Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ideas Anyone?

MDRB

Recommended Posts

MDRB Explorer
MDRB
Posted

Ok,

I had such a bad night last night, I spent most of the night with my head in the toilet trying to vomit (lovely mental image I know) and I'm still all gurgley down there today. :(

I was definitely gluten free all yesterday. The only new things that I had in my diet were:

1. gluten free orange and poppy seed muffins with Philadelphia cheese/icing sugar icing (all gluten-free)

2. plain chips (called company who confirmed gluten free)

3. gluten free cocco puff type cereal with soy milk (again all gluten-free)

I also ate gluten free pumpkin soup for dinner and an orange during the day. Before these new additions, my diet had been mostly fat and sugar free. I thought it might be a sugar problem??? :blink:

Apart from a couple of accidental slip ups and some lingering fatigue I had been free of symptoms.

I'm so confused and frustrated as I had been doing so well! :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aleshia Contributor
Aleshia
Posted
The only new things that I had in my diet were:

1. gluten free orange and poppy seed muffins with Philadelphia cheese/icing sugar icing (all gluten-free)

2. plain chips (called company who confirmed gluten free)

3. gluten free cocco puff type cereal with soy milk (again all gluten-free)

I also ate gluten free pumpkin soup for dinner and an orange during the day. Before these new additions, my diet had been mostly fat and sugar free. I thought it might be a sugar problem??? :blink:

Apart from a couple of accidental slip ups and some lingering fatigue I had been free of symptoms.

I'm so confused and frustrated as I had been doing so well! :angry:

hmm... the soy milk maybe? or the dairy in the cream cheese? did the pumpkin soup have dairy in it as well?

BRUMI1968 Collaborator
BRUMI1968
Posted

tough one! the dairy does come to mind; and the soy. I recently got VERY sick and it was right after I ate a cake I had made (gluten free of course). I couldn't eat anything sweet for a month. Anyway, I think it was the Norovirus, which was going around our town big-time a month later. Maybe I started the trend!

Is it possible it was a tummy thing? Or that there was something "bad" in what you ate? I don't know the ingredients of the pumpkin soup. Any eggs that might've been undercooked with salmonella or anything like that? No pooping troubles?

A tough case, to be sure.

babysteps Contributor
babysteps
Posted

one way to find out would be go back to your low/no fat & sugar gluten-free diet for as long as it takes for your system to stabilize.

then try each of the 'new' foods, one at a time, to see which if any were triggers.

If all is well even then, it may have been the combination of all the new foods at once?

Good luck being Sherlock Holmes!

I am also sensitive to uncooked melon - you are not alone there :) (I don't admit to an allergy, but I do get a gag reflex)

kenlove Rising Star
kenlove
Posted

There are two things I look for when getting glutened after eating something gluten-free.

Where did I walk and what did I breath. (Like yesterday at costco store being too close to the bakery section.)

and cross contamination issues. So where did you eat?, at home or restaurant? -- I guess for me its more of these issues than and allergy to something else.

good luck

ken

Ok,

I had such a bad night last night, I spent most of the night with my head in the toilet trying to vomit (lovely mental image I know) and I'm still all gurgley down there today. :(

I was definitely gluten free all yesterday. The only new things that I had in my diet were:

1. gluten free orange and poppy seed muffins with Philadelphia cheese/icing sugar icing (all gluten-free)

2. plain chips (called company who confirmed gluten free)

3. gluten free cocco puff type cereal with soy milk (again all gluten-free)

I also ate gluten free pumpkin soup for dinner and an orange during the day. Before these new additions, my diet had been mostly fat and sugar free. I thought it might be a sugar problem??? :blink:

Apart from a couple of accidental slip ups and some lingering fatigue I had been free of symptoms.

I'm so confused and frustrated as I had been doing so well! :angry:

MDRB Explorer
MDRB
Posted
  • Author

Mystery solved!

My fiance pointed out that I got sick the last time I ate the orange and poppyseed muffins. I don't have allergies to any of the ingredients on the box. The box states that they are gluten free but I get a gluten like reaction from them. Very disappointing...

ravenwoodglass Mentor
ravenwoodglass
Posted
Mystery solved!

My fiance pointed out that I got sick the last time I ate the orange and poppyseed muffins. I don't have allergies to any of the ingredients on the box. The box states that they are gluten free but I get a gluten like reaction from them. Very disappointing...

I just noticed you are in Australia, do they use the Codex wheat starch in products that is supposed to be gluten free by processing? Perhaps that is an ingredient in the muffins. I have heard from others that they have reacted to it, although they can label things gluten-free with stuff that has it included.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MDRB Explorer
MDRB
Posted
  • Author

I didn't notice it on the box, it had a pretty basic ingredients list, a couple of different gluten-free flours etc

I think perhaps it is manufactured somewhere that also processes gluten products.

Thanks for the heads up about the wheat starch, I'll look out for it :)

BRUMI1968 Collaborator
BRUMI1968
Posted

watch too for tapioca, though someone probably already said this (I can't recall). But it gives me glutened-like symptoms, and it sounds like it does for plenty of others too.

Take care.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,350
    • Most Online (within 30 mins)
      7,748
    JohannesW85
    Newest Member
    JohannesW85
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see.  I never had any of those Pellagra skin changes, or Casal’s necklace. Just itchiness in the supraclavicular hollows on both sides of my neck, and the anterior aspect as my neck radiation site.  The hollows had no changes until I scratched them, then I got the rash on those areas like the ones I have now scattered in different areas, usually on both sides with the exception of my anterior thighs. My right is affected, my left isn’t. I am 70 and have all my teeth as well - amazingly after having had max dose radiation in 2002. 😂 Unfortunately, because of long term changes in my oral mucosa because of it I can’t use mouthwashes - even non-alcohol ones, as they all burn my mouth like fire. Toothpastes burn as well, but not nearly as bad. I have an electric toothbrush but it is getting more difficult to use due to increasing trismus. Some days I cannot open my mouth wide enough to get the electric brush between my back teeth, so on those days I use a regular one. Gotta do what you gotta do.  Thank you for your input. Any insight I can get into this is appreciated. So, for now it’s the waiting game for test results, then we can form a treatment plan going forward. 
    • James47
      I’m terrified it’s too late for me😭

      By James47 · Posted

      Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
    • James47
      Long term recovery

      By James47 · Posted

      Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      Thank you so much Scott 🫶🏻
    • Wheatwacked
      SkinSafe

      By Wheatwacked · Posted

      I use Listerine.  Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic.  The $15 ones at the supermarket.  At 73 I still have all my teeth.  While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator.  Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis?  I may have missed it.  Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as:  Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs.  Scaliness: Dry, flaky skin that may become thickened and crusty.  Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas.  Casal's necklace: A dark, pigmented band around the neck.  I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine  10 drops of Liquid Iodine B1 Thiamin 250 mg  B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg     Selenium 200 mcg  Several times a week
×
×
  • Create New...