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KaitiUSA

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KaitiUSA Enthusiast

Well, I moved to Arkansas at the beginning of the year to get married and so I had to find a new GI doctor. We went and saw him 2 days ago and I have been having some of my symptoms again(think partly due to my anxiety disorder and getting off of those meds that helped with it) So he was puzzled that my former GI doc was able to give me a 99% diagnosis since they normally are not supposed to do that unless there is a biopsy. So, they wanted me to go back on gluten for a week and then do a biopsy but I told him I knew I had it and I get reactions and no longer am malnourished in vitamins and minerals. So they decided to check for refractory celiac. Yesterday I went and had to be sedated and they did one on my. They did a endoscopy and biopsy and they said it all looked great which I figured it would. I really liked the doctor though....he was being very thorough and not giving me answers unless he is confident in the answer and he did a good job and was very knowledgable with celiac. My family (many of whom hate doctors) were there and got to talk to him after the procedure and they were impressed to. Just goes to show not all doctors are bad.

Another guy who is not a GI but another doctor I saw said he has celiac and he can eat anything made of potato and rice and corn and says he gets bread from a normal store and doesn't have to go anywhere special and he also believed you have to have the classic symptoms such as diarrhea and weight loss to have celiac and I was like telling him about it and I was like o my goodness he knew nothing about celiac and if you know this area you would know there is no such thing of finding gluten free bread at the local grocery store.

Anyhow, I have been feeling good since I got back on my anxiety meds. The regular doc. said that I could quit cold turkey since it was a low dose but I went through withdrawal and thats when my symptoms started this mess. But we are talking about starting to have kids so we were hoping to get off of it but I am going to be tapered off instead. I was a little upset with the doctor but I didnt ask the specialist who put me on it so it was myt fault.

Anyway thats all for now B):)


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Rachel--24 Collaborator

Kaiti,

I'm glad everyone is happy with the new GI. :)

Thanks for the update and a congrats on getting married!!

I'm happy that you're feeling better now and hopefully we'll get to see a baby pic up there one of these days.

Good luck with everything! :)

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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