Anyone Around 60 Years Old Or Older?

[Del]

Seems like us "older" folks have longer healing periods and other problems....would be helpful if we could compare notes.

I'm 62 and have been gluten free for almost eleven months....some days it seems like "Hey this is working"....other days it's "Oh Lord, it this ever going to work"!!!

[Ursa Major]

I will be 55 tomorrow, so not quite 'old enough'. But there are a few people over 60 here. I am sure they'll reply soon, but it being a Sunday, the board is predictably slow today.

Mind you, I don't know if I will ever be well. I didn't figure out I have celiac disease until I was 52, and I believe I have permanent damage, as well as having developed other problems as a result of being undiagnosed for so long.

[Del]

Hi....thanks for the reply!!

First of all I'm praying for Zoey!

Second of all, HAPPY BIRTHDAY!!!! As of tomorrow you will be an official senior citizen!!! (Aren't you glad I told you that! LOL)

I'm like you I don't think I'll EVER fully heal!!!

Del

[irish daveyboy]

Seems like us "older" folks have longer healing periods and other problems....would be helpful if we could compare notes.

I'm 62 and have been gluten free for almost eleven months....some days it seems like "Hey this is working"....other days it's "Oh Lord, it this ever going to work"!!!

.

Hi Del,

I'm 'Over the Hill' (60 last march), I was diagnosed when I was 57, I didn't know what was happening to me.

I thought I was dying, I lost 56 pounds in 3 Months (I was convinced I had cancer)

.

I was doing fine baking my own gluten-free bread and Cakes, put back on the lost weight + some and last week I had a

follow-up OGD + Colonoscopy, where they found a large polyp in my Colon, I was keep in hospital while they sent

it for biopsy, Thank God it was Benign and I was allowed home, It just goes to prove

how important it is to have a follow-up scope 2 - 3 yrs after diagnosis.

.

Anyway since the follow-up scope my bowels have become loose again, but that is starting to wane.

Maybe something to do with the invasive nature of the procedure ??

.

You can find a lot of information about me from my Web Space

(unfortunately I can't link you from here, it's against board rules) but you can gain access via my profile.

.

Best Regards,

David

[SchnauzerMom]

I will be 54 in July. I'm self diagnosed. I've been on and off the gluten free diet. But I have finally come to terms with it. I feel a whole lot better on it, not 100 percent but better. It just takes time, I believe.

[Del]

Hi David...

Thanks for the prompt reply!!! Best of luck to you!

I visited your profile and have added your web site to my favorites so I can go look thru it!!!! Thanks Again!!

Del

[Del]

Hi....

I think you're right.....it just takes time.....but sometimes I do wonder HOW MUCH TIME!!!!! Guess time will tell!! LOL

Thanks for your reply!

Del

[kenlove]

Was diagnosed at 54 and will be 2 years totally gluten free June . There are so many chances for cross contamination and other things that affect us that I'm not sure if I heal slower or its some new problem. Took them 6 months and 3 hospital stays and like Dave I lost more than 50 lbs. during that time. Just wish I had not put back 65 after I went gluten-free. Still get some bloating and some DH and cramps

but its always by accidental glutening.

The more I eliminate foods the places where I can be contaminated the better I feel and faster it heals.

good luck

ken

Seems like us "older" folks have longer healing periods and other problems....would be helpful if we could compare notes.

I'm 62 and have been gluten free for almost eleven months....some days it seems like "Hey this is working"....other days it's "Oh Lord, it this ever going to work"!!!

[YoloGx]

I am 58, going on 59 in August. I was first dxd when I was 4 months old after pneumonia and "failure to thrive." Only recently I found out what that meant, failure to grow due to celiac/sprue by being introduced to gluten. I was reintroduced to grains at age 4 and suffered with delicate health ever since.

Gradually as a young adult I figured out I was "allergic" to wheat, rye and oats. Only learned about barley 12 years ago when I finally figured out I might have celiac.

I didn't know then what I know now however and wasn't avoiding trace glutens. Wasn't even aware they were there. I did avoid Vitamin E and obvious gluten but all that trace stuff was still getting me. I learned to use herbs to cope with weak kidneys and liver and also improve my skin and mental clarity. However it was always a struggle. I was always coming down with some cold. flu or worse though I usually avoided bacterial infections and parasites my compatriots got. I figured out many of the things I was sensitive to and avoided them. It all really helped though I still battled candida overgrowth as I still do.

