Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Only When I Over Indulge?

Krystens mummy

Recommended Posts

Krystens mummy Enthusiast
Krystens mummy
Posted

Ok so heres the thing. I have celiac disease in the family and have started displaying symptoms.

I have noticed that I only get these symptoms when I over indulge in gluten foods eg eat 2 pieces of bread at breakfast, pasts for lunch and a couple of beers etc in one day. Can I still have celiac or just intollerance to too much. My daughter is very gluten sensitive at 17 months and cant tollerate any at all. I had neg blood tests when symptoms first started but I did them fro my daughters benefit than mine cos I didn't think that my probs were related then.

When I do get sick I get sick for 3 to 5 days and this is usually every couple of weeks. I get better cos I stop eating. I get all the normal gastro symptoms minus diarrhoea plus constipation but also back pain.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
Daura Damm

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

RiceGuy Collaborator
RiceGuy
Posted

Well, from what I've read, about 30% of celiacs display no outward symptoms at all. Since there seems to be a "trigger" to Celiac, after which the damage and symptoms begin to manifest, I have little doubt that you will eventually test positive, but by then there'll be quite a bit more damage than there is now.

Tim-n-VA Contributor
Tim-n-VA
Posted

The caveat first: we are all different and celiac varies greatly from individual to individual.

I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two or more wheat-beers (I was in Germany at the time), etc.

The bad part was that I didn't have enough symptoms to make me stop eating wheat (or even suspect it) but I now have cirrhosis. Despite my citing beer above, I rarely drank any alcohol more frequently than once a month and most of the time it was oinly one beer (not two or more) so my liver damage is not likely alcohol related.

ShayFL Enthusiast
ShayFL
Posted

Hopefully your GI appt. will go well and you can learn more. It sounds like the light bulbs are already going off.

Kaycee Collaborator
Kaycee
Posted

The heading to your thread caught my eye. When you mentioned over-indulging, I thought you meant the practise of eating way too much, something which I can do with such ease. But you were only referring to only eating excess in the amount of gluten.

Well I didn't really have what I considered symptoms. Okay I had a bit of diarhoea, that didn't really impact in my life, as it only happened in the mornings and that was that for the day. But I did notice over the last few years before going gluten free, that everytime I overate, as in enjoyed morning tea at work, went out for a good hearty meal, or just eating more than I usually ate. I would be sick that night with chronic diahrroea. I'm pretty sure those days I ate more gluten, but I was just thinking I had overloaded my system with too much food and it couldn't cope. It was that symptom that made me stop and think, something is not right, and maybe the diarrhoea is not normal. So I went looking for answers. no one in my immediate family had coeliac, but I'd come to the conclusion I had an intolerance to gluten, or to some other food I'd been eating everyday.

When I went gluten free after being diagnosed with coeliac those horrible days of over over indulging dissappeared, and so did the diarrhoea. I can still over-indulge in food, but I don't get the stomach issues now.

Like the previous poster said, we are all different and have different symptons.

Cathy

tom Contributor
tom
Posted
I have noticed that I only get these symptoms when I over indulge in gluten foods ...

I may be taking this wrong, but it hints to me at the thought that having only smaller amounts will be ok.

That is false, for a celiac.

I was under this impression for a few years - that there was some amount which I could have, remain asymptomatic and not create problems.

It ended up ruining 7-8 yrs of my life & I'm still recovering from the complications.

If you have celiac, be 100% gluten-free or HIGHLY regret it later.

Good luck. :)

mftnchn Explorer
mftnchn
Posted

I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Lakefront Brewery

Celiac.com Sponsor (A8-M):
Daura Damm

lizard00 Enthusiast
lizard00
Posted
I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

I would agree with that. My symptoms would always worsen at my grandma's house. She worked in a bakery and when we were there, we always "overindulged". At that point I was clueless to Celiac, and I was eating lasagne, cereal, sandwiches and all the desert bites in between and after every meal. (cause we were at grandma's!) By Saturday afternoon, and we always arrived Friday night, I was down with a throbbing headache and nausea. And I do mean throbbing. It was because I was eating WAAAAYYY more gluten than I was used to, and my body simply couldn't cope with all the extra, it was barely handling the little bits that I normally ate. But I only see that looking back... so, it's good that you see that now. Definitely get checked out before you really get sick.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I don't think it matters whether you have celiac or "just" gluten intolerance.

Either way, your immune system is likely being triggered to attack your intestines, Even if you only have "small amounts of gluten," you risk further damage in the form of rheumatoid arthritis, fibromyalgia, lupus, MS, and even lymphoma.

If eating gluten is so near and dear to your heart that you think it's worth risking all that (not to mention seeing your daughter grow up), then I guess it's up to you.

Remember, it only takes 1/16th of a piece of bread to cause MEASURABLE damage to the villi, even in the absence of symptoms.

Krystens mummy Enthusiast
Krystens mummy
Posted
  • Author

Thanks for your advice! I am going to see the GI on wednesday hopefully he/she can help I have decided that I want to go gluten free anyway even if the tests are negative. We do it for my daughter anyway so Im used to it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      130,546
    • Most Online (within 30 mins)
      7,748
    bethlama
    Newest Member
    bethlama
    Joined
  • Celiac.com Sponsor (A20):
    Lakefront Brewery

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse


  • Upcoming Events

  • Posts

    • trents
      Is "Shield" skincare products gluten-free?

