Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarreah In The Am


therearemiracles

Recommended Posts

therearemiracles Newbie

It's taking me so long to get to this point, a lot of hitting my head on the wall of people telling me "maybe your problem is gluten" and doctors saying it's not. Well every morning for 2 hours straight on and off the toilet I have this diarreah and it's not water just mush and it's long and skinny stool with no formation at all. I hurt so bad with pain and cramping that I don't voluntary push it out my body just throws it up out of my butt. Seriously, has anyone delt with this? My legs cramp, my guts ache and all I do is crawl back in bed and wait for the pain to go away.

Here's my other symptoms my stomach will stick out like I'm 5 months pregnant nothing will get it down until the next morning when I'm dying in the bathroom.

Does this sound like gluten? If so, I've been this way for 3 years now and today is my second day gluten free. Finally, I've noticed my guts don't hurt when I breath. No pain in my abdomen at all.

I guess the diarreah is what is freaking me out. I understand diarreah is anything not formed and mine are all mushy 99% of the time.

Thanks for the feed back and advice, suggestions and/or comments. I'm new here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, to be as blunt as Celiac villi, yes, it sure does sound like Celiac to me. Especially when going gluten-free appears to be helping already. Do give it time though, as it can take a while before the intestines heal enough to see noticeable improvement. It was about six months before I noticed much of anything.

You've come to the right place. I'm sure you'll get many helpful responses.

Welcome to the board!

Ridgewalker Contributor

I can tell you that before going gluten-free, my diarrhea was pretty much only in the morning. Over a few years it got worse and worse, until it was every morning, 5 or 6 times. After I had been up a while, it would ease off. That all stopped when I went gluten-free. My cramps weren't as bad as yours, but I can tell you that it's perfectly possible to have symptoms at certain times of the day like that.

Edited to Add... My symptoms improved within a couple weeks, and a few months later I finally became a regular, poop once in the am, once in the pm, person for the first time in my memory! :lol:

ksymonds84 Enthusiast

I too was a morning only diarreah girl. After 4 months gluten free, I am normal 99% of the time now (unless gluten sneaks its way in). It also helped me to take caltrate with vitamin D two times a day. I need the calcium and the calcium bicarbonate helps firm me up as well. The calcium with magnesium made it worse by the way. Welcome to the board we are all here to help!

therearemiracles Newbie

Thank you for responding. What I struggle wiht the most is the urgency and when I pass gas mucus or whatever flys out with it, it truly is a explosion I can't control.

I've stocked up on gluten free foods and I'm really going to try it wholeheartedly.

I do need a multi which I ordered pure encapsulation 280 (it's a milder multi) and a cal/mag, but the last thing I want it to go to the bathroom with too much cal/mag. I'll start out slow on both and see how it goes. I do pray for a healing in all of this. My nails are a wreck, I feel I've aged 5 years when I thought I looked young at one time. It's very discouraging to see myself with so many "bad days" when all I use to have was great days.

I'm not giving up. I wasn't like this before I feel I can get back to great health.

ravenwoodglass Mentor

Sounds like my D routine for years. I went through 10 years of the morning D before it progressed to the point where it lasted all day and then would wake me with extreme pain every night for another 5 years. I also showed up negative on blood tests, even at the end when I was close to death. Unfortunately noone told me what celiac sprue was so I never had the chance to even try and eliminate it until after I was finally diagnosed with a doctor led elimination diet.

You have come to a good place for info and support. I hope you have some relief soon.

missy'smom Collaborator
I can tell you that before going gluten-free, my diarrhea was pretty much only in the morning. Over a few years it got worse and worse, until it was every morning, 5 or 6 times. After I had been up a while, it would ease off. That all stopped when I went gluten-free. My cramps weren't as bad as yours, but I can tell you that it's perfectly possible to have symptoms at certain times of the day like that.

Edited to Add... My symptoms improved within a couple weeks, and a few months later I finally became a regular, poop once in the am, once in the pm, person for the first time in my memory! :lol:

Yup, this describes me too. And I had that pregnant tummy too. As you go down this new gluten-free road, you may realize that you have other symptoms too. Here's a list if you haven't see one yet. Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator
My nails are a wreck, I feel I've aged 5 years when I thought I looked young at one time.

Sounds like you could use a B12 supplement. The best type is methylcobalamin, in sublingual form. Take at least 3mg per day. Obviously, make sure it is gluten-free!

