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Newly Diagnosed

Lisa63

By Lisa63
in Coping with Celiac Disease

Recommended Posts

Lisa63 Newbie
Lisa63
Posted

I was suffering stomach pain and vomiting since January. My primary care Dr. put me on phenergan and did an ultra sound and blood work. Of course nothing. He then sent me to a gastroenterologist who did an upper endoscopy with biopsies (three). They came up with Celiac Disease. I have never heard of this before. I could really use some help with this. I am trying to understand the gluten free diet, however I also have type 1 Diabetes. Will I be able to manage both diseases??? I actually just got this news today, so I haven't had a chance to be on a gluten free diet for a full day. The Dr gave me a lidocaine solution to drink 3 times a day for two weeks because my pain is so severe. I also had more blood work done today. If anyone has some advice for me to help me understand this disease and how to cope with it I would appreciate it.

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katebuggie28 Apprentice
katebuggie28
Posted
I was suffering stomach pain and vomiting since January. My primary care Dr. put me on phenergan and did an ultra sound and blood work. Of course nothing. He then sent me to a gastroenterologist who did an upper endoscopy with biopsies (three). They came up with Celiac Disease. I have never heard of this before. I could really use some help with this. I am trying to understand the gluten free diet, however I also have type 1 Diabetes. Will I be able to manage both diseases??? I actually just got this news today, so I haven't had a chance to be on a gluten free diet for a full day. The Dr gave me a lidocaine solution to drink 3 times a day for two weeks because my pain is so severe. I also had more blood work done today. If anyone has some advice for me to help me understand this disease and how to cope with it I would appreciate it.

you shouldn't be having pain if you aren't eating food with gluten. avoid all foods with gluten and you shouldn't have any more stomach pains. good luck.

Lisa Mentor
Lisa
Posted

Welcome Lisa,

Learning the gluten free lifestyle is not a simple task! It's a steep learning curve, but it's doable.

First advise is to keep it simple. Until you learn which companies have gluten disclosure policies, stick to simple foods (ie. meats, fish, rice, potatoes, fruit and fresh veggies). Stay way from processed food. Don't go out and buy a bunch of gluten free processed foods. You won't like then now.

Cooking at home can create some cross contamination issues. Wooden spoons, shared toasters and old cutting blocks can hide gluten. Scratched non-stick pots and pans should be replaced, others a good washing will do.

Dining out is another challenge I would recommends that you wait until you feel better. All of this can be mastered and you can live a life without sacrifice.

This site is the best for information available. Read, read, read.

Welcome to the club.

psawyer Proficient
psawyer
Posted

Yes, you can manage both type 1 diabetes and celiac disease at the same time.

There are a number of members on this board who do just that.

Rule number 1: If there is a conflict between the two diets, the gluten-free option must prevail every time. A bit of sugar or extra carbohydrate will clear you system within hours and will likely have no long-term effects. It is your long-term blood sugar level (HbA1c) that matters, not any instantaneous reading. Gluten will set off an autoimmune reaction that will last much longer and can cause permanent damage. If I ingest any measurable amount of gluten, I have a reaction that lasts as much as two weeks.

As an undiagnosed celiac, you will have been experiencing malabsorption. The food you are eating is literally going in one end and out the other. After you eliminate gluten from your diet, your villi will heal and the malabsorption will go away. You will need to increase your insulin dose steadily and significantly during this recovery period. My daily dose more than doubled during the first six months gluten free, then ebbed back a bit.

Two other members here with both are elye and ~alex~. There are others; I just don't remember at the moment.

Welcome.

Lisa Mentor
Lisa
Posted

oops - double post.

Susanna Newbie
Susanna
Posted

Yes you can manage both disorders--you will require an adjustment period while you learn about the gluten-free diet, but as you do, it gets better--so much easier to manage--it took me about 6 months to learn how to live gluten-free, and since then, it's really not that hard or inconvenient, and WELL worth how much better I feel since I got off gluten. Your pain should go away, but it may take a while--your gut is probably pretty inflamed.

gluten-free newbie tips--now you can eat to treat, and soon feel better. Here are some key coping strategies to get you started.

1. Know that you will grieve your old favorite gluten-filled foods. I actually tear up when I see a brioche sometimes. Grieving is normal, BUT IT IS NOT EASY OR COMFORTABLE. People around you will eat treats you can't have and you will feel sad and isolated. Strategy: stock your car, office, purse, backpack, secret drawer at home with gluten-free treats you can reach for any time you are feeling deprived. This really helped me. I did it with candy bars (Baby Ruth Bars, Snicker Bars) but maybe you'll need to choose something a little more diabetic-friendly, like peanuts or something). Also

ShayFL Enthusiast
ShayFL
Posted

Welcome!

