Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

American Celiac Disease Alliance


Lisa

Recommended Posts

Lisa Mentor

As many of you may know, May is Celiac Awareness Month. I am forwarding on a request from the American Celiac Disease Alliance, to encourage support for the Celiac Awareness Bill. DON'T THINK THAT YOUR VOICE CAN'T MAKE A DIFFERENCE.!

Thanks, Lisa

................................................

Add Your Voice -- Call For Celiac Awareness Bill Congresswoman Lowey has asked for our help in building MORE support for the National Celiac Disease Awareness bill, HConRes 70. With just a couple weeks left in May, your Representative needs to hear from YOU that this is important.

To call lawmakers in Washington, DC dial 1+(800) 985-8762 -- Ask for legislator's office. Not sure who is it? Click here, then enter your zip code.

Here are a few points to make when you call:

* You (or family member) have celiac disease. It is estimated that 1 in 133 Americans have the disease, that's about 3 million people.

* I want the Representative __________ to cosponsor H Con Res 70, the National Celiac Disease Awareness bill.

* The National Commission on Digestive Diseases recent report said that physicians in the U.S. don't understand that celiac disease is the most common genetic disorder in the world and aren't trained to look for it in patients.

* With better education, physicians and other health professionals can identify the celiac disease before anemia, osteoporosis, infertility or serious conditions take hold. People with celiac disease are also at greater risk for other autoimmune diseases like Type 1 diabetes.

* The American College of Gastroenterology, American Gastroenterology Association, American Dietetic Association, American Osteopathic Association, pharmaceutical companies, food manufacturers, and patient support groups ALL have endorsed the bill.

* Will Representative __________cosponsor, too?

[ Be sure to thank the staffer for their time.]


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,189
    • Most Online (within 30 mins)
      7,748

    Kellik
    Newest Member
    Kellik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I see you tried to post a reply twice but both times it just contains the text from your original post and no new information. Are you having trouble with using the forum? If you need help, send me a personal message and I'll try to give you some direction. There is a forum tool for sending personal messages to members. Just click on my user name and you will see the Message button. Click on it. Or, just scroll down the page below this post and your will see "Reply to this topic" and click in the window to add another post with new content.
    • Bernade
    • Bernade
    • trents
      Welcome to the forum, @Bernade! There are a couple of possibilities here what is causing your up and down experience since being diagnosed with celiac disease and beginning the gluten free journey. One is that you are not yet consistent in avoiding gluten. It is easy to avoid major sources of gluten such as bread and pasta but to arrive at a completely gluten free state on a consistent basis is much harder and involves a real learning curve. Gluten is found in some many food products that you would never expect to find it in. Just a couple of examples: soy sauce and canned tomato soup (most canned soups, actually). Gluten can be in medications, pills and supplements as a filler. And if you are still eating out at restaurants you are very likely getting "glutened" by cross contamination even when you have ordered foods that are naturally gluten free. Another is that you have other food intolerances in addition to gluten. This is very common in the celiac community and the most common culprits are dairy, oats, soy, eggs and corn. Some foods have proteins that resemble gluten closely enough so as to cause a celiac reaction for some celiacs.  
    • Bernade
      Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues???
×
×
  • Create New...