Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Epstein Barr Virus/adrenal Fatiguee


Joni63

Recommended Posts

Joni63 Collaborator

Hi,

I'm seeking information on these 2 problems. Just found out my EBV from when I had mononucleosis at age 14 is reactivated. ND said my numbers are way above the normal range. She doubled some of my supplements and told me it was the cause of my severe fatigue.

She also said one of my hormones is causing my adrenal glands to secrete more than it should. It's 2 points above normal. Is this considered adrenal fatigue? She told me to get a supplement for it which I cannot find. Anyone else taking a good supplement for AF? Has it helped with sleep problems?

If any of you has information about either of these subjects, please feel free to post it here.

Thanks,

Joni


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

fedora Enthusiast

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

loraleena Contributor

I take Isocort for my adrenals. It is a natural product. You can find it online.

Joni63 Collaborator
A good friend of mine's daughter is suffering from this too. She had mono when she was 5. This last year, she was diagnosed with crohn's disease, when they finally got the crohn's under control, then her epstein barr decided to flare. From what her doctor said, this happened because of the stress on her body from the crohn's disease, which makes perfect sense, to us. Her doctor says the only thing you can do is get as much rest as you can and hope for the best. It can take months for the fatigue to go away. This girl is a senior, with graduation in just a week or so. She has been dealing with this for about 4 months now.

I think the best advice is to get as much rest as you can, try not to overdo. I too, worry about this. I had mono at 14, and the eptein barr virus stays doormant in your system for the rest of your life, and can flare at any time, it will always show up in your bloodwork. My number stays around 9, hers was around 1000.

What happened to your friend sounds similar to what I think happened to me. I was dx'd with Celiac and did great for a few months then felt horrible, achy legs, waking up feeling hungover, can't sleep and completely fatigued within an hour of waking up. I hope your friends daughter can get through her graduation fine, it is such a great yet stressful time for a senior. Maybe she can rest over the summer.

hey,

I am sorry. That is too bad. I had mono at 15. Years later my mom had a resurgance of EBV. It was bad for her. She hurt and was exhausted. She couldn't sleep well either. I ask her what she did. The only thing I remember is she was on an anti-viral medication for a while. She pulled through though.

Good luck

I wonder what kind of anti-viral she took? My ND told me to take something, but it has been discontinued so I have a call into her for another suggestion.

I take Isocort for my adrenals. It is a natural product. You can find it online.

I will check it out - thank you! Do you think it makes a difference? Does it help with fatigue or sleeping better?

loraleena Contributor

It helps with fatigue some.

Joni63 Collaborator

She called back and told me to take Goto Kola. Anyone have experience with this herb?

I'm hesitant to try the isocort. My cortisol levels haven't been tested yet. I think we are doing that in a month if I don't feel any better with my vitamin/mineral supplements and the Goto Kola.

Is exercise ok when you have reactivated EBV and Adrenal Fatigue? My ND said only yoga or walking, but I'm a runner and need to get back to running about 2 miles a day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

I have both...EBV and adrenal fatigue. They are secondary problems to my Lyme disease. My EBV numbers are so high the lab results come back saying "high"...with no numbers! :o I take Valtrex and Olive Leaf Extract for it. My Dr isn't too concerned about the EBV because like I said, they are secondary to my Lyme.

Adrenal fatigue...I'm not taking anything for it right now. Other than immune boosters and a product called "NT Factor Energy" which I don't think specifically helps AF, but it does help with the energy problems.

Joni63 Collaborator

OMGosh Kassandra. You and I have so many similar problems. Is your DHEA level high? She didn't test all my hormones yet, but that is coming soon if I don't feel better in a month or so. She said my Epstein-barr virus numbers were really high. I had some really bad symptoms in May - terrible leg aches, headaches, waking up feeling hungover, horrible fatigue, etc. At this point the only thing that remains is the fatigue and lack of energy.

I get the results Monday morning of all my vitamin/mineral levels so I'll know if my D and serum ferritin are rising. I'm hopeful since I am feeling a little better.

Is NT factor energy available OTC?

fedora Enthusiast

hey,

My mom couldn't remember what she took, but she took it for a month and it worked.

good luck. That is too bad you are having these problems

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Di Wallace's topic in Related Issues & Disorders
      1

      Mucus discharge

    2. - trents replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings

    3. - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Hidden Gluten in distilled vinegar

    4. - Di Wallace posted a topic in Related Issues & Disorders
      1

      Mucus discharge

    5. - ARSTONE replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Feel Good gluten free chicken soup dumplings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,821
    • Most Online (within 30 mins)
      7,748

    Grammy7777
    Newest Member
    Grammy7777
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going gluten free.
    • trents
      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity). Having said that, whatever it may be, apparently there is an ingredient in that product that doesn't agree with you.
    • knitty kitty
      @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements.   When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome.  Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts, I was uncomfortable with that.   Miralax can cause poor vitamin absorption, flushing vitamins and minerals away before they can be absorbed.  Miralax can cause electrolyte imbalances, meaning low magnesium.  Low magnesium levels can cause constipation.  Low Thiamine Vitamin B1 can cause constipation as well.  Magnesium and Thiamine work together to make life sustaining enzymes.  Without sufficient thiamine and magnesium, the gastrointestinal tract slows down resulting in constipation, a sort of catch twenty-two.   I quit taking Miralax.  I took a form of Thiamine, Benfotiamine 250-300 mg, at the beginning of every meal and 200mg magnesium citrate or magnesium glycinate or magnesium l-threonate (Neuromag) at the end of every meal.  My constipation resolved quickly.  When my stool got too loose, I simply reduced the amount of magnesium.  I did not reduce Benfotiamine which has been shown to promote intestinal health and reduce leaky gut syndrome.  If thiamine at night gives too much energy to fall asleep at night, skip the Benfotiamine at the last evening meal. Blood tests ate not accurate measures of vitamin sufficiency.  The best way to check for Thiamine insufficiency is to take it and look for health improvement within a few days.  Thiamine is water soluble, easily excreted in urine if not needed.  Thiamine is safe and nontoxic when used in high doses.  No harm in trying, just to rule this out.   Best wishes.  Do keep us posted on your daughter's progress!
    • Di Wallace
      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal or not
    • ARSTONE
      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
×
×
  • Create New...