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peetred

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peetred Rookie

Hello ladies! Lately I have been putting the puzzels together about my son and his iron deficiency and loose bowel movements. We have begun potty training (he is 24 months), and these issues just have always sorta bothered me but I was told they were normal and would get better.

DS was exclusively breastfed until about 6-7 months of age, and then breastfed with foods until 14 months. We first noticed his iron deficiency around the time he started solid foods. His iron even dropped after starting iron suppliments. He also had colic as a baby. We have never really had very many formed bowel movements from DS. If they are formed, it's usually not much. Some form, but definately nothing like an adults or other children's I have seen (I work in church nursery). We also have noticed some foods not being fully digested. Black specs in his bowel has been the most common and most recent problem. He eats 1-2 bananas a day and yet his bowel is still very loose.

I took DS into the doctor early today for his 2 year appt and to discuss these things with the Doc. The doc also seemed concerned. They took blood to test for anemia and will test for types of anemia or problems if that comes back positive. I also was told to try taking him off all lactose to see if that helps at all, since the doctor said that could be most common. He said the next step is to look to see if he maybe has Celiacs disease. My motherly instinct is telling me this could be it. My son has never really been a milk drinker. We do eat diary products cooked in our food and he used to eat cheese quite alot, but since withholding cheese and certain dairy products I have seen NO improvement in his bowel movements.

I guess I took the first step in joining this forum to try and find some support. It seems many of you have gone or are going through the same things, and I am interesting in hearing your stories or your thoughts on my son. Thanx! :D

Edited to add... My son also suffers from pretty bad Excema.


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dandelionmom Enthusiast

That sounds very similar to my daughter's symptoms (anemia; eczema; bulky, unformed stools; and behavorial issues). Keep in mind, lactose intolerance can be a side effect of celiac disease. You'll want to keep him on gluten until after testing if you're hoping for accurate test results. But if you're content with a dietary response, it is fine to take him off of gluten now. Good luck! I hope you find answers soon!

djdi Newbie
Hello ladies! Lately I have been putting the puzzels together about my son and his iron deficiency and loose bowel movements. We have begun potty training (he is 24 months), and these issues just have always sorta bothered me but I was told they were normal and would get better.

DS was exclusively breastfed until about 6-7 months of age, and then breastfed with foods until 14 months. We first noticed his iron deficiency around the time he started solid foods. His iron even dropped after starting iron suppliments. He also had colic as a baby. We have never really had very many formed bowel movements from DS. If they are formed, it's usually not much. Some form, but definately nothing like an adults or other children's I have seen (I work in church nursery). We also have noticed some foods not being fully digested. Black specs in his bowel has been the most common and most recent problem. He eats 1-2 bananas a day and yet his bowel is still very loose.

I took DS into the doctor early today for his 2 year appt and to discuss these things with the Doc. The doc also seemed concerned. They took blood to test for anemia and will test for types of anemia or problems if that comes back positive. I also was told to try taking him off all lactose to see if that helps at all, since the doctor said that could be most common. He said the next step is to look to see if he maybe has Celiacs disease. My motherly instinct is telling me this could be it. My son has never really been a milk drinker. We do eat diary products cooked in our food and he used to eat cheese quite alot, but since withholding cheese and certain dairy products I have seen NO improvement in his bowel movements.

I guess I took the first step in joining this forum to try and find some support. It seems many of you have gone or are going through the same things, and I am interesting in hearing your stories or your thoughts on my son. Thanx! :D

Edited to add... My son also suffers from pretty bad Excema.

djdi Newbie
Hello ladies! Lately I have been putting the puzzels together about my son and his iron deficiency and loose bowel movements. We have begun potty training (he is 24 months), and these issues just have always sorta bothered me but I was told they were normal and would get better.

DS was exclusively breastfed until about 6-7 months of age, and then breastfed with foods until 14 months. We first noticed his iron deficiency around the time he started solid foods. His iron even dropped after starting iron suppliments. He also had colic as a baby. We have never really had very many formed bowel movements from DS. If they are formed, it's usually not much. Some form, but definately nothing like an adults or other children's I have seen (I work in church nursery). We also have noticed some foods not being fully digested. Black specs in his bowel has been the most common and most recent problem. He eats 1-2 bananas a day and yet his bowel is still very loose.

