Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out.......


S-J-L

Recommended Posts

S-J-L Apprentice

That i do have celiac disease. Everyone thought so due to my really positive blood results, but my biopsies came back positive too :(

I have to ring my specialist tomorrow to discuss it and i am going to the doctors the next day.

At least now i know that i can feel better and feeling sick wasnt in my head.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I know it is a shock. But try to think positive, because now you are going to get your health back!

Have you started the gluten-free diet already?

S-J-L Apprentice

I have to go on a big shopping spree first cos i dont have much gluten free food. Im also down to see a dietician. Hard to know where to start.

Ursa Major Collaborator

Well, the easiest and safest way to start is to just eat naturally gluten-free foods. Like potatoes, rice, meat, fish, eggs, vegetables and fruit. If you prepare them yourself you won't have to worry about what might be in them.

A lot of dieticians know less than you about eating gluten-free, and might even give you wrong advice. Some might be good, but many are a waste of money.

S-J-L Apprentice

Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

MDRB Explorer
Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

Hi,

I usually take in a salad, gluten-free pasta or potato salad if you need something more filling. Also I carry around gluten free snack bars with me everywhere I go incase I get hungry and tempted.

You could try having your usual lunch but using gluten free bread, but to be honest, most gluten-free breads taste like a kitchen sponge. You could try rice or corn cakes or corn tortillas.

Good luck :)

Joni63 Collaborator
Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

Hi,

When I'm out for the day I use Hormel Healthy Choice turkey and soy cheese on rice crackers. If you can pack a small carry around cooler with you, you will have lots of choices.

Fruit, salad, spam, Planters mixed nuts, peanut butter and jelly, soy joy bars or gluten free bars, rice chex made into a snack mix w/ nuts raisins, chocolate chips, gluten free pretzels. I never eat the bread unless I can toast it at home, but crackers do work in place of bread.

There are lots of choices. I'm sure you'll find what works for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



S-J-L Apprentice

Thanks for the ideas. Ive only been gluten free for a day now and am already finding it hard. Please tell me it gets easier?? The gluten free products ive tried are OK but its just not the same. Im getting cranky cos i feel so limited.

My doctor is looking into getting me a food subsidy which is good.

MDRB Explorer
Thanks for the ideas. Ive only been gluten free for a day now and am already finding it hard. Please tell me it gets easier?? The gluten free products ive tried are OK but its just not the same. Im getting cranky cos i feel so limited.

My doctor is looking into getting me a food subsidy which is good.

Yes it does get easier. Eating gluten free has become second nature for me. I still feel a bit frustrated not being able to eat out at many places or at other peoples houses, but this is a small frustration compared to how much better I feel without the gluten in my diet. It takes a while to adjust to the alternative foods, mainly because you will still be craving for the gluten. Stick with it, experiment with recipes and products, you will soon find favorites that you enjoy as much as or even more that the old ones.

jparsick84 Rookie

Also, you might want to consider going to see a therapist or counselor. You are losing an entire way of life, and you're going to have to allow yourself to mourn it without wallowing. Eating gluten-free didn't start to get easier until I went to see someone - even just to talk to someone who will just listen, you know?

It does get easier, and more and more things are gluten-free all the time. Rice Chex JUST became gluten-free the other day, and remember fresh foods (meat, potatoes, fruits, eggs, veggies) are always safe if you prepare them yourself. And Cheetos and Fritos are both gluten-free, so you can still have friends over for a movie and serve "normal" foods.

The best advice I ever got was to remember that you're not normal, you're special. And being special is way better than just being normal. :)

Just take it one day at a time, keep a "good foods" list for meal inspiration, and remember you're not alone.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,952
    • Most Online (within 30 mins)
      7,748

    Mcavoyaz
    Newest Member
    Mcavoyaz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Nicbent35
      Wow she was just playing with play dough yesterday and I actually thought i wonder if I have to worry about play dough! But no meltdowns yesterday. Is your daughter celiac or just gluten sensitive/intolerant? Your son still had to go on Ritalin after going gluten free?
    • growlinhard1
      I had the endoscopy with biopsy done. I have gastritis and duodenitis at this point. The biopsy should provide the cause of the inflammation findings. How common are these findings when Celiac is the ultimate culprit?
    • Wheatwacked
      Welcome to the forum @cookiesyum, I lasted on staton for about a month before getting so weak I had to stop.   Switched to Nicotinic Acid and I posted the results in a previous post.  Instead of getting sicker and weaker on the statin I feel I am improving day by day.  Nicotinic Acid was first used for cholesterol in 1955.  
    • Wheatwacked
      According to research, consuming gluten can potentially trigger sudden mood swings and increased irritability in children, particularly those with gluten sensitivity or celiac disease, making them more likely to have tantrums or display behavioral issues; this is because gluten can trigger an immune response in the body, potentially impacting brain function and neurotransmitter levels.  When my son was diagnosed in 1976 when he was weaned his doctor told us that at 5 years old his kindergarden teacher would beg us to put him on Ritalin.  And so it did happen.  My son was on Ritalin though high school.  In the morning he was a devil who could not put on his socks. Half an hour after the morning dose he was an angel wanting to help mom get ready.  Talk about Jekyll and Hyde! Dr Danel Amen could be a good resource for you.   
    • MommaBear82
      Yes, it certainly can! My daughter has a reaction from just playing with Playdough. She doesn't get GI symptoms at first, just psychological mostly. It can get really bad. It's like night/day behavior. My daughter is eight, but started showing signs around 6.
×
×
  • Create New...