Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kansas City, Mo


mcs1984

Recommended Posts

mcs1984 Apprentice

I am looking for a group that i can go to but also bring my son along. My husband works evenings and i take him every where. Neither one of us has been told that we have Celiacs yet. Our 4 year old is getting ready to have the scope done on the 20th. But after talking with his doc and us we sitting down and talking we are still going off of gluten and i think i am going to need some support. Anyways hope someone can help. thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gluten-Free Guy Newbie
I am looking for a group that i can go to but also bring my son along. My husband works evenings and i take him every where. Neither one of us has been told that we have Celiacs yet. Our 4 year old is getting ready to have the scope done on the 20th. But after talking with his doc and us we sitting down and talking we are still going off of gluten and i think i am going to need some support. Anyways hope someone can help. thanks

A support group for the Kansas City area meets on the second Sunday of each month at 2:00 p.m. at the Community Center of St. Joseph's Medical Center at I-435 and State Line. This is a very active group with a lot of knowledgable, experienced members who will welcome you and answer any question you have.

A word of caution: You should not go off gluten until your doctor has had a chance to conduct the tests. Going off gluten will cause the test results to be invalid.

mcs1984 Apprentice

thank you for the info, my son is getting tested friday. We were going to have it done over 6 weeks ago and he got sick so anyways its been a long 3 months and cant wait to get him test and get off of it all. Thank again for the info.

  • 1 month later...
MackenzieAxtongslx Newbie

Free guy is right. You can find a support group for the Kansas City area.You can meet on the second Sunday of each month at 2:00 p.m. at the Community Center of St. Joseph's Medical Center.

.............................

Chamika

Open Original Shared Link

jayhawkmom Enthusiast

I am a member of said Kansas City group....my daughter is also part of the Cel-Kids spinoff group. We really enjoy it, and have had a lot of fun with it. We've also learned a TON.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,596
    • Most Online (within 30 mins)
      7,748

    Zeynab
    Newest Member
    Zeynab
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @marinke! "Type 1a diabetes (DM1) is associated with an increased risk of celiac disease (celiac disease) (1)." from: https://diabetesjournals.org/care/article/35/10/2083/38503/IgA-Anti-transglutaminase-Autoantibodies-at-Type-1 "The prevalence of celiac disease (celiac disease) in children with type 1 diabetes (T1D) is 5.1%, and it is often asymptomatic (1)." from: https://diabetesjournals.org/care/article/48/2/e13/157637/Diagnostic-Outcomes-of-Elevated-Transglutaminase So, this is 5x the rate found in the general population.
    • Mari
      Hi James47, You are less than 2 years into your recovery from Celiacs.  Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating.    For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of the damage caused by the autoimmune reaction in your small intestine. 
    • marinke
      My daughter (4 years old) has type 1 diabetes since she was 1. Therefore, every year a screening is done. We live in the Netherlands. Every year the screening was fine. This year here ttg is positive, 14, >7 is positive. IGA was in range. Could the diabetes cause this positive result? Or the fact that she was sick the weeks before the brood test?
    • Baz
      @DayaInTheSun what were the shortness of breath symptoms for you ? And did they come on all of a sudden or was it a gradual increase in said symptoms?
    • DayaInTheSun
      I had shortness of breath so much so I went to a lung doctor. I told him I get short of breath wirh certain foods, he said “Food doesn’t affect hour breathing.” I told him maybe it was an allergy  he cut me off then said “Food allergies don’t cause shortness of breathe.” I beg to differ as soon as I figured out what foods were causing my shortness of breath it went away. I also never saw him again as he was rude, condescending? And refuse to listen to me kept dismissing my problems as “you’re young.” I cut out Soy, dairy, sesame, eggs, and of course gluten. I stopped being short of breath, going on a two years now. No thanks to the doctor I saw. Figured it out on my own.   
×
×
  • Create New...