Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will I "know" ?


peetred

Recommended Posts

peetred Rookie

We have had my son on a Gluten free diet for about 4-5 days now. My son had never had a "real" formed bowel movement and is 2 years old.. mostly they were very loose/runny. He has also been iron deficient. Last week he had the flu or rotovirus, so we started the Gluten free diet when he was starting to feel better...

Today he had his FIRST formed bowel movement in the toilet. I mean, it actually looked normal, which has never happened before. He also did some in his diaper and they are sticky but more formed that his "usual".

How long do you think It will take for me to "know" or be convinced that it was Celiacs. To me, it just seems to easy a fix. I keep waiting for them to go back to his regular loose stools and the battle to go on.. but I am rejoicing at the fact that my instincts could be right and I really do know my son and his body and that this is Celiacs. Did any of you feel the same way when going gluten free? :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
We have had my son on a Gluten free diet for about 4-5 days now. My son had never had a "real" formed bowel movement and is 2 years old.. mostly they were very loose/runny. He has also been iron deficient. Last week he had the flu or rotovirus, so we started the Gluten free diet when he was starting to feel better...

Today he had his FIRST formed bowel movement in the toilet. I mean, it actually looked normal, which has never happened before. He also did some in his diaper and they are sticky but more formed that his "usual".

How long do you think It will take for me to "know" or be convinced that it was Celiacs. To me, it just seems to easy a fix. I keep waiting for them to go back to his regular loose stools and the battle to go on.. but I am rejoicing at the fact that my instincts could be right and I really do know my son and his body and that this is Celiacs. Did any of you feel the same way when going gluten free? :rolleyes:

Yes, my dh and I felt the same way with our dd. After months of struggling, it was like night and day...and it began turning around in the first 24 hours.

Dealing with my dd's issues gave me a lot more confidence in trusting my own instincts. Once my dd began recovering, a lot of well-meaning people tried to undermine that by blowing the initial problems off as having been just a "phase". The reactions are pretty cut and dry. The solution is as well. I also thought this was "too easy a fix". :lol: But hey...who cares if it's not that hard??? Just imagine how many other people in this world would benefit if only doctors would stop balking at dietary changes and really started looking at symptoms in terms of diet and nutrition. The results would be miraculous.

Kudos to you for following your gut instincts on this. That can take a lot of courage as well as personal sacrifice. Your son is one lucky little boy. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    2. - Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    3. - trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    4. - Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    5. - Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,432
    • Most Online (within 30 mins)
      7,748

    Lbcre8
    Newest Member
    Lbcre8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
    • Scott Adams
      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
    • trents
      Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease or NCGS, it is likely that a gluten-free diet corrects his symptoms and there would be no need to pursue a lower GI and it's nasty prep.  I would also add that the immune system of a child his age is not mature. It's in flux. Because of this, celiac disease testing can yield erratic results. And I would also add that some experts believe that NCGS can be a precursor to the development of celiac disease. If this is true, there would seem to be transition phases. I hope you will keep us posted.
    • Jy11
      Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac.  But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again! 
    • Scott Adams
      As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet.
×
×
  • Create New...