Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight


really confused

Recommended Posts

really confused Newbie

I just found out I had celiac about 3 weeks ago. Since cutting out gluten I have gained a lot of weight.. which is wierd to me, because since I cut it out of my diet I have been eating a lot healthier. Is this normal has anyone else experienced excessive weight gain at the start when cutting it out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGalAZ Enthusiast

When I went completely gluten free I did gain some weight.

Your body is not use to absorbing all of the nutrients you are eating. With cutting out the gluten your body is healing and you are now able to absorb the nutrients. Some people experience a constant hunger in the beginning. I had this happen about the first month or so I felt hungry ALL the time. After a while I was back to my normal eating habits but once in a while sparks back up.

Your body is needing the food you are taking in. Give yourself some time for your body to adjust to everything.

Good Luck hope this helped some :)

msmini14 Enthusiast

I have been gluten-free for about 2 months now and have been glutened a couple of times. I have put on 15 lbs since then, but like they say your body is absorbing again. I am still kind of playing catch up myself, so yes it is normal =)

ellen123 Apprentice

I've been gluten free for about 3-1/2 months now and I also noticed I was gaining weight. In addition to the explanations above, I found that I was eating a lot more carbs than I had been before and I'm guessing that contributed to my weight gain as well. In my effort to find gluten-free foods, I was relying a lot on rice and noodles for both lunches and dinners, plus rice crackers, gluten-free toast for breakfast, even noodles or rice crackers for snacks. And like the others, I found I was hungry earlier in the day after breakfast. My stomach began "growling" by 11 a.m. or even earlier. I am now trying to cut down on the carbs a bit, trying to eat more salads and protein at lunch time and saving the noodles, rice or potatoes for one meal at dinner, cooking a lot more vegetables and eating less of the carbs even at dinner. I've been using fruit or vegetables for snacks too. So far, I haven't notice big differences on the scale but my body seems to be redistributing a bit for the better. If you're eating a lot of dairy I'd cut down on that too. If you're ready to deal with the weight gain, those are my suggestions. On the other hand, many people feel deprived at first when they go gluten-free, so you may want to just let yourself get used to that before reducing carbs or doing anything that will make it harder for you. Good luck!

Ellen

Ursa Major Collaborator

Carbohydrates and sugars are responsible for weight gain, while fat HELPS you lose weight (if you stay away from fats like hydrogenated fats and margarine, that is). Your body needs saturated fat, yes, especially your heart and brain. It has been shown over and over again that a low fat diet causes heart disease and cancer.

Eat more fats like lard, eggs (which have a lot of healthy fat), butter if you can tolerate it and non-hydrogenated, cold pressed coconut oil (one of the healthiest fats in the world). Also make sure you get enough omega 3 fatty acids (we all get too much omega 6, and it is bad if the balance is off).

Fats and protein will allow you to feel satiated faster and much longer than carbs, and as a result you will lose weight instead of gaining if you eat enough of them.

By the way, something I found out not long ago, and almost nobody knows this: Most of the fat in meat turns into mono-unsaturated fat while cooking, which is the same healthy fat as olive oil! Wouldn't it be nice if all nutritionists and doctors knew this, when they tell people to cut out all animal fat and eat only vegetable oil. Which is terrible and uninformed advice.

ShayFL Enthusiast

I have actually lost weight. Weight I could not afford to lose. :( Down 4 pounds which doesnt sound like much unless you were too thin to begin with. And I lose it mostly in my face and shoulder area first. Everyone comments. And I feel they think I am anorexic or something. I hate it.

But in my case when I cut out all gluten products, I started eating A LOT less CARBS. I was trying to go basically paleo. But I cannot lose anymore weight. So I have been preparing some gluten-free baked goods at home from scratch. Still whole grains. I just need the calories.

I am hoping I can start to play "catch up" soon.

cpicini Rookie

I've been gluten free since October of 2007. I lost about 35lbs in the first two months. Now I can't lose a pound to save my life. What I notcied after speakign with my doctor was that most of the gluten-free foods are super high in calories. Try tracking your calories a little closer. You should burn about 2000 calories a day without exercise so you should be able to simply figure out if you are taking in more then you are burning.

Good Luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



msmini14 Enthusiast

I agree, dont deprive your body. Let it heal, give it what it wants =)

AliB Enthusiast

I have been gluten-free for 3 months and have been struggling to keep my weight down even though I am eating little in the way of carbs.