I took DS into the doctor early today for his 2 year appt and to discuss these things with the Doc. The doc also seemed concerned. They took blood to test for anemia and will test for types of anemia or problems if that comes back positive. I also was told to try taking him off all lactose to see if that helps at all, since the doctor said that could be most common. He said the next step is to look to see if he maybe has Celiacs disease. My motherly instinct is telling me this could be it. My son has never really been a milk drinker. We do eat diary products cooked in our food and he used to eat cheese quite alot, but since withholding cheese and certain dairy products I have seen NO improvement in his bowel movements.

I guess I took the first step in joining this forum to try and find some support. It seems many of you have gone or are going through the same things, and I am interesting in hearing your stories or your thoughts on my son. Thanx! :D

Edited to add... My son also suffers from pretty bad Excema.

djdi Newbie

My daughter is 9 and suffered with colic, constipation, belly aches excema, and weight loss since birth. We went to her doctor countless times only to have all the tests come back "normal". It took until this year to get our answer. She had a biopsy of her small intestine to confirm celiac.

Your sons symptoms sound like he may have celiac but like the person before me said, to get an accurate test result you'll need him back on gluten.

My daughter also has weak tooth enamel and permanent staining on her (permanent) front teeth. Her teeth are also sensitive to cold and hot liquids. This will never go away--her teeth are always going to be weak, stained and give her problems :( . Her dentist first thought it was from too many antibiotics as an infant and toddler. She did not have too many antibiotics (she rarely took them). After learning about celiac, I read in one article that it causes weak tooth enamel and tooth staining. If we could have gotten our diagnosis sooner, maybe her teeth would not be in such bad shape now.

I want to let parents of small children know this so hopefully permanent teeth will be healthy. :D

djdi Newbie

My daughter is 9 and suffered with colic, constipation, belly aches excema, and weight loss since birth. We went to her doctor countless times only to have all the tests come back "normal". It took until this year to get our answer. She had a biopsy of her small intestine to confirm celiac.

Your sons symptoms sound like he may have celiac but like the person before me said, to get an accurate test result you'll need him back on gluten.

My daughter also has weak tooth enamel and permanent staining on her (permanent) front teeth. Her teeth are also sensitive to cold and hot liquids. This will never go away--her teeth are always going to be weak, stained and give her problems :( . Her dentist first thought it was from too many antibiotics as an infant and toddler. She did not have too many antibiotics (she rarely took them). After learning about celiac, I read in one article that it causes weak tooth enamel and tooth staining. If we could have gotten our diagnosis sooner, maybe her teeth would not be in such bad shape now.

I want to let parents of small children know this so hopefully permanent teeth will be healthy. :D

peetred Rookie
That sounds very similar to my daughter's symptoms (anemia; eczema; bulky, unformed stools; and behavorial issues). Keep in mind, lactose intolerance can be a side effect of celiac disease. You'll want to keep him on gluten until after testing if you're hoping for accurate test results. But if you're content with a dietary response, it is fine to take him off of gluten now. Good luck! I hope you find answers soon!

Thanx for the reply. I havn't taken him off Gluten yet, and I don't plan to until we find out more about what is going on. I also forgot to mention that he has a small heart murmur. I read somewhere online that Iron Deficient Anemia (side effect of Celiacs obviously, lol) can cause a small heart murmur. I thought it an interesting connection.


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    • Jy11
      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
    • Scott Adams
      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
    • trents
      Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease or NCGS, it is likely that a gluten-free diet corrects his symptoms and there would be no need to pursue a lower GI and it's nasty prep.  I would also add that the immune system of a child his age is not mature. It's in flux. Because of this, celiac disease testing can yield erratic results. And I would also add that some experts believe that NCGS can be a precursor to the development of celiac disease. If this is true, there would seem to be transition phases. I hope you will keep us posted.
    • Jy11
      Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac.  But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again! 
    • Scott Adams
      As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet.
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