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Test Results

shanluts

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shanluts Apprentice
shanluts
Posted

I have celiacs and my 5yo daughter has SEVERE skin issues. It seems that her skin is better gluten-free. PRIOR to making her gluten-free I had testing done on her. SHE WAS EATING GLUTEN FILLED diet at the time of testing. The tests are negative.

Does that mean she will NEVER have celiacs?

This is the results:

IgA <4 (negative 0-4)

IgG <9 (Negative 0-9)

(tTG) IgA <4 (negative 0-3, Weak Pos 4-10)

Tissue Translutaminase (tTG) IgG <6 (Negative 0-5, weak positive 6-9)

Endomysial Antibody IgA Negative (negative 27-195)

Immunoglobulin A, QN, Serum 135

Celiac Disease HLA DQ assoc.

DQ2 (DQA1 0501/0505, DQB1 02XXNegative

DQ8 (DQA1 03XX, DQB1 0302) Negative

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fedora Enthusiast
fedora
Posted

well,

although she doesn't have the main 2 genes for celiac, that can't 100% rule out that she can't get it. Some people get celiac without those two main genes.

Even without celiac, she could still be gluten intolerant.

HOw old is she? Is the Immunoglobulin A, QN, Serum 135 the total IgA level?

BelievinMiracles Explorer
BelievinMiracles
Posted
I have celiacs and my 5yo daughter has SEVERE skin issues. It seems that her skin is better gluten-free. PRIOR to making her gluten-free I had testing done on her. SHE WAS EATING GLUTEN FILLED diet at the time of testing. The tests are negative.

Does that mean she will NEVER have celiacs?

This is the results:

IgA <4 (negative 0-4)

IgG <9 (Negative 0-9)

(tTG) IgA <4 (negative 0-3, Weak Pos 4-10)

Tissue Translutaminase (tTG) IgG <6 (Negative 0-5, weak positive 6-9)

Endomysial Antibody IgA Negative (negative 27-195)

Immunoglobulin A, QN, Serum 135

Celiac Disease HLA DQ assoc.

DQ2 (DQA1 0501/0505, DQB1 02XXNegative

DQ8 (DQA1 03XX, DQB1 0302) Negative

I'm new to this gluten problem and diet, but from the research I've done (and it's been a lot) but some people don't develop celiac until later in life or at least enough damage to notice it. I think it depends on each person. She may have the genes for them but perhaps it hasn't kicked in or done enough damage. But she also might have gluten intolerance, which is what I'm believe to have. That means you have the same systems but gluten doesn't do as much damage if at all as what it would do to a celiac. If you keep her on a gluten free diet, she will never develop celiac disease, even though she might have the genes for it. So if it's helping her skin (which I've had eczema since I was a baby) then keep her on it because from my perspective, even the skin rash was embarrassing for me and lowered my confidence a little bit because of my skin. I wish I could've gotten rid of mine earlier!

dally099 Contributor
dally099
Posted

hi, it seems to me that she is at the the closest one can come to being positive, and it looks like the tisssue test is positive. did she have the skin biopsy done, is that what the tissue sample is? i dont know with those results i would be carefull with her, what did the doc say?

shanluts Apprentice
shanluts
Posted
  • Author

Thanks for the responses....

I am worried that her skin will cause her embarresment soon. That is why I am forcing the gluten-free for now. However, the doctor says her testes are negative so with the expense, and disappointment on her cute little face.....You get the idea.

It is so easy to talk yourself in and out of whether the diet is helping her. We have a pool...is it the chlorine???? She snuck Cookie Crisp BUT she swam the same day....Is it eczema or DH? One doctor says eczema one says DH.

No she did not have the DH biopsied. Tissue Transglutaminase (tTG) was one of the tests on the Lab paper....I thought it seemed like a Weak Positive too!

We are going to continue on the gluten-free diet and see what comes of it.

Shannon

BelievinMiracles Explorer
BelievinMiracles
Posted
Thanks for the responses....

I am worried that her skin will cause her embarresment soon. That is why I am forcing the gluten-free for now. However, the doctor says her testes are negative so with the expense, and disappointment on her cute little face.....You get the idea.

It is so easy to talk yourself in and out of whether the diet is helping her. We have a pool...is it the chlorine???? She snuck Cookie Crisp BUT she swam the same day....Is it eczema or DH? One doctor says eczema one says DH.

No she did not have the DH biopsied. Tissue Transglutaminase (tTG) was one of the tests on the Lab paper....I thought it seemed like a Weak Positive too!

We are going to continue on the gluten-free diet and see what comes of it.

Shannon

With 21 years of experience with eczema...chlorine is our enemy...so that could be a possible reason too...but also with 21 years of experience, being gluten free has cleared it up pretty good!

nora-n Rookie
nora-n
Posted

Tissue transglutaminase means just Ttg test, which is the newest test. They did not test any tissue, it is just thename of the test.

The < and the number just means it was below 6 and negative, it does not mean it was 6 or 5, just below 6 and therefore negative.

often we see here that those without the main genes for celiac have negative tests, but that does not rule out gluten sensitivity. Just read people's signatures and there are several with other genes that were very ill from gluten and finally got much better off gluten, often after many years of misdiagnosis.

The esiest way to explain to people it is to say they are gluten-sensitive. (very gluten-sensitive)

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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