Slowly getting rid of my silver amalgams did really help. It gave me a lot more mental clarity. I found I had actually learned Spanish for instance years earlier and had retained it! Plus I found instead of being all thumbs I have a lot of mechanical dexterity and ingenuity.

However overall I was still just treading water. Due to diet and exercise (when I could manage it) and herbs my health was at a low C grade level. I made use of when I felt good and learned to be patient with myself the rest of the time.

Then 3 years ago I found out I needed to have more absorpable B vitamins since despite taking the regular ones I was still low on B-1 which is needed for basic carb and protein absorption. Since then my health sky rocketed. No longer palpitating heart at night or upon easy exertion! Overall no longer burning feet and calves at night. Much less confusion, anxiety and depression. No more colds or anything!

However my joints still hurt and I kept getting the headaches and still had some anxiety. So I was overjoyed to learn just by avoiding all these trace glutens I could get rid of these extra things--and did! However it also made me much more reactive to trace glutens and I ended up getting sick--from a bacterial infection! I had to take 2 courses of antibiotics to get rid of it once I figured out finally what was going on.

Of course the candida came back in force and I have been having to deal with that.

However I am finally getting better from that by taking extra anti candida herbs and avoiding all sugars etc.

I am convinced everyone with celiac should be taking marshmallow root to soothe and heal the lining of their intestines to help speed up healing. This I think is especially true when you have had celiac all your life as I have. I also take fibronylitic enzymes to get rid of the scar tissue or at least keep it down, such as bromelain/papain and either nattokinase, serrapeptidase, or serrapeptase on an empty stomach at night and early first thing in the morning at least an hour before eating.

The herbs I have used since my twenties that cured my kidneys and kept my liver functioning still help me when I get CC'd I have found. The liver and intestinal cleansers dandelion and yellow dock or Oregon grape root are trusted allies that I think others with long term celiac could also find of use. Don't take while you have D however! Cleavers is a lymphatic cleanser--also of great help against inflammation and best taken with either dandelion or milk thistle to ease the passage out of toxicity that your body releases from the cleavers.

If you get D frequently slippery elm is of help to soothe the intestines plus blackberry root, leaves and bark will help cure the D. Peppermint and chamomile will help soothe nervous indigestion. Peppermint oil capsules can also be of great benefit in this regard.

Also taking saunas helps get rid of toxicity and inflammation, as does exercise---of which there is no substitute when of course you are well enough to engage in it. Even a gentle walk is better than nothing and yoga has often saved me from all kinds of body aches.

I recently found that by taking the fibronylitic enzymes along with pro biotics in a higher dose (and as soon as possible when I realize I have been or even just might have been CC'd) I have been able to avert most of the side effects of CC.

So, here I am 58 going on 59--but I now feel I have a new lease on life with a greater handle on what is going on. I look young for my age and have a flexible body--which is common for people with celiac. I don't buy this business of never getting better. Its not true for me and I think with application using herbs and enzymes and pro-biotics along with diet it wouldn't be true for many others.

Bea

[Del]

Hi Ken.....

Thanks for the reply! I've heard of others just plain slow to heal....I remember reading a post from one lady on there that she didn't feel safe leaving the house for 18 months!!! I'm soooo much better than before gluten-free but it sure can be a roller-coaster!!!

Good luck!!

Del

[Del]

Bea.....

Thank you very much for such an informative reply!!!! (I've made notes as I read!!!)

Your childhood, and beyond, sounds a lot like mine.....always sick and rundown with something or other!!!! Let's hope NEVER healing is NOT an option!!!!

Thanks again!!!

Del

[kenlove]

I was quite the opposite and still am. Guess I'm kind of evangelical about having celiac. Should have a button to wear celiac and proud. <G> Since I work with a lot of chefs and lecture at the culinary school here i've taken on trying to educate Hawaii about it. It can only go uphill since there were so few of us here as residents but the hotel chefs are learning and tell me as much as 20% of their guests at any given time have celiac or another serious food allergy. Have got one hotel restaurant to change the menu and add gluten-free and lactose free meals and items marked and isolated on their buffet line.