Here is a great site that can help you a lot. You will want to stick with lower glycemic foods. Eat mostly from the left column. Chana Dal isnt listed, but it an excellent gluten-free food for diabetics.

Open Original Shared Link

Omitting any that are (wheat, barley, rye and possibly oats) of course.

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Lisa63 Newbie
Lisa63
Posted
  • Author

Thank you so much everybody (especially Susanna) for all of your information. It has helped me a great deal. I am slowly learning everday about a gluten free diet. My daughter has been a great deal of help to me also. Again, I want to thank you all again. Lisa

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    • trents
      I think a UTI caused by Aspirin, made me a Celiac

      By trents · Posted

      Welcome to the forum, @jimmydee! Celiac disease is an autoimmune disorder, meaning the consumption of gluten triggers a response by the immune system that causes the body to attack it's own tissue. Celiac disease has a genetic base that requires some kind of trigger for the genes to be turned on. We know that there are two primary genes responsible for providing the potential to develop celiac disease and we know that about 40% of the population carries one or both of these genes. However, only about 1% of the population actually develops celiac disease. So, that tells us that something more than just having the genes is necessary in order to develop celiac disease. Something must trigger those genes to wake up and produce the active disease. It's that "something" that we are struggling to understand and that is somewhat of a mystery. But there is a growing body of evidence pointing to the culprit being a disruption of the proper balance of microorganisms in the gut. Apparently, the microorganisms that live in our intestines produce chemicals that regulate the size of the openings in the mucous lining of our small bowel. A disruption in the healthy balance of this microorganic community causes an increase in the size of the openings in the mucous lining. This in turn allows protein fragments from the food we eat that are larger than normal to invade the mucous lining where they are detected as threats by the immune system. This is what is happening with gluten for those with celiac disease. The attack in the mucous lining of the small bowel by the immune system on these incompletely broken down gluten components causes inflammation and, over time, as we continue to consume gluten, it damages the mucosal lining of the small bowel which results in the loss of efficiency of nutrient absorption. This mucosal lining is made up of millions of tiny finger like projections that create an enormous surface area for the absorption of nutrients when healthy. The "wearing down" of these millions of finger-like projections due to celiac inflammation greatly reduces the surface area and thus the ability to absorb nutrients. This in turn typically results in numerous health issues that have a nutrient deficiency base. But the answer to the question of why there seems to be an epidemic of celiac disease in recent years may not be simple. It may have many facets. First, we don't know how much of this epidemic is real and how much is apparent. That is, how much of what we perceive of as a dramatic increase in the incidence of celiac disease is simply due to greater awareness and better detection methods? Celiac disease is not new. There is evidence from ancient writings that people suffered from it back then but they did not have a name for it. And it wasn't until WW2 that gluten was identified as the cause of celiac disease. Current thinking on what is causing imbalance in gut biology has put forth a number of causes including overuse of antibiotics and pesticides, environmental toxins, fluoridation of drinking water, preoccupation with hygiene and sanitation, and the western diet. https://www.celiac.com/celiac-disease/theories-on-the-growing-prevalence-of-celiac-disease-and-gluten-sensitivity-over-the-last-half-century-video-r6716/?tab=comments#comment-25345 All this to say that I doubt your UTI or the low dose aspirin had anything to do with the onset of your celiac disease. It was probably just coincidence unless the UTI was the stress trigger that activated the celiac potential genes. The onset of celiac disease an happen at any stage of life and many people report it following a period of illness. But what is interesting about your low dose aspirin theory is that aspirin is in a class of medications known as NSAIDs (Non Steroidal Anti Inflammatory Drugs). Scientific studies have shown that long term use of NSAIDs can damage the villous lining of the small bowel in the same way as celiac disease.  The other thing I wish to point out is that unless you have actual testing done for celiac disease, you can't be sure if you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms, the difference being that NCGS doesn't damage the lining of the small bowel. There is no test for NCGS, celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. The antidote for both is a gluten free diet.
    • julie falco
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      By julie falco · Posted

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    • jimmydee
      I think a UTI caused by Aspirin, made me a Celiac

      By jimmydee · Posted

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    • knitty kitty
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      By knitty kitty · Posted

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    • knitty kitty
      Dangerously underweight, Perfect gluten free and insomnia

      By knitty kitty · Posted

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