Jestgar Rising Star
I feel I've aged 5 years when I thought I looked young at one time. It's very discouraging to see myself with so many "bad days" when all I use to have was great days.

I'm not giving up. I wasn't like this before I feel I can get back to great health.

I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

jerseyangel Proficient
I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

I don't know about 10 years, but I look younger almost 3 years gluten-free. This was apparent when I got my new driver's license this past December--I compared the picture from the last one (2004) and now, and it's quite astounding. I wish there were some way I could post the two side by side.

I not only looked older 4 years ago--I looked sick. If I looked that way on the outside, can you imagine how bad my insides must have been?

missy'smom Collaborator
I think I look about 10 years younger after 2 years gluten-free. Most of the gray hair grew back brown, the wrinkles around my eyes are much less pronounced, I no longer have the old lady shuffle (well, just in the mornings, but less often).

I don't know about 10 years, but I look younger almost 3 years gluten-free. This was apparent when I got my new driver's license this past December--I compared the picture from the last one (2004) and now, and it's quite astounding. I wish there were some way I could post the two side by side.

I not only looked older 4 years ago--I looked sick. If I looked that way on the outside, can you imagine how bad my insides must have been?

Wow, that's encouraging to hear from you both. At the young age of 38, I still feel so old so often. I have to laugh at the old lady shuffle, that's me in the morning! :lol:

therearemiracles,

Your nails should get better as you heal and absorb nutrients again. You may still want to take a supplement. Early on, all of a sudden I found myself clipping mine so often(once a week)? and was very suprized by it, I realized that I had been only clipping them very infrequently (about once a month?) and hadn't really realized before that that wasn't normal.

  • 6 months later...
jackgf Newbie

I know ive come to the right place!

I would like to describe my issues to see if anyone can relate,

No one has described my morning issues specifically.

1. Like many have said here, I get woken up by my urge to go, unfortunately earlier then i would like to wake up.

2. I have to go at least 3 times

3. The FEELING is like the poo is in the upper part of my belly then shifts downward. Then out.

4. BUT, it cant all get out at once. It takes AT LEAST 3 times because it takes time for IT ALL to move down and out.

5. When it all doesnt make it out, that is when I think it gets painful.

6. I notice much worse with lactose.

7. IS THIS A FLARE? Im not sure what people mean by the term except i feel like flares are going off in my stomach.

8. Finally, all this made me get paranoid that i have crohn's disease...mainly bc the symptoms are so similar with the "D", any thoughts?

jerseyangel Proficient
I know ive come to the right place!

I would like to describe my issues to see if anyone can relate,

No one has described my morning issues specifically.

1. Like many have said here, I get woken up by my urge to go, unfortunately earlier then i would like to wake up.

2. I have to go at least 3 times

3. The FEELING is like the poo is in the upper part of my belly then shifts downward. Then out.

4. BUT, it cant all get out at once. It takes AT LEAST 3 times because it takes time for IT ALL to move down and out.

5. When it all doesnt make it out, that is when I think it gets painful.

6. I notice much worse with lactose.

7. IS THIS A FLARE? Im not sure what people mean by the term except i feel like flares are going off in my stomach.

8. Finally, all this made me get paranoid that i have crohn's disease...mainly bc the symptoms are so similar with the "D", any thoughts?

Hi and welcome to the board.

Given your morning issues, I would suggest asking your GI about Microscopic Colitis. It's associated with Celiac--and is thought to have an autoimmune link. It's diagnosed by a biopsy of samples taken from the colon during a colonoscopy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,216
    • Most Online (within 30 mins)
      7,748

    cboling
    Newest Member
    cboling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Milarynn,  Welcome to the forum!   Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies.  Be sure to have your Vitamin D level checked.  Vitamin D helps prevent bone loss, including loss from the jaw and teeth.   Magnesium and calcium are both important to bone health as well.  Magnesium helps keep the calcium from leaving your bones.  Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1.  Low Magnesium and/or low Thiamine results in muscle cramping.   Thiamine deficiency is found in Pre-diabetes and Diabetes.  Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease.  Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums.  Vitamin C is needed to fight bacteria that cause plaque which causes cavities.  Vitamin C helps rebuild tooth enamel.   I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems.  Do talk to your dentist about having Celiac Disease.  Practice good oral hygiene.  I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress!
    • trents
      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
    • Milarynn
      Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks. 
    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
×
×
  • Create New...