I still like to go out for dinner but want to go to a place I know is safe and the only way it will happen is if I can make it so.

Dont know where i'm going with this, have been up for 14 hours after our son called to announce grandson #5

take care

Hi Ken.....

Thanks for the reply! I've heard of others just plain slow to heal....I remember reading a post from one lady on there that she didn't feel safe leaving the house for 18 months!!! I'm soooo much better than before gluten-free but it sure can be a roller-coaster!!!

Good luck!!

Del

[Del]

Hi Ken....

Congrats on the new grandson!!!!

And congrats on being an evengelist for Celiac Disease!!!! I owe you a hug, as do lots of us on here!

You did cause me to take a double take when you mention buffets that have things specifically marked....I can't imagine eating in a buffet!!! And I live in Las Vegas, where buffets are everywhere!

Keep up the good work!!!

Del

[Judyin Philly]

HI

I'm 65 and dx'd 3 years ago in June.

Many other food intolerances and other issues.

Lost 60 #'s over these past years. It seemed no matter what I did I couldn't loss weight before this.

I'm gluten-free, sf, cf, df, tapiaco and peanut free now.

The fibro symptoms are better off Hight oxalates and nightshade foods.

I agree that those of us who were not dx'd earlier, have the leaky guts and take ALOT LONGER TO HEAL.

Judy In Philly

[kenlove]

Some of us call Vegas East Hawaii since its the place of choice for most Hawaiians to get away too.

We were married at the Sands 32 years ago. We have a chefs meeting each month at a different location.

One of the web designers here is also celiac so I invited him so that the 50 chefs could see how we went through a buffet line and hear the questions we asked. It was very interesting for them and for us since the two of us focus on different areas. I still cant digest the amount of greens I used to eat. He's been celiac almost 20 years and could pile on the salads and have a burger. Even though he was the first in line he asked the chef grilling at this buffet line to re-clean and scrape the grill. I still wont have it since the CC is a big problem for me.

I load up on olives, some cheese and sprouts since there were few other things I could have. In Hawaii most buffet lines are drenched in soy sauce and they always use food service mayo with noddles in most of the salads. Watching other buffet lines with people using utensils from one thing into the next rather that putting one down and picking up the next is a big problem. I've been to some places where they have only buffet. I usually dont eat if I cant order something special off the menu.

At least you have many new restaurants and well know chefs with operations in LV now. I would bet that most of them and the "gourmet" rooms in the hotels would prepare gluten-free meals with advance notice.

Take care

Hi Ken....

Congrats on the new grandson!!!!

And congrats on being an evengelist for Celiac Disease!!!! I owe you a hug, as do lots of us on here!

You did cause me to take a double take when you mention buffets that have things specifically marked....I can't imagine eating in a buffet!!! And I live in Las Vegas, where buffets are everywhere!

Keep up the good work!!!

Del

[Del]

Hi Judy.....

I also have fibro but it's 85% better since I've been gluten-free! That's a wonderful and unexpected benefit!!!!

Hope you're having a good day!

Del

[Del]

Vegas, East Hawaii? I can't really imagine that but I'll take your word for it!!! LOL We do have a lot of Hawaiians visit here......are you originally from Hawaii?

I have never been "caught" in a situation where I ended up having to eat at a buffet but I carry my own tongs with me just in case!!! We did eat at one of the very best "gourmet" restaurants in Vegas with my in-laws last Sept......I did give two days notice and I got cc'd the worst I've ever been!!! Maybe some of the other "gourmet" restaurants would do better but I'm not game for it! Maybe someday!!

There are a few, very few, restaurants here that have gluten free menus and I've eaten at them with success!!! Now I stick with them!

Hope you're enjoying the holiday!

Del

[kenlove]

Some folks here keep saying they should open a Hawaii theme Hotel/Casino there with profits going back to the state. Doubt it will ever happen though. Originally from Chicago and used to commute to Japan monthly-- Going from here was a lot easier.

Been around close to 30 years here.

To bad about the CC where you went. I'm friends with a lot of well known chefs and I'd say its about 50/50 for those who are really aware and those who think they are. Have a lot of chef friends in Japan who didnt know soy sauce was more what than soy.

