Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerance


sssmith1

Recommended Posts

sssmith1 Newbie

I was lactose Intolerant when I initially came down with Celiac Disease. I was fine after going on a gluten-free diet. Now, a year later I have been sick multiple times after I ate some form of dairy product. Is it possible for the lactose intolerance to resurface even after going on a gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kehaulani Newbie

hi! i don't know if i can answer your question but i found some interesting information about lactose intolerance. i am also lactose intolerant and was diagnosed with celiac disease about 2 months ago and have been on a gluten free diet for about 3 months. i read in a book (Living Gluten-free for Dummies) that the enzyme lactase, which breaks down lactose, is found on the tips of the villi in our small intestine. so after being on a gluten free diet and your villi heal, you are most likely able to tolerate dairy products again. is it possible that you may have accidently ate gluten (maybe cross-contamination)? becasue a small amount of gluten in your body may have caused an attack on just the tips of your villi, thus causing the lactase enzyme to be destroyed and causing your lactose intolerance again. this may not be the case, but you never know!

psawyer Proficient

Many people with celiac disease develop other food intolerances. Lactose intolerance is usually temporary, as kehaulani noted.

You may have developed an intolerance to casein, which is the protein in milk. This is the most common intolerance in celiacs after gluten. If you are casein intolerant, you must avoid all dairy products, even those which have little or no lactose. Casein is more difficult than gluten to avoid completely, as it shows up in places you would not expect, and is not always obvious in the ingredients.

I tolerate casein myself, so I am not that knowledgeable in this area, but there are a number of board members who could offer more insight.

sssmith1 Newbie
Many people with celiac disease develop other food intolerances. Lactose intolerance is usually temporary, as kehaulani noted.

You may have developed an intolerance to casein, which is the protein in milk. This is the most common intolerance in celiacs after gluten. If you are casein intolerant, you must avoid all dairy products, even those which have little or no lactose. Casein is more difficult than gluten to avoid completely, as it shows up in places you would not expect, and is not always obvious in the ingredients.

I tolerate casein myself, so I am not that knowledgeable in this area, but there are a number of board members who could offer more insight.

Thank for your insight. Both were very helpful. I will definitely look into this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,134
    • Most Online (within 30 mins)
      7,748

    Ch3ls3a
    Newest Member
    Ch3ls3a
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Thelma Cadieux
      Thanks but I will check it out with my doctor, usually stress will trigger it,
    • Hopeful1950
      Has any doctor suggested taking a round of Dapsone?  If you have dermatitis herpetiformis, dapsone will clear it fairly quickly.  It is not a drug you would want to take forever, but when all else failed my doc had me take it as a way to determine if it was dermatitis herpetiformis.  Sure enough it worked like a miracle and itch stopped and after 2 months the rash cleared.  Then I embarked on figuring out how to eat to avoid the breakouts.  It is my understanding that once you expose to gluten, the reaction happens and antibodies are deposited in your skin.  They can blister right away or hang around for a long time and get "activated" by other things like your monthlies, pressure, stress etc.... It makes it difficult to diagnose and difficult to manage.
    • Hopeful1950
      I use an app called Spoonful where you can scan labels and it will tell you whether it is safe, questionable (and why) and also something you can substitute.  It also makes it easier to see what is on the label.  There are some ingredients that I avoid in addition to gluten. You can also search the app by a category.  I just searched on "cosmetics and a few things popped up as compliant.  I think the app is mainly focused on food.  When I first started out reading labels was a nightmare and it took me so much time at the store.  This app has really helped me when I am looking at something new.  They update frequently, and if something isn't in their data base there is an AI function where you can enter the information from the label and it will analyze it right away for you. I have used an app called Find Me Gluten Free in the past when I am traveling to find restaurants.  People's reviews are very helpful because even when a restaurant claims to be able to accommodate, often people will find out differently and they report it on reviews. Hope this helps.
    • Scott Adams
      It took me 2-3 years to feel like my gut recovered, and then I still had gluten ataxia issues for well over a decade.  This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Thelma Cadieux
      Good idea, but make sure she does not require lactose free cheese,it is common in celiac patients. 
×
×
  • Create New...