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Medication Question


minnowjoy

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minnowjoy Rookie

Hi All!

I am new here looks like a great site with ALOT of info! I was wondering if anyone else Dr. Has put them on Azathioprine tabs and Entocort?? I just had a scope and colonoscopy done and my dr. said besides celiac I have tons of overactive Lymphocides. Never heard of that? Anyone else???

Thanks!


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cyberprof Enthusiast
Hi All!

I am new here looks like a great site with ALOT of info! I was wondering if anyone else Dr. Has put them on Azathioprine tabs and Entocort?? I just had a scope and colonoscopy done and my dr. said besides celiac I have tons of overactive Lymphocides. Never heard of that? Anyone else???

Thanks!

I think your spelling might be wrong: Do you mean an increased number of intra-epithelial lymphocytes? That is just a clinical finding of celiac, Marsh Level One.

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The drugs (someone correct me if I'm wrong) are prescribed to calm your intestinal symptoms and are given to those with other diagnoses like Crohns, ulcerative colitis etc. You shouldn't need the drugs after you go gluten-free and your intestines heal a bit. Others may have more comments. Welcome!

~Laura

bearly Newbie
I think your spelling might be wrong: Do you mean an increased number of intra-epithelial lymphocytes? That is just a clinical finding of celiac, Marsh Level One.

Open Original Shared Link

The drugs (someone correct me if I'm wrong) are prescribed to calm your intestinal symptoms and are given to those with other diagnoses like Crohns, ulcerative colitis etc. You shouldn't need the drugs after you go gluten-free and your intestines heal a bit. Others may have more comments. Welcome!

~Laura

bearly Newbie

I have been on Entocort for the last 2 years. Every time I try to go off it I am back to square one. I do follow a strict celiacs diet. The Dr. at Mayo said that I would be on it the rest of my life but would be able to get down to tow tablets a day. The Dr. also has me open the tablets twice a day and chew the grandulars.

cyberprof Enthusiast
I have been on Entocort for the last 2 years. Every time I try to go off it I am back to square one. I do follow a strict celiacs diet. The Dr. at Mayo said that I would be on it the rest of my life but would be able to get down to tow tablets a day. The Dr. also has me open the tablets twice a day and chew the grandulars.

Bearly, I hope you get better.

Minnowjoy, I don't think you'll have to be on the drugs forever. Most celiacs are ok after going gluten free, but I guess that depends on your level of damage and if you have any other conditions. Be sure to ask questions about the diet, as the learning curve is steep. This is a good place to get good info.

~Laura

minnowjoy Rookie
I think your spelling might be wrong: Do you mean an increased number of intra-epithelial lymphocytes? That is just a clinical finding of celiac, Marsh Level One.

Open Original Shared Link

The drugs (someone correct me if I'm wrong) are prescribed to calm your intestinal symptoms and are given to those with other diagnoses like Crohns, ulcerative colitis etc. You shouldn't need the drugs after you go gluten-free and your intestines heal a bit. Others may have more comments. Welcome!

~Laura

Hi Laura,

I think that is right. I had no idea how to spell it. I did ask alot of questions at the dr.............but seem to forget and everything just kind of ran together. I do have a meeting July 3 with a dietician who specializes in Celiac Disease so I am loking forward to that!!

Thanks again for your help!

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    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
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    • Skg414228
      Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put that info on the forum in case someone finds it interesting later. I’ll update in April when I find out. 
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