Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vegan And Now Gluten Free! Help!


givenupgluten

Recommended Posts

givenupgluten Explorer

Soo, about 6 months ago i decided to go vegan for my health and ethical reasons. I feel very strongly about my decision and intend on maintaining it. Recently due to a lifetime of stomach issues and depressive tendencies, I decided to revisit these issues and speak with a new dr. I was diagnosed when I was younger with IBS. At that time, I was satisfied with that diagnosis and left it at that. I took some medication that did very little and eventually the symptoms passed somewhat. They came back shortly after my move to NYC and now they are worse than ever (4 years later..). My mother has celiac and my symptoms mirror hers exactly.

I spoke with my new dr. about this and he gave me the blood panel test which came out negative. I have not had the biopsy as of yet, b/c he felt that we didnt need to b/c the other test came out negative. I still feel strongly that I have celiac. Just recently I decided to go gluten free while awaiting meeting with a celiac specialist. I just couldnt deal with the symptoms and stomach pain any longer.

I'm doing fairly well, but need some support. I'm frustrated at the idea of not really being able to eat out ever again! I LOVE going out to eat, but now it seems like it will just be a hassle. Any tips on eating out and actually enjoying it, while trying to stay a strict vegetarian AND gluten-free??? Also, are there any of you who are convinced you have celiac, or at least a strong gluten intolerance WITHOUT having positive test results? When I try to explain myself to others, or why I can't eat this or that...I feel like they must think I'm some sort of hypochondriac who THINKS they have a disease. I feel confident in my decision, but I do not know how to express this to others/family without feeling like I need a prognosis from a dr for them to take it seriously.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You could get genetic tests through Enterolab. You might feel even more confident if you have the celiac genes that you are making the right decision.

For eating out. You can always take a veggie burger (gluten-free). I like Sunshine Burgers. Order a salad and a baked potato and be safe. This allows you to be social with your restrictions. I have found that Thai is really good for vegan/gluten-free eating. Tell them "no soy sauce".

I always tell them that I am allergic to wheat and gluten. That they need to use a fresh clean pan for me. And just veggies (chicken cuz I do eat meat. You could ask for tofu if soy doesnt bother you) and sesame oil. Plain salt. And nothing else. I get steamed rice. Yummy!! and very doable.

PF Changs has gluten-free menu. You cold do veggie there too.

AndreaB Contributor

Depending on where you are, I think there are some vegan and gluten free options. I live in Washington so I'm thinking more of Portland and Seattle.

My family hasn't had official testing done but we did have gene testing done as well as ELISA testing and gluten/wheat was a problem. We are all gluten free due to that and with the genes, we will remain gluten free. I just tried adding non gluten free oats and barley (malt) into the kids diet a month or so ago and it definately didn't go well for one of them.

As far as help. The following yahoo group would more than likely be a big help to you. Many recipes are posted on the group and there may be more people to help with eating out, places to go.

Open Original Shared Link

Janessa Rookie

go to vegiac.com

Indian food is a good place to eat out, most places will make most any dish vegan and most don't have gluten to begin with

Raw food is also awesome

Get some vegan gluten free cookbooks, there are many good ones out there

Juliebove Rising Star

We have vegan and raw vegan restaurants here in this area. Some of the foods will contain soy, sprouted wheat, or other gluten containing foods. So it is important that you mention the celiac to them. Restaurants with salad bars are another option. Of course you must be careful of cross contamination. But I have seen some that were good to put all of the vegetables on one side and prepared salads on the other, making that one side safe. My local Central Market has a vegetarian food bar with prepared foods, some of them being not only vegan but gluten-free. The Old Spaghetti Factory offers gluten-free pasta in some locations and you can get it with your choice of sauce. The plain marinara sauce is vegan and so is the gluten-free pasta.

I'm sure you know it is already difficult to get a vegan meal in a mainstream restaurant. Now you just have the added task of making sure your food isn't cross contaminated.

