Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A New Doctor In Ct


KathleenBP

Recommended Posts

KathleenBP Newbie

It has been suggested by several members that I look for a new doctor to get a proper diagnosis. I recently had an endoscopy done and tested positve for celiac sprues; however, bloodwork was negative. My current doctor says its only a gluten allergy and not celiac. From what I have read and what members have written, I believe it is celiac. I am looking for a second opinion but can't seem to locate anyone who might specialize in this area in the state of CT. Does anyone have any names?

Thanks for your help.

Kathleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Kathleen,

I don't know of any Doctors in your area, but I will post a local link to support groups in your area.

Open Original Shared Link

If either blood work or through endo/biopsy you test positive for Celiac...that is a diagnosis. Both tests can very inaccurate. You do have Celiac. Do you have your pathology report back from your endoscopy? That should tell you the findings and diagnosis/comments.

Your best source of information is right here on Celiac.com.

Welcome

  • 3 weeks later...
Darkfox021 Newbie

Hi Kathleen, any luck with finding a doctor? My doctor gave me the names of three GI doctors who he says are good, but I would prefer to go directly to a doctor who has specific experience with Celiac disease (also, I wasn't happy with another specialist he's sent me to). I'm not sure how to find that information out without an office visit.

If you haven't had success, yet, I can give you the names of the one's I have (all three are in the same office in Trumbull).

JoeB Apprentice

I've used the same gastroenterlogist in the Bridgeport area for the last 15 years. If you contact me directly, I can give you his name and number.

john smith Newbie

I went to a urgent care for treatment of the injury. I told the doctor I had experienced pain and inflamation in my leg while doing a particular move on a climbing road. The Doctor had a ct taken of the shoulder. The ct doctor had the ct machine set to high so the 1st ct was to over exsposed, the 2nd ct was still a little over exposed but they used it to evaluate the injury.

____________________________________________

John smith

Open Original Shared Link

  • 1 year later...
pcgracie Newbie

Would you be able to share the names of the doctors you're seeing in Trumbull? I'm newly diagnosed and live in the area. Thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,255
    • Most Online (within 30 mins)
      7,748

    Loop
    Newest Member
    Loop
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @lsky! In Canada I believe your healthcare system is totally socialized so I doubt if you have the option of making direct appointments with specialists. In the U.S. it is becoming more and more that way as most people here now are covered by some government managed healthcare network and almost all providers and specialists are part of those networks. Here and there you will find independent providers that take private pay only but it is the exception. Both in Canada and in the U.S. I believe there is a concerted effort to always keep the PCP in the loop.
    • lsky
      I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming appointment? i'm not sure if it's different in canada or not.
    • trents
      Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
    • Wrensmith
      With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to keep doing it.  Sometimes you just need to figure out the science of it as you go along. Have you been tested?  That’s how I found out I had celiac disease, was after my daughter was diagnosed, and the recommendation given to me was that all of her first-degree relations should be tested as well. I came back with a weak positive when I was on a largely, though not entirely, gluten-free diet (cooking for my newly diagnosed child). good luck with everything.
    • Juliana82
      Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
×
×
  • Create New...