      By trents · Posted

      I see nothing in the ingredient list that concerns me from a gluten intolerant perspective. Historically, how has your 13 yr. old been treated for his acne? When I was a teenager I had acne issues (this was in the 1960s) and was put on a long term regimin of tetracycline. It helped the acne but I am convinced it altered my gut microbiome and contributed to the development of celiac disease.
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Hello. My 13 YO son has celiac disease and terrible acne. Our older son, not celiac disease is using a product that is new on the mkt within the last few years called SHIELD. Body wash, cream and patches. Wonderful results. I contacted the Co and they were very helpful but definitely suggested we contact our G.I. specialist, I have done so but I have not heard back from her. Below is the correspondence with the company and I was wondering if anyone here could please tell me whether or not these ingredients are safe.     Hi Lynn, thank you for reaching out and for your interest in our products! To ensure transparency, here is the full list of ingredients used in our products. While we do not add gluten-containing ingredients, we always recommend reviewing the list below if you have sensitivities or allergies. Moisturizer Ingredients: Aloe Barbadensis Leaf Juice Squalane Hydroxyethyl Acrylate/Sodium Acryloyldimethyl Taurate Copolymer Niacinamide Chamomilla Recutita (Matricaria) Flower Extract Glycerin Butyrospermum Parkii (Shea) Oil Tetrahexyldecyl Ascorbate (Vitamin C) Phenoxyethanol Ethylhexylglycerine Face Wash Ingredients: Active: 4.0% Benzoyl Peroxide (Curoxyl-42) Inactive: Water Sodium C14-16 Alpha Olefin Sulfonate Propylene Glycol Cocamidopropyl Hydroxysultaine Glycerin Ceramide NP Ceramide AP Ceramide EOP Phytosphingosine Cholesterol Sodium Lauroyl Lactylate Carbomer Xanthan Gum Phenoxyethanol Niacinamide Sodium Hyaluronate Propanediol Glycolic Acid Tetrasodium EDTA Ethylhexylglycerin Pimple Patches: Hydrocolloid Body Wash Ingredients: Active: 4.0% Benzoyl Peroxide Inactive: Water Sodium C14-16 Olefin Sulfonate Cocamidopropyl Hydroxysultaine Propylene Glycol Sodium Hyaluronate Niacinamide Ceramide NP Ceramide AP Ceramide EOP Phytosphingosine Sodium Lauroyl Lactylate Propanediol Glycolic Acid Tetrasodium EDTA Sodium Hydroxide Carbomer Acrylates Copolymer Xanthan Gum Phenoxyethanol Ethylhexylglycerin If you have a gluten allergy, we recommend consulting your healthcare provider before use, just to be safe. Let me know if you have any other questions, I’m happy to help!
    • kopiq
      almost a year in recovery - so many questions about to give up

      By kopiq · Posted

      so im short a year of diagnosis this october. As soon as I was diagnosed i quit all gluten and relied on buckwheat and potatoes at times as my carb sources. Due to a power outage i could not eat buckwheat for a couple days, i felt better but when power was back on i ate buckwheat and felt sick, i soon cut it out of my diet.long story short I have developed psoriasis and cramping in my calves and feet, brutal cramping at that. I cut out rice and potatoes and corn and eggs as consuming them would make my psoriasis extremely itchy. I have only ate sweet poatoes and plantins for two months straight 5 to 6 times a day with no symptoms other than slow digestion of small intestine. I was also diagnosed with raynauds phenomenon recently. that's three auto immune diseases that i know about, I have constant belching from mouth even just eating chicken, Im so sick of sweet potatoes and plantains, i have no idea what to eat anymore.  the major trigger I have had with celiac is my nervous system, I was numb to everything and as I heal i have more sensation. I got sick with flu and covid during this time and I felt physically and mentally fine even though my wife was vomiting, i could feel the body aches and chills but was numb to feeling sick to my stomach. its like celiac masked the sensation which is scary cause if I was really sick with something serious I would not know it. Im at the point that im eating rice and potatoes even though it flares my psoriasis and causing inflammation and this numbness in my stomach genital area as my digestion get slower. I think im lacking enzymes but dont know for sure my dr has done so many blood tests for liver, pancreas, gall bladder, rheumatoid arthritis and thyroid all which she says comes back fine. I dont know what to do anymore, am i hurting my small intestine (villi) by eating eggs, rice and corn? they do flare my itch psoriasis and cause inflammation to the point of numbness in lower stomach genital area,  but is it affecting my villi? i need carbs, but all these grains effect my nervous system, I have so much gas from eating it affect my erections and sensations during sex, i havent had sexual arousal in almost a year, i only feel strong pressure and when it is over the pressure is gone and i have a lot of flatulence. its the strangest thing like something needs to relax down there and it relives pressure and gas. need help, my dr dosent know what to do. do i need immune suppressants?   thanks.
    • Scott Adams
      Need GI doctor referral

      By Scott Adams · Posted

      While I don’t have a specific personal recommendation, there are several ways to find a skilled GI doctor in Tucson who specializes in celiac disease. Check the Celiac Disease Foundation’s Healthcare Practitioner Directory for listed providers in Arizona: https://celiac.org/about-celiac-disease/find-a-healthcare-practitioner/ Also, local healthcare systems like Banner-University Medicine or El Rio Health may have gastroenterologists with celiac expertise—consider asking for referrals to doctors familiar with gluten-related disorders. When contacting potential doctors, ask about their experience with celiac diagnosis, follow-up protocols, and whether they work with dietitians.
    • Trina Zee
      Need GI doctor referral

      By Trina Zee · Posted

      Several years ago I attended a celiac group meeting in Tucson and I was referred to a doctor who was serving as the Celiac Group's resource for medical info.  He was very helpful to my situation (Dr Lindsey Pearson) but I understand that he's no longer in Tucson.  Can you tell me what doctor is working with your group now as I'm once again looking for a doctor.  Dr Pearson was a gi doc, fyi.
×
×
  • Create New...