We've all got a lot more educating to do..

take care

Vegas, East Hawaii? I can't really imagine that but I'll take your word for it!!! LOL We do have a lot of Hawaiians visit here......are you originally from Hawaii?

I have never been "caught" in a situation where I ended up having to eat at a buffet but I carry my own tongs with me just in case!!! We did eat at one of the very best "gourmet" restaurants in Vegas with my in-laws last Sept......I did give two days notice and I got cc'd the worst I've ever been!!! Maybe some of the other "gourmet" restaurants would do better but I'm not game for it! Maybe someday!!

There are a few, very few, restaurants here that have gluten free menus and I've eaten at them with success!!! Now I stick with them!

Hope you're enjoying the holiday!

Del

[Del]

Now I think I would enjoy a Hawaiian themed casino/hotel but I just can't see Vegas sharing the profits with Hawaii!!!! Actually, although I live in Vegas, I don't like casinos!!! Some great shows are here though!! And although I can't eat at many of them they have a lot of great restaurants.

I really think "one" problem at the gourmet restaurant we ate at is they served my salad with a huge bread stick in the middle of it.....I made them take it back and make me a "new" salad...yes, I explained I couldn't eat that salad because of cc....but, unfortunately, I think they took it back and removed the bread stick and reserved the same salad to me! Now I know if it ever happens again to send it back and order an entirely different salad.....live and learn!!

Del

[ellen123]

I will be 55 tomorrow, so not quite 'old enough'. But there are a few people over 60 here. I am sure they'll reply soon, but it being a Sunday, the board is predictably slow today.

Mind you, I don't know if I will ever be well. I didn't figure out I have celiac disease until I was 52, and I believe I have permanent damage, as well as having developed other problems as a result of being undiagnosed for so long.

First, HAPPY BIRTHDAY, Ursa.

I'm also 55, so haven't quite made the 60 mark yet. I haven't been gluten free for that long, only a few months, but I am still mystified by the sudden onset of symptoms when I cannot for the life of me figure out how I could have gotten glutened. I tend to feel like the many good days I have are lucky, but I've stopped questioning why some days I don't feel well -- it took me years to get damages, so I guess it'll be a long haul reversing that.

[YoloGx]

Hi Ken--again as said, congratulations on the new grandson!! And really getting the word out to other chefs like that is amazing! Its incredible that chefs are discovering 20% of their clients have food allergies, many of them to gluten! as well as dairy. I think in the not too distant future many strides will have been made along these lines in part due to your efforts as well as all the rest of us requesting better service.

By the way, I just was looking at another post and this product Peptizyde was mentioned as an aide to getting CC'd as well as dealing with leaky gut and what is considered a true allergy to gluten rather than celiac. I am thinking of trying it. I can't imagine it would be a substitute to the no gluten diet for me but it could be an aide to healing leaky gut and allergies as well as dealing with CC more successfully. Apparently so far its only been tested for Autistic children, but with great success--even better than avoiding gluten.

I think many of us who have had celiac forever have had leaky gut big time if not currently and thus also have developed food sensitivities galore. If this product could help with that, I will really be smiling since I have so very many things I should not and do not eat. All these sensitivities makes eating out even more difficult than it is for the average celiac. For instance I can't eat eggs, nuts, alcohol, cheese, kefir, milk, vinegar, carrots, sesame, dried fruit, citrus, chocolate etc. etc. plus should also avoid sugars. Eating at home is no problem but eating out is always a challenge--not to mention the challenges of dating (which is yet another story -- but related).

Thus I hope this Peptizyde can help make me less sensitive. I think its worth a try at least -- and it could be worth it for others, especially for those of us with long term celiac. Has anyone else here heard of it?

Bea

[darlindeb25]

I'm 52, 53 in Sept. I am self-diagnosed, been gluten free for 8 yrs in July. My sister was diagnosed that same year in March, and since I had no insurance, and no money, we both decided I should go gluten free too, since I was so sick. When I was still married and had insurance, I had seen doctors, that naturally, never did diagnosed celiac. By the time I went gluten free, I had been actively sick for over 20 yrs.

