welcome!

I guess the main thing to tell the GI is that you have been gluten free for a while. Most tests will be inaccurate if you have not been eating gluten. My GI put me back onto gluten for a month before doing an endoscopy (worst 4 weeks of my life!)

Also let the GI know that life has been easier since going gluten-free.

You didn't mention how long you had been gluten-free, it can take the body a long time to heal which may be why you are still having symptoms.

Even if your tests come back negative, if you feel better minus the gluten, just go for it! The only thing you would be denying yourself is not at all nutritionally valuable food that makes you sick!

Octoberme Apprentice
Octoberme
Posted
  • Author
Hi and welcome!

I guess the main thing to tell the GI is that you have been gluten free for a while. Most tests will be inaccurate if you have not been eating gluten. My GI put me back onto gluten for a month before doing an endoscopy (worst 4 weeks of my life!)

Also let the GI know that life has been easier since going gluten-free.

You didn't mention how long you had been gluten-free, it can take the body a long time to heal which may be why you are still having symptoms.

Even if your tests come back negative, if you feel better minus the gluten, just go for it! The only thing you would be denying yourself is not at all nutritionally valuable food that makes you sick!

Lol, thanks. Yes, I had heard that going gluten free may not be the best idea before going in to see the specilaist, but I just could not wait anymore in that pain / torture. Honestly, I have only been gluten free for about two weeks now I think it is, not long, so yes, that is probably why I am still getting symptoms.

But thanks for the advice. And yes, i agree, if I feel better this way, I am sticking to it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,013
    • Most Online (within 30 mins)
      7,748
    pawious25
    Newest Member
    pawious25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Celiac pain relief

      By Scott Adams · Posted

      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
    • Karmmacalling
      Celiac pain relief

      By Karmmacalling · Posted

      I was born with celiac disease im 20 years old. And I've been gluten free my whole life. Yes my diet is 100 percent gluten free and no i don't eat at restaurants at all. I got glutened by a chips that was marked as gluten free but it wasn't the company said the packaging was old and the recipe was new. 
    • Scott Adams
      My son newly diagnosed

      By Scott Adams · Posted

      Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.
×
×
  • Create New...