Susanna Newbie

Hey--I got diagnosed thru positive tests, but my brother's were negative. In frustration (and 20 years of getting up at night to have diarrhea) he finally decided to go gluten free. Within a few months, all the symptoms that no doctor could every explain went completely away! So, he had negative tests, but a positive family history (since I have it), all the symptoms, and the symptoms resolved on the gluten-free diet--so you tell me, does he have celiac disease, or doesn't he? Doesn't matter--he feels cured so he's never going back to gluten.

And yes, it's possible to live gluten-free and vegan too. At my house, I'm celiac, and one of my daughters is vegan. Here are some vegan and gluten-free meals we eat:

--eggs. (Just kidding)

--tacos: corn tortillas, refried beans, salsa, avocado, lettuce, etc. You can even do the soy or almond vegan cheese if you want. (for us meat eaters, I also put out chicken and cheese)

--spaghetti: gluten-free pasta, jar sauce, tofu whisked into the sauce, maybe add mushrooms or whatever. We do this with garlic bread too: gluten-free/vegan bread, vegan margarine, minced garlic, toasted under broiler.

--build your own pizzas: gluten-free/vegan loaf of bread cut longways, jar marinara sauce, and put out the fixins for everyone to build their own: we put out peppers, vegan cheese, artichoke hearts, olives, sun dried tomatoes, etc.

--succotash: corn, lima beans (or edamame), a pinch of red pepper flakes, sald and pepper, a pinch of dried thyme--this is great for brunch, dinner, whatever--the whole fam loved it.

Restauants: we've had good luck with PF Changs, Pei Wei, (these are chains), Indian food, Mexican (beans and rice, corn tortillas, salsa), and one great gourmet pizza place in town: Picazzo's (we live in Flagstaff, AZ, and there are several other Picazzo's in Arizona). Their gluten-free crust is vegan and you just pick what toppings you want. Flagstaff even just got a new vegetarian restaurant called Hip Vegetarian--which has a gluten-free menu if you ask for it.

Over all, yeah you'll have to adjust, but I bet it won't be as hard as you think: you already learned to adjust to vegan diet--I recommend you go to your favorite vegetarian restaurants and ask them what gluten-free dishes they can do for you--you'll be surprised at how much they know about it. Of course you can't do tempeh or seitan anymore, or most of the fake meats, but Boca does have some vegan burgers you can get in the regular grocery stores now.

You can do this.

Good luck,

Susanna

nutralady2001 Newbie

I know you are talking about eating out but this blog

Open Original Shared Link has lots of recipes with a vegan section here

Open Original Shared Link

and if you read through her site she has done a lot of travelling/ eating out and haslots of suggestions, hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I didn't go to any doctors - learned not to trust them long ago. I suppose it depends on lifestyle, whether your decision is challenged by friends and/or family. But, if the people in your life have seen you suffering, and after going gluten-free they see you feeling better, that I think should be convincing enough.

MySuicidalTurtle Enthusiast

I am a gluten-free vegan, too! I love it and find that after I got used to the in's and out's of both diets that it is pretty easy. I find a few places to eat at frequently that are more local so that they will pretty much make things the way I need. My boyfriend (he is a vegetarian) has got me eating Asian food and most places will make me food without soy sauce and without eggs, yummie. Just try and relax and start small then add food to your diet until you are comfortable. I have had a lot of fun being a gluten-free vegan and even stayed in Spain for five weeks and did great. I travel around the U.S. too. Just make sure you always have a fruit bar, or raisins in your purse in case you cannot find something in a jam. Today, I took my Father out for Father's day and we had a great lunch at Cheese Burger in Paradise and other chains have gluten-free menus and some are vegan or vegan options. Anyways, Open Original Shared Link is a good resource and feel free to PM me, too.

givenupgluten Explorer

Thanks everyone! These are some great ideas..I really appreciate it..and I dont feel so alone! :)

In response to the genetic testing - I have looked into it, and wondered whether it would be worthwhile, or does it make more sense to simply see how I feel on a gluten-free diet? I'm not really sure. Part of me wants some verification and substantial scientific evidence, and the other part of me doesn't care. I have heard that it's somewhat common to get 'false negatives' from these tests, and that prevents me from bothering with them (along with the cost). I'm still a little interested though...

What are your thoughts??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.