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Anyone From North Carolina


Debkrause1

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Debkrause1 Newbie

Is anyone here from North Carolina?


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Lisa Mentor

Yes, we have several members in or near Cary, Raleigh, Apex, Durham, Chapel Hill, New Bern, Winston Salem, Murphy, Kitty Hawk and Edenton....from one end to the other. :D

lizard00 Enthusiast

Greetings from Raleighwood!!

  • 1 month later...
Beth in NC Contributor

Just joined and in Raleigh too!

crazymurdock Apprentice

I am hiding out in the Waynesville area- not far from mile marker 20 on Interstate 40.

Ridgewalker Contributor

Up in the Pilot Mountain area here.

  • 2 weeks later...
quillpenz Newbie
Is anyone here from North Carolina?

I am in Chapel Hill. Is there a group? How do I find other celiac sufferers? :P


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Lisa Mentor
I am in Chapel Hill. Is there a group? How do I find other celiac sufferers? :P

Welcome,

I'm on the East Coast. Here is a list of some people who can get you started:

Open Original Shared Link

Beth in NC Contributor
Welcome,

I'm on the East Coast. Here is a list of some people who can get you started:

Open Original Shared Link

I was quite surprised with that list...no one in CENTRAL NC...not a 919 area code in the bunch!

I haven't found a local support group in the Triangle yet...but I haven't look really hard for lack of time. Well, I actually did find something about one online, but it appeared inactive...no events for quite a long time.

Lisa Mentor
I was quite surprised with that list...no one in CENTRAL NC...not a 919 area code in the bunch!

I haven't found a local support group in the Triangle yet...but I haven't look really hard for lack of time. Well, I actually did find something about one online, but it appeared inactive...no events for quite a long time.

Have your tried these folks?:

Open Original Shared Link

Beth in NC Contributor
Have your tried these folks?:

Open Original Shared Link

No, I never saw them. I think perhaps because I wasn't using Sprue in my searches? Thanks!

salomeh7 Newbie

.

quillpenz Newbie

Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

Beth in NC Contributor
Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

Q,

I contacted two of the ladies from that North Raleigh group and there is a meeting at Rex Hospital in Raleigh the third Thursday of each month...they are taking August off but start again in September. 7 p.m. I'm planning to go if at all possible....it's hard to think that far ahead!

crazymurdock Apprentice
Thanks Momma. I am close to the Pittsboro group and I will make contact.

I will be on the east coast this summer. Is there support in and around Southport? What about food coops or places to buy gluten free foods? Chapel Hill has Wellspring and also a wonderful coop grocery in Pittsboro. the Co-op in Pittsobor has wonderful pastas, spaghetti and Macaroni pastas of rice and other things. Thanks. Q :)

I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

tipnpat Newbie

I'm in Asheville, NC!

Ridgewalker Contributor
I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

There are three Food Lions I shop at, and the newest one (a couple years old) has an organic section. They actually do carry a few gluten-free things mixed into that section-- Bob's Red Mill Chocolate Chip Cookie and Brownie mixes, a couple gluten-free Envirokids cereals, Ian's gluten-free Chicken Nuggets, and Vann's Waffles.

I've gotten things there a couple times, but I usually make the trek to Whole Foods in Winston-Salem. (an hour drive for me, too...)

quillpenz Newbie
I do not know if it is so in other FoodLions grocery stores, but a couple of days ago I went into the one in Waynesville and they had a little section dedicated to gluten free foods. I was shocked! Normally I would have to drive 40 miles to go to Earthfare in Asheville to shop for things.

Crazy, I have found that Harris Teeter will special order gluten free items if you give them the brand and the item. I had Harris Teeter order the gluten free steel cut oat meal made by red mill. They already had the flours and several soups. They ordered a half dozen oat meals. I bought two. The manager said that the other three disappeared off the shelves in a day. They are realizing that among their anonymous customers, #'s of us exist. They are becoming more sensitive. Harris Teeter and Lowes have lots of products but not in a section. My next request, when I come back from vacation will be to ask them to group the items. I am almost sure that they will because the numbers of celiacs like us are growing.!! I can't wait to check my local Food Lion.

Some restautants are now printing gluten free menus. If we all keep asking, it will get through. I will try to find a list of the ones that do and I will post them in a couple weeks.

  • 4 weeks later...
GlutenFreeRaleigh Newbie

hey everybody... I am in Raleigh, NC. Diagnosed Celiac in June. I see the calendar posting for a Raleigh Support Group meeting at Rex Hospital on 9/19 at 7pm. anyone plan on attending? Also, I dont want to get dinged for self promotion, but if anyone is interested in a blog about being gluten-free in Raleigh, feel free to check my profile for the link. I am writing about my experiences (grocery stores, restaurant reviews, etc...). Not selling anything just want to help. Have a great day everyone!

Beth in NC Contributor
hey everybody... I am in Raleigh, NC. Diagnosed Celiac in June. I see the calendar posting for a Raleigh Support Group meeting at Rex Hospital on 9/19 at 7pm. anyone plan on attending? Also, I dont want to get dinged for self promotion, but if anyone is interested in a blog about being gluten-free in Raleigh, feel free to check my profile for the link. I am writing about my experiences (grocery stores, restaurant reviews, etc...). Not selling anything just want to help. Have a great day everyone!

I'm planning to be there!

Beth in NC Contributor

Just looked at your blog...we go to the same GI practice! I'm seeing Dr. Parekh though...really like him. How do you feel about yours?

I'm also curious if you actually went to the dieticians? My insurance doesn't cover it, and I also thought I had probably learned most of what she would tell me here, ya know? I hate to pay out of pocket for nothing!

Diagnosed a month later than you! July 16...a day I will never forget.

GlutenFreeRaleigh Newbie

Beth in NC - I really like my doctor and he found my issue quickly. I know it takes most people a long time to get diagnosed but after one meeting with me he found my issue with a quick blood test. I would consider him a good doctor and would definitely refer him to others. start to finish, he found my issue in about 1 month total.

I have been to the dietitian 1 time (had to buy a package of 3 visits). the first visit was really simple stuff that I had already known (like you said). if you have google, you can find it out. i think the next 2 visits will be better though... i plan on writing about this whole experience on my blog of course. with the next 2 visits, the plan on measuring my metabolism to get a resting rate and then let me know what i should be eating. right now (as i heal from being gluten-free) i am always really hungry so i eat constantly. also, i was able to convince my employer (a rather large one in the area) to change our insurance policy to pay for these services!

maybe i will see you at the meeting at Rex.

hope you like my blog and feel free to check back for updates or let me know anything for ideas that could help others.

mstroud Rookie

Hello all! I'm also in Raleigh. My oldest son was diagnosed with Celiac in May so we're just starting to get into the swing of gluten free living. I attended a North Raleigh support group meeting right after my son was dianosed and also a Cel-Kids picnic / meeting a couple weeks ago. There are several members who attend both. I hope to attend the September meeting as well!

I need to check out the glulten free in Raleigh blog! Any pointers or new info that I can get is great!

Hope to see you all at the September meeting! Oh ... and if any of your all have children with Celiac there is supposed to be a Cel-Kids meeting in November.

Margaret

ForevertheChimera Newbie

I'm a NC girl myself, new here, just thought I'd say hi. Though I am on the coast, by Elizabeth City.

Lisa Mentor
I'm a NC girl myself, new here, just thought I'd say hi. Though I am on the coast, by Elizabeth City.

Hello and Welcome!

I'm in Edenton. If I can help you in any way, let me know.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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