I too believe, the older you are, the slower you heal, and some of us, I too, wonder if we do completely heal. When I first went gluten free, I felt great. I honestly, was happy to give up gluten, anything to feel better. By age 42, I didn't realize it then, with a diagnosis of carpal tunnel, I already had peripheral neuropathy. After 3 yrs of gluten-free, my other intolerance's started appearing, soy first, then corn, followed by nightshades, then rice, and then cruciferous veggies.

I now realize, I eat to live, so many people live to eat! I do not enjoy food anymore, it's something I have to have now. I actually get upset when I hear people complain about going to events and having nothing to eat. To me, you go to the events for the event, not to eat!! I guess, I have changed my mindset!!!

Congrats on the new grandson Del. I have 8 grandchildren now, the youngest is 8 weeks old. I just went on vacation in Michigan to see them all. They are all wonderful, of course, and the new guy, Trevor, is so precious. He was born 1 month early, and is still just a little over 7#. I think I took over 100 pics of my grandkids!

[Piccolo]

Del

I will be 60 in October. I have been gluten free almost 2 years. It took me about a year and a half before I was healed. So yes it is slow at our age. Because of no diagnosis for too many year I have severe osteoprosis and it is being treated aggressively so I don't have problems in the future. I also have multiple food sensitivities.

Susan

[kenlove]

That whole salad thing is a pain sometimes. I usually scare the waitress that I'll keel over and die on the floor if they simple remove the croutons. <G> ..

A few years ago a radio station tried to get the state to open a LV casino but it never got anywhere. There are no horse races, lottery or any legalized gambling here. Only illegal chicken fights where the looser has to cook dinner <G>

take care

Now I think I would enjoy a Hawaiian themed casino/hotel but I just can't see Vegas sharing the profits with Hawaii!!!! Actually, although I live in Vegas, I don't like casinos!!! Some great shows are here though!! And although I can't eat at many of them they have a lot of great restaurants.

I really think "one" problem at the gourmet restaurant we ate at is they served my salad with a huge bread stick in the middle of it.....I made them take it back and make me a "new" salad...yes, I explained I couldn't eat that salad because of cc....but, unfortunately, I think they took it back and removed the bread stick and reserved the same salad to me! Now I know if it ever happens again to send it back and order an entirely different salad.....live and learn!!

Del

[kenlove]

Hi Bea,

thanks.

Have never heard of Peptizyde but I hope it helps you if you try it.

I think you r right that it will only get easier for us in the future in terms of eating out etc. There are a few paces here I would never go too now but thats their loss. I would like to see this really catch on and at least my island become known as celiac friendly. When I talk with some of the hotel managers and give them some of the numbers I get from the chefs they are amazed. It can really be a competitive edge for resorts that promote gluten-free and allergy awareness dining. I know for me I'll have to cut out dairy one of these days.

I keep resisting since I love cheese but usually sorry if I eat something after 4pm. Had to cut out tomatoes too.

take care

ken

Hi Ken--again as said, congratulations on the new grandson!! And really getting the word out to other chefs like that is amazing! Its incredible that chefs are discovering 20% of their clients have food allergies, many of them to gluten! as well as dairy. I think in the not too distant future many strides will have been made along these lines in part due to your efforts as well as all the rest of us requesting better service.

By the way, I just was looking at another post and this product Peptizyde was mentioned as an aide to getting CC'd as well as dealing with leaky gut and what is considered a true allergy to gluten rather than celiac. I am thinking of trying it. I can't imagine it would be a substitute to the no gluten diet for me but it could be an aide to healing leaky gut and allergies as well as dealing with CC more successfully. Apparently so far its only been tested for Autistic children, but with great success--even better than avoiding gluten.

I think many of us who have had celiac forever have had leaky gut big time if not currently and thus also have developed food sensitivities galore. If this product could help with that, I will really be smiling since I have so very many things I should not and do not eat. All these sensitivities makes eating out even more difficult than it is for the average celiac. For instance I can't eat eggs, nuts, alcohol, cheese, kefir, milk, vinegar, carrots, sesame, dried fruit, citrus, chocolate etc. etc. plus should also avoid sugars. Eating at home is no problem but eating out is always a challenge--not to mention the challenges of dating (which is yet another story -- but related).

Thus I hope this Peptizyde can help make me less sensitive. I think its worth a try at least -- and it could be worth it for others, especially for those of us with long term celiac. Has anyone else here heard of it?

Bea