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Completely Healed

holdthegluten

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holdthegluten Rising Star
holdthegluten
Posted

I dont understand why..........if i am completely healed and everything is normal (endoscopy), then why do i still have food sensitivities and dont feel back to normal. I still get the stiff neck and burning eyes when i eat certain foods (I still cant figure out what foods cause this). The fatigue and bloating still occurs frequently...........WHY!

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RiceGuy Collaborator
RiceGuy
Posted

My first thought is that since damage to the villi is often spotty, and frequently missed, I wouldn't be surprised if there is still some recovery left to do. Therefore, malabsorption seem likely to be causing some of what you're describing. Also, food sensitivities aren't always expected to completely disappear on a gluten-free diet. If a particular food gives you problems, don't eat it. Figuring that can be tricky, but the typical advice is to start a food journal, and look for patterns in how you feel in relation to what you've eaten. The correlation may only be seen over the course of several days. It just depends on how long it takes for the symptoms to manifest.

Other than that, I'd recommend taking a few supplements, if you aren't already. For fatigue and bloating, try magnesium, a sublingual methylcobalamin (vitamin B12), zinc, vitamin E, vitamin C, vitamin D3, and a decent B-complex. Also avoid sugar and caffeine.

Burning eyes is something reported in related to candida overgrowth. Have you looked into that?

purple Community Regular
purple
Posted

Info to help with the supplements: go to swansonvitamins.com. Cheap compared to health food stores. 5 bucks for shipping in less than a week. Ask them to send you a catalog 1-800-437-4148

Ex: super stress complex B vitamins 100caps $4.79 and vitamin C bioflavonoid complex 250 caps $6.99

aikiducky Apprentice
aikiducky
Posted

You know, I'm coming close to four years gluten free and I'm FINALLY feeling really really healthy. Last year was already good but this year I can clearly notice that I have more energy.

Even so, I have a list of foods that I still avoid, and I'm not expecting to introduce any of them any time soon, since I'm feeling so well right now.

One and a half years feels like a long time I know but you might just still need a year or two to really recover. I hope you're feeling at least some improvement though?

Pauliina

holdthegluten Rising Star
holdthegluten
Posted
  • Author
My first thought is that since damage to the villi is often spotty, and frequently missed, I wouldn't be surprised if there is still some recovery left to do. Therefore, malabsorption seem likely to be causing some of what you're describing. Also, food sensitivities aren't always expected to completely disappear on a gluten-free diet. If a particular food gives you problems, don't eat it. Figuring that can be tricky, but the typical advice is to start a food journal, and look for patterns in how you feel in relation to what you've eaten. The correlation may only be seen over the course of several days. It just depends on how long it takes for the symptoms to manifest.

Other than that, I'd recommend taking a few supplements, if you aren't already. For fatigue and bloating, try magnesium, a sublingual methylcobalamin (vitamin B12), zinc, vitamin E, vitamin C, vitamin D3, and a decent B-complex. Also avoid sugar and caffeine.

Burning eyes is something reported in related to candida overgrowth. Have you looked into that?

I have been tested twice through stool and blood and results were negative for candida

darlindeb25 Collaborator
darlindeb25
Posted

You may always have food sensitivities, that may never go away. When you stop eating the foods that are causing the problem, that's the reason why you do start to feel better, reintorducing them to your diet, will cause you to feel bad again, as a rule. Sometimes, you can eat some of those foods again, but not always.

Rachel--24 Collaborator
Rachel--24
Posted

Based on symptoms and everything you've mentioned in previous threads I'd guess that you have Leaky Gut. I also get stiff neck/burning eyes....as far as I know those two symptoms are common with regards to toxicity.

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AndrewNYC Explorer
AndrewNYC
Posted

I've said it before and I'll say it again: try an elemental diet formula for a couple weeks. No other foods. Tolerex or Vivonex are the hotness. They will give your stomach some time to recover. If you keep eating regular food and trying different elimination diets you most likely will never get to the heart of the problem.

holdthegluten Rising Star
holdthegluten
Posted
  • Author
Based on symptoms and everything you've mentioned in previous threads I'd guess that you have Leaky Gut. I also get stiff neck/burning eyes....as far as I know those two symptoms are common with regards to toxicity.

How do i get rid of leaky gut?

does Gastritis cause leaky gut?

RiceGuy Collaborator
RiceGuy
Posted
How do i get rid of leaky gut?

Best I know is good diet and time. Avoid sugar, alcohol, caffeine, artificial stuff. Simple foods which are easier to digest would probably work better, while things like meat and soy might sit in the gut too long. Beans, nut, and peanut butter might not work well either. I know whenever I ate meat, it just made me feel awful. Intestinal yeast seem to love poor environments and leaky gut, so do be aware that it can creep up on you. I don't know how accurate blood and stool tests are for it, but apparently the Open Original Shared Link is highly regarded.

Fiber is supposed to help pull toxins from the body. I've read about apple pectin being good for this sort of thing too. Something tells me coconut oil would be a good idea as well.

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    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

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    • Scott Adams
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