Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here With Questions


annofthejungle

Recommended Posts

annofthejungle Rookie

My son tested negative for Celiac several months ago (both blood test and biopsy) but had progressively worse diarrhea until about a month ago when we took gluten and dairy out of his diet. For the most part he's been OK since then with occasional blowouts. I think the blowouts were due to carelessness on our part. To complicate matters he has both Down syndrome and leukemia. He's been getting chemoterapy for about three years and is almost done with treatment. Is there a list of ingredients anywhere that we need to avoid? Are there some foods (spaghetti sauce) he should avoid because they're just too acidic? Can he have baked beans? We're having a hard time eating as a family and keeping him happy.

Thanks for any info you have to offer!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ridgewalker Contributor

First of all, Welcome to the forum! I was wondering how old your son is? False negatives are more common than most Drs would have you believe, and the number gets even higher when you're talking about small children. It sounds like your guy has a lot to deal with, but I think you're on the right track with the gluten-free diet!

Click here for a few helpful lists on foods to avoid.

For spaghetti sauces, everyone is individual as far handling the acidity. What you do need to be aware of though, is that some varieties contain gluten. Many don't. Check the companies' websites to see which varieties are safe.

For baked beans, I recently read this on Bush's Beans website:

Q. Are your products gluten-free?

A. All of our Bush's Best products are gluten-free with the exception of Bush's Best Chili Beans, the four varieties of Bush's Homestyle Chili and Bush's Chili Magic

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,100
    • Most Online (within 30 mins)
      7,748

    Masouras
    Newest Member
    Masouras
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      Thank you for the information. I did order/receive GliadinX to have on hand in the event of suspected exposure.
    • Dc91
      Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help 
    • trents
      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
    • Kiwifruit
×
×
  • Create New...