My body doesn't cope with them very well (hence the diabetes) so I am better keeping them low. I try to avoid baked goods and just stick to basic foods but I am hungry! So I know how that feels. I hope that as time goes on and my body gets to sort itself out properly, my weight will start to balance out. I need to lose around 60lb to get to a more balanced weight but it's going nowhere at the moment!

cupid Newbie

I'm gaining wt too but its different than when I use to gain wt before going gluten-free/cf. I use to gain wt all over and it was more solid but now i'm gaining more in my stomach and thighs but seems to be more puffy/bloated. My friend suggested maybe not drinking enough water. I'm going to try an increase my water consumption and see what happens. Any other sugestions??

ShayFL Enthusiast

I think a big problem is a lot of people just switch from glutened foods to non-glutened which not only have less fiber but are way higher on the glycemic index. Im not eating ANY processed foods. Simple foods like fresh meat, veggies, fruit, nuts and baked goodies I make at home with whole grains. I avoid the rice flour....no fiber and will make your blood sugar spike. And I add a Tlb of flax or chia to the muffins/cookies to give even more fiber. Im sticking with Teff, Amaranth and some Sorghum mostly. Im losing weight.

TheMinsterman Newbie

I have lost two stone in 3+ monthes, and while I have no confirmation of having Celiacs yet (a weak positive, which my GP explained didn't necessarily mean I definately had it, and my wieght loss could be down to the nausesa my inner ear problem has caused, along with a possible CLF leak too which irritates and damages the guts, joy") its becoming quite difficult to even sustain, let alone gain, weight.

I've gone from 16 stone to 14 stone, which while I needed to lose weight, the mode I have done it in hasn't been appreciated!

cupid Newbie

Good advice ShayFl, I will try this. Its also hard to find gluten-free stuff thats low fat so I'm sure thats contributing too. Especially if low in fiber since fiber carrys fat out of the body. Its funny but before I had to go gluten-free/cf I knew the nutrtional guidelines to follow to stay healthy and actually did pretty well while I had the energy to work out but as my fatigue increased all the rules went out the window and I ate alot of comfort foods!! Uhg, hope I can get back on track soon so I don't feel like a blimp all summer!!

ShayFL Enthusiast

Im finding right now I need some yummies. So I have made teff/almond butter cookies (Bob's has the recipe only he uses peanut butter which I avoid), pumpkin muffins and banana bread. I tweak them to suit me. I dont do eggs, so I substitute ground flax and water. Add chia if I need more fiber, etc. I am fortunate that I enjoy experimenting in the kitchen. So baking is working out! But I dont over do these. I just like having them around so I dont feel so deprived.

I am mostly eating lean meats, veggies, sm amount of fruits and nuts/seeds. If I have a carb at dinner like quinoa or buckwheat then I dont eat the yummie. Or if I know I will eat a yummie, then dinner would be just meats and veggies (no fruit or grains). I do limit my carbs. It isnt my weight but my blood sugar that is at issue. So I naturally do not overdo the carbs to keep myself balanced. Eating like this is not conducive to weight gain.

Bernadette Newbie

Most recently, I had to put gluten back in my diet to prepare for the celiac testing, per my doctor's orders. I had to follow a heavy gluten diet for a full 3 weeks before testing. Besides the fact that I felt like I just wanted to DIE, I also gained 10 lbs while eating gluten foods-mostly felt puffy and bloated while eating the bad foods.

However, when I am gluten-free and eating right, I lose weight. When I first realized I had celiac symptoms and needed to remove gluten from my diet, I lost 15 lbs w/in a month. That was mainly because I was so nervous about my diet and not feeling sick every time I ate that I only consumed veggies and grilled chicken and fish-no carbs.

You have to also keep in mind there are fattening gluten free foods out there, especially if you have a sweet tooth and find some yummy gluten free brownies!! My co-worker is a celiac and she eats the delicious gluten free foods and she admitted she has seen an increase in the scale! It always comes down to what you're eating and how your body reacts to it. Eventually, your weight will even out. You just have to find your balance within the gluten-free world.

Panopticism Rookie

In 8-9 months gluten-free, I have not gained all that much weight. I'm pretty horribly underweight, too. I also have that constant hunger you speak of and have the entire time. I eat as much as I can afford to.

MindyK Newbie

I was diagnosed with celiac disease about 8 months ago. I had be suffering extreme symptoms for about a year to a year and a half. No the standard stomach problems, but constant vomiting and loose stools. Anyway I went from a round 140lbs (at 5

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    2. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    4. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,646
    • Most Online (within 30 mins)
      7,748

    Rosannerosannadanna
    Newest Member
    Rosannerosannadanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.