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YNGRL

By YNGRL
in Board/Forum Technical Help

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YNGRL Newbie
YNGRL
Posted

So I dont have celiac.. its good news. I just have stress or something. Anyhow, I need to close my account and I Have not been able to find how to do this on the website.

THanks!

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psawyer Proficient
psawyer
Posted

Most people just leave their accounts dormant. There are hundreds like that. If you want the user to actually be deleted, send a personal message to that effect to admin. Deleting the account will not delete your posts, they will remain in any case.

YNGRL Newbie
YNGRL
Posted
  • Author
Most people just leave their accounts dormant. There are hundreds like that. If you want the user to actually be deleted, send a personal message to that effect to admin. Deleting the account will not delete your posts, they will remain in any case.

Do you have an admin email address?

lizard00 Enthusiast
lizard00
Posted

Go into your inbox (there is a link on the left side of the screen; should say "New Messages") and click on Compose New Message. Under recipient's name enter "Admin" and send him your request.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

You don't need to close your account, you know. You never know when you might want to post to ask for info for a friend or relative, or you might want to check back here if your symptoms don't clear up when you are unstressed! You would be amazed how many of us were told we didn't have celiac, and how many of us had tests that were misread or were even given the WRONG tests! And there are a shocking amount of people here who were referred to psychiatrists or told that it was all in their heads.

I'm not saying that you have celiac, or even gluten intolerance. I just want you to keep your eyes open, given how many of us were given dangerously wrong information by our doctors, whom we trusted.

Did you know that in 2006, University of Chicago published a study that said that it took an average of 11 years to be correctly diagnosed with celiac in this country? That means 11 years of doctors giving meds and invasive tests, when all that was needed was a simple diet change.

Now, hopefully, your doctor is correct, and you can happily and healthfully eat wheat with no problems forever and ever.

But if not, we'll still be here for you, you know. :)

Happy de-stressing!

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    • Lynnard
      Waiting on biopsy results but wanted opinion on bloodwork

      By Lynnard · Posted

      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
    • trents
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      By trents · Posted

      Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.  I believe there is an evolution toward using the term "gluten intolerance" to refer to celiac disease and "gluten sensitive" to refer to NCGS. I say that because the words "gluten sensitivity" are actually found in the official medical term for the non celiac medical disorder involving gluten. Does that make sense? The difference between celiac disease and NCGS is that celiac disease causes inflammation in the small bowel lining and (over time) does damage to it so that it becomes inefficient in absorbing nutrients from what we eat. This is the area of the intestinal track where all of our nutrients are absorbed. Of course, this can lead to any number of other medical problems. NCGS, on the other hand, does not cause inflammation or damage to the lining of the small bowel and therefore does not produce the antibodies that celiac disease antibody tests look for. Neither will NCGS, therefore, produce a positive biopsy result. NCGS and celiac disease, however share many of the same symptoms in the area of GI distress and NCGS is 10x more common than celiac disease. There is, at the present time, no defining test for NCGS so an NCGS diagnosis is arrived at by first eliminating celiac disease for which we do have tests for. Having said that, some experts believe that NCGS can be a precursor to celiac disease.  Yes, you are correct in stating that both conditions require a gluten free diet.  So, in the absence of official testing for celiac disease (and official testing done under the proper conditions) a person who is experiencing distress when consuming gluten cannot be certain whether they are dealing with celiac disease or NCGS. Not to have an official diagnosis of celiac disease while actually having the condition makes it difficult for some folks to stay on the gluten free bandwagon. It's just the psychology of the situation and wanting to rationalize away a very inconvenient and socially isolating medical condition.
    • Lynnard
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      By Lynnard · Posted

      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
    • trents
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      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
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