Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors In Your Area


twin#1

Recommended Posts

twin#1 Rookie

I have found it to be a challenge to find a gastroenterologist who doesn't think that the IBS symptoms from celiac aren't in my head since I am a woman. The questions they ask me I gaurantee they would never ask my husband. It has taken so long to get any true treatment for some things that I now have a hernia and need surgery however the doctor I was seeing had his staff schedule yet another test, without telling me why and what they hope to determine from this new test, meanwhile the hernia is getting bigger and bigger. So I went to another gastro doc for a 2nd opinion and during our conversation he asked me if I was the kind of person who "gets all worked up over things". I was stunned and didn't quite know how to reply. I told him that I am basically the kind of person who takes charge of my situations and can get a lot accomplished without any problems however I WAS frustrated with my health care and the situation I was now in so if he thought I was worked up then that was why.

It goes along with a piece on the ABC 7 news a few weeks back where Noah Pransky said that researchers are discovering that IBS really IS in your head!!! And then went on to say that researchers at UCLA had discovered that the pain mechanism in the brains of women with IBS didnt' work the same way the pain mechanisms did in women without IBS. I couldn't believe it. IBS is a symptom, not the disease itself.

I know we are out of the dark ages but sometimes I still see a long tunnel.

Sigh...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

Sorry you are having such a hard time withthe Drs. I've been there too. I think most of us have been there. Everything is female problems, but please don't commit to serious research about actual female problems.... drives me nutty. Not sure if you have a diagnosis of Celiacs yet, but that was a huge help for me. Now they just look at me in shock when I say I have Celiacs. "What do you eat?" is the favorite follow up question.

Can you force the surgery? The drs office staff will hate you, but you need to get it done. Hope you feel better

nikky Contributor

sorry to hear about your negative experiences, but dont loose faith, there are good doctors out there but unfortunatly it seems the situation has to get worse before it gets better. Try pushing for the op, you need it done and if they refuse to do it then that is malpractice because its causing your condition to deteriorate unnessacerally.

I hope you feel better soon and you dont get to much of the "its all in your head, take some anti depressants and you'll be fine." We all know this is real and thats what counts, my sister has been told she has IBS (i personaly think its coeliac because she is almost constantly aneamic, but shes had tests for it 3 times in the last 2 years and all have been clear) so i kinda know how you feel.

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    2. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    3. - ShariW replied to glucel's topic in Coping with Celiac Disease
      5

      potato chip cross contamination

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    5. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,843
    • Most Online (within 30 mins)
      7,748

    Gabriela Fraser
    Newest Member
    Gabriela Fraser
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Hi Dawn,   Back in the Fall of 2019 with Covid looming I considered getting a pneumonia vaccine.  I went as far as getting in line and reading the pamphlet and saw the warning about not getting it if you ever had a reaction to diphtheria.  I instantly recalled a tetanus booster shot in 1971 that caused a severe reaction.  Tetanus booster shots include diphtheria.  I haven't had a tetanus shot since, but recent lab results show that I have many timed the immunity required.  Good Luck.  
    • trents
      Since we don't know what you reacting to when you get vaccinated, we can't say whether or not the pneumonia vaccine will cause a reaction. Is there some common ingredient in these vaccines that is causing a reaction. I mean, with many vaccines the antigen is delivered via a solution containing albumin (chicken egg protein). Some people are allergic to chicken egg protein so they can't take those vaccines. That kind of thing. When you say your "numbers are off the chart", what numbers do you refer to? Are you referring to celiac disease antibodies?
    • ShariW
      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
×
×
  • Create New...