Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight


really confused

Recommended Posts

really confused Newbie

I just found out I had celiac about 3 weeks ago. Since cutting out gluten I have gained a lot of weight.. which is wierd to me, because since I cut it out of my diet I have been eating a lot healthier. Is this normal has anyone else experienced excessive weight gain at the start when cutting it out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGalAZ Enthusiast

When I went completely gluten free I did gain some weight.

Your body is not use to absorbing all of the nutrients you are eating. With cutting out the gluten your body is healing and you are now able to absorb the nutrients. Some people experience a constant hunger in the beginning. I had this happen about the first month or so I felt hungry ALL the time. After a while I was back to my normal eating habits but once in a while sparks back up.

Your body is needing the food you are taking in. Give yourself some time for your body to adjust to everything.

Good Luck hope this helped some :)

msmini14 Enthusiast

I have been gluten-free for about 2 months now and have been glutened a couple of times. I have put on 15 lbs since then, but like they say your body is absorbing again. I am still kind of playing catch up myself, so yes it is normal =)

ellen123 Apprentice

I've been gluten free for about 3-1/2 months now and I also noticed I was gaining weight. In addition to the explanations above, I found that I was eating a lot more carbs than I had been before and I'm guessing that contributed to my weight gain as well. In my effort to find gluten-free foods, I was relying a lot on rice and noodles for both lunches and dinners, plus rice crackers, gluten-free toast for breakfast, even noodles or rice crackers for snacks. And like the others, I found I was hungry earlier in the day after breakfast. My stomach began "growling" by 11 a.m. or even earlier. I am now trying to cut down on the carbs a bit, trying to eat more salads and protein at lunch time and saving the noodles, rice or potatoes for one meal at dinner, cooking a lot more vegetables and eating less of the carbs even at dinner. I've been using fruit or vegetables for snacks too. So far, I haven't notice big differences on the scale but my body seems to be redistributing a bit for the better. If you're eating a lot of dairy I'd cut down on that too. If you're ready to deal with the weight gain, those are my suggestions. On the other hand, many people feel deprived at first when they go gluten-free, so you may want to just let yourself get used to that before reducing carbs or doing anything that will make it harder for you. Good luck!

Ellen

Ursa Major Collaborator

Carbohydrates and sugars are responsible for weight gain, while fat HELPS you lose weight (if you stay away from fats like hydrogenated fats and margarine, that is). Your body needs saturated fat, yes, especially your heart and brain. It has been shown over and over again that a low fat diet causes heart disease and cancer.

Eat more fats like lard, eggs (which have a lot of healthy fat), butter if you can tolerate it and non-hydrogenated, cold pressed coconut oil (one of the healthiest fats in the world). Also make sure you get enough omega 3 fatty acids (we all get too much omega 6, and it is bad if the balance is off).

Fats and protein will allow you to feel satiated faster and much longer than carbs, and as a result you will lose weight instead of gaining if you eat enough of them.

By the way, something I found out not long ago, and almost nobody knows this: Most of the fat in meat turns into mono-unsaturated fat while cooking, which is the same healthy fat as olive oil! Wouldn't it be nice if all nutritionists and doctors knew this, when they tell people to cut out all animal fat and eat only vegetable oil. Which is terrible and uninformed advice.

ShayFL Enthusiast

I have actually lost weight. Weight I could not afford to lose. :( Down 4 pounds which doesnt sound like much unless you were too thin to begin with. And I lose it mostly in my face and shoulder area first. Everyone comments. And I feel they think I am anorexic or something. I hate it.

But in my case when I cut out all gluten products, I started eating A LOT less CARBS. I was trying to go basically paleo. But I cannot lose anymore weight. So I have been preparing some gluten-free baked goods at home from scratch. Still whole grains. I just need the calories.

I am hoping I can start to play "catch up" soon.

cpicini Rookie

I've been gluten free since October of 2007. I lost about 35lbs in the first two months. Now I can't lose a pound to save my life. What I notcied after speakign with my doctor was that most of the gluten-free foods are super high in calories. Try tracking your calories a little closer. You should burn about 2000 calories a day without exercise so you should be able to simply figure out if you are taking in more then you are burning.

Good Luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



msmini14 Enthusiast

I agree, dont deprive your body. Let it heal, give it what it wants =)

AliB Enthusiast

I have been gluten-free for 3 months and have been struggling to keep my weight down even though I am eating little in the way of carbs.

