Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Geographic Location

Guest Leidenschaft

By Guest Leidenschaft
in Coping with Celiac Disease

Recommended Posts

blueshift Apprentice
blueshift
Posted

Well, I think I got this right..It should be in my signature showing that I live near Chicago..There are a lot of good stores near me..I am very fortunate for that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
BamBam Community Regular
BamBam
Posted

Hi - I live in Miles City Montana - I updated my signature!!

I have access to a small health food store here in Miles. I go to Billings MT - and they have several. My sister lives in Washington and she goes to Trader Joes for me once in awhile. I also order on the internet - especially - "Manna From Anna" That is the best bread in the world!!

BamBam

Guest sushi
Guest sushi
Posted

Hi all,

I don't order anything from mainland companies because postage costs more than the food. I live in Kaneohe, Hawaii. Aloha

Susette :D

2old4 Rookie
2old4
Posted

Hello- I'm way far east- State of Maine ;) 2old4 Patty

psawyer Proficient
psawyer
Posted

I am in Markham, Ontario, Canada. Markham's southern border abuts the city of Toronto.

More about where I live: Open Original Shared Link

I was diagnosed, as shown in my signature, in 2000, but I know from symptoms that I had celiac disease for a long time before that. I had various gastric symptoms for more than 30 years before diagnosis. They got worse over time, and I am sure that I had full scale celiac disease in 1994. None of the doctors could figure it out. My wife learned about celiac disease from the Internet, and I asked my doctor about it...

The avatar is a recent photo of me.

sweeet-pea Rookie
sweeet-pea
Posted

Just seeing if mine worked!!! ;)

Bonnie Explorer
Bonnie
Posted

Is there NOBODY from my neck of the woods? I live in Durban, South Africa. Needless to say I can't get any of the products you guys discuss!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

That's too bad Bonnie that you can't get some of these products :( Can you get much there that is gluten free?

What about you susette? Can you get much in Hawaii?

citygirl114 Newbie
citygirl114
Posted

Just me.....great idea :D

Guest Viola
Guest Viola
Posted

Hi Penny, Tammy and I will be in your area next month. We have to go to Victoria for a wedding. Tammy (Leidenschaft) will be bridesmaid :D Do you know of a special place in Victoria?

citygirl114 Newbie
citygirl114
Posted

Hi Shirley

Are you looking for sight seeing adventures? I am in Nanaimo but there are so many great places to see. Have you been to Victoria before? Buchart Gardens is beautiful....tour the waterfront lots of neat places....china town is cool......the wax museum if that is your kind of fun.....search out Victoria on the web and you will find an endless amount of information....

One of my favourites is the Craigdarroch castle it is supposed to be haunted....

Open Original Shared Link

Hope this helps

Enjoy your vacation and have a safe trip. :D

Guest Viola
Guest Viola
Posted

Hi Penny, yes, we have done all of those except the castle! Will surely have to put that on my list. Tammy used to live in Victoria, so we have been several times, however at the time Tammy was not a diagnosed Celiac. I was wondering if you have a favoutite place to eat :P I love Nanaimo as well, quite a lovely city. We are hoping to get to Cobble Hill to visit friends, but will have to see how the time goes with all the wedding activities. We will be staying at my hubby's cousins place. Thankfully, they are quite careful with my diet :)

Bonnie Explorer
Bonnie
Posted

Hi Shirley,

I can get Glutano products but its a bit of a mission and so expensive. The crackerbread and biscuits are easily available though. Oh and I found some Envirokidz flakes - divine!

I just read the forum and drool over the donuts and stuff you guys can get!

Yvonne

Guest Viola
Guest Viola
Posted

Yvonne, if you can get the Envirokids flakes, can you also get their rice bars? They come in chocolate, peanut butter and berry, and are quite good. If you don't get them now, perhaps your shop can order them as they are already ordering from the same company. :rolleyes: That would give you something else, I know it isn't donuts and blueberry muffins, but at least it's a nice portable snack that you could stick in your pocket.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,390
    • Most Online (within 30 mins)
      7,748
    Ozz lock
    Newest Member
    Ozz lock
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...