Celiac And Dermatitis Herpetiformis

[GinaLuv]

Four weeks ago I had and endoscopy. When my doctor got the biopsy back he ordered a Celiac Panel which came back negative. I was convinced I had celiac disease. I have EVERY symptom there is including what I think is derma-. titis herpetiformis on my face and stomach. Now I can't get an appointment to see my doctor for almost 2 months! Why would he order the blood test if the Endoscopy showed something that pointed towards celiac??? Can't the Endoscopy confirm the disease?

[ShayFL]

Yes it did. I would go gluten-free if I were you. With a pos. endo and a pos. response to the diet. You should be able to get a Dx.

[nora-n]

Yes, the biopsy is the gold standard.

There are celiacs with negative blood tests, and you are one if the biopsy was positive , or your symptoms disappear off gluten.

They often do another blood test after a year, and yearly, to see if the antibodies disappear and to see if you are compliant and off gluten.

If you do not have those antibodies, obviously thye cannot use them in a year to see how you are doing. They mightant to do another biopsy in a year or so to see if the mucosa in the intestines has normalized.

There are a few celiacs that do not get better, and those are more prone to a certain cancer in the intestines, that is why they need to follow up celiacs. On the diet the risks to get this cancer gets much lower (then the risk is just like for normal people)

Wwhat exactly did the biopsy report say?

nora