My body doesn't cope with them very well (hence the diabetes) so I am better keeping them low. I try to avoid baked goods and just stick to basic foods but I am hungry! So I know how that feels. I hope that as time goes on and my body gets to sort itself out properly, my weight will start to balance out. I need to lose around 60lb to get to a more balanced weight but it's going nowhere at the moment!

cupid Newbie

I'm gaining wt too but its different than when I use to gain wt before going gluten-free/cf. I use to gain wt all over and it was more solid but now i'm gaining more in my stomach and thighs but seems to be more puffy/bloated. My friend suggested maybe not drinking enough water. I'm going to try an increase my water consumption and see what happens. Any other sugestions??

ShayFL Enthusiast

I think a big problem is a lot of people just switch from glutened foods to non-glutened which not only have less fiber but are way higher on the glycemic index. Im not eating ANY processed foods. Simple foods like fresh meat, veggies, fruit, nuts and baked goodies I make at home with whole grains. I avoid the rice flour....no fiber and will make your blood sugar spike. And I add a Tlb of flax or chia to the muffins/cookies to give even more fiber. Im sticking with Teff, Amaranth and some Sorghum mostly. Im losing weight.

TheMinsterman Newbie

I have lost two stone in 3+ monthes, and while I have no confirmation of having Celiacs yet (a weak positive, which my GP explained didn't necessarily mean I definately had it, and my wieght loss could be down to the nausesa my inner ear problem has caused, along with a possible CLF leak too which irritates and damages the guts, joy") its becoming quite difficult to even sustain, let alone gain, weight.

I've gone from 16 stone to 14 stone, which while I needed to lose weight, the mode I have done it in hasn't been appreciated!

cupid Newbie

Good advice ShayFl, I will try this. Its also hard to find gluten-free stuff thats low fat so I'm sure thats contributing too. Especially if low in fiber since fiber carrys fat out of the body. Its funny but before I had to go gluten-free/cf I knew the nutrtional guidelines to follow to stay healthy and actually did pretty well while I had the energy to work out but as my fatigue increased all the rules went out the window and I ate alot of comfort foods!! Uhg, hope I can get back on track soon so I don't feel like a blimp all summer!!

ShayFL Enthusiast

Im finding right now I need some yummies. So I have made teff/almond butter cookies (Bob's has the recipe only he uses peanut butter which I avoid), pumpkin muffins and banana bread. I tweak them to suit me. I dont do eggs, so I substitute ground flax and water. Add chia if I need more fiber, etc. I am fortunate that I enjoy experimenting in the kitchen. So baking is working out! But I dont over do these. I just like having them around so I dont feel so deprived.

I am mostly eating lean meats, veggies, sm amount of fruits and nuts/seeds. If I have a carb at dinner like quinoa or buckwheat then I dont eat the yummie. Or if I know I will eat a yummie, then dinner would be just meats and veggies (no fruit or grains). I do limit my carbs. It isnt my weight but my blood sugar that is at issue. So I naturally do not overdo the carbs to keep myself balanced. Eating like this is not conducive to weight gain.

Bernadette Newbie

Most recently, I had to put gluten back in my diet to prepare for the celiac testing, per my doctor's orders. I had to follow a heavy gluten diet for a full 3 weeks before testing. Besides the fact that I felt like I just wanted to DIE, I also gained 10 lbs while eating gluten foods-mostly felt puffy and bloated while eating the bad foods.

However, when I am gluten-free and eating right, I lose weight. When I first realized I had celiac symptoms and needed to remove gluten from my diet, I lost 15 lbs w/in a month. That was mainly because I was so nervous about my diet and not feeling sick every time I ate that I only consumed veggies and grilled chicken and fish-no carbs.

You have to also keep in mind there are fattening gluten free foods out there, especially if you have a sweet tooth and find some yummy gluten free brownies!! My co-worker is a celiac and she eats the delicious gluten free foods and she admitted she has seen an increase in the scale! It always comes down to what you're eating and how your body reacts to it. Eventually, your weight will even out. You just have to find your balance within the gluten-free world.

Panopticism Rookie

In 8-9 months gluten-free, I have not gained all that much weight. I'm pretty horribly underweight, too. I also have that constant hunger you speak of and have the entire time. I eat as much as I can afford to.

MindyK Newbie

I was diagnosed with celiac disease about 8 months ago. I had be suffering extreme symptoms for about a year to a year and a half. No the standard stomach problems, but constant vomiting and loose stools. Anyway I went from a round 140lbs (at 5

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,145
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.