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Good Experience At The Gi Today

chb

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chb Rookie
chb
Posted

I just wanted to share my good experience with others. I finally got in to see the GI for my referral today. I have been very nervous about having to go to yet another Dr. and try to jusify my symptoms. Especially after reading the experiences that some of you have had.

(Just a little backgorund, I have mostly nuerological symptoms, infertility, fatigue--no GI. Tried a couple of weeks gluten-free and felt SO much better, so I went back to eating it to see what the tests would show. My celiac panel values were all negative except for my IGA Gliadin was positive.)

I saw Dr. Toubbeh at the Glen Lake Kaiser Permanente center in Atlanta. She was very nice and well informed. Totally up on having a gluten sensitivity/celiac without GI problems as the main symptoms. She said I defiantly had plenty of symptoms to warrant investigating.

Her take on my blood work was that the antibodies that my body is making aginst the gluten were "not the most specific for celiac, but they were the most sensitive."

I have an upper GI endoscopy scheduled with her. She did also warn me, that it was possible that there would be damage that might be missed being seen during the scope, and that following the diet for a longer period would be recommended even if damage is not seen. She said if the diet makes you feel better than do it--it won't hurt you.

So, I left feeling pretty good. She totally confirmed for me that I am going on the right path. So, I just wantd to share for others out there that there are some really good knowledgable docs out there.

On a cute side note, we were all snuggled uo on the couch this evening and my husband asked me, "So can you start the special diet now, or do you have to wait?" I told him I had to wait until all the testing was done. My 8 year old piped up and said, "Mommy, why do you have to go on a diet? Your already skinny." Lol! That made my day! :D

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gfp Enthusiast
gfp
Posted

Its always good to hear of experiences like this... and its always helpful to share them.

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