Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Says Blunted Villi Normal?!


CamiJ

Recommended Posts

CamiJ Newbie

I just had my endoscopy/colonoscopy this week. I've had negative results on my celiac panel bloodwork. The GI said that he saw areas of blunted villi during my endoscopy. However, he said that since he has come across blunted villi in normal, healthy intestines before, blunted villi was not of particular concern, and not conclusive for celiac disease. My biopsies have been sent to the pathologist now, so hopefully they will be knowledgable about the difference between "normal" blunted villi, and blunted villi due to celiac. Is there a difference? Does my GI know what he's talking about? I thought that all blunted villi was a concern. Just what does the pathologist look for anyway?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have never heard of blunted villi being normal. Hopefully the pathologist will pick up on the diagnosis but even if he doesn't you may want to give the diet a shot. If after a couple of months gluten-free you have still not had any relief then do continue to look further. For optimum healing you shoud delete dairy for a couple of months at first also, with blunted villi they may not be forming the enzymes you need to digest dairy. Once the villi heal some of us are able to add dairy back in with no issues.

Ridgewalker Contributor
I just had my endoscopy/colonoscopy this week. I've had negative results on my celiac panel bloodwork. The GI said that he saw areas of blunted villi during my endoscopy. However, he said that since he has come across blunted villi in normal, healthy intestines before, blunted villi was not of particular concern, and not conclusive for celiac disease. My biopsies have been sent to the pathologist now, so hopefully they will be knowledgable about the difference between "normal" blunted villi, and blunted villi due to celiac. Is there a difference? Does my GI know what he's talking about? I thought that all blunted villi was a concern. Just what does the pathologist look for anyway?

:blink: I'm wondering what criteria he used to proclaim those other intestines "normal" and "healthy," if they contained blunted villi. :unsure: Or is he assuming that villi blunting must mean nothing in a person whose blood tests are negative... :angry: Faulty logic, is what that is...

kbtoyssni Contributor

huh?

CamiJ Newbie
:blink: I'm wondering what criteria he used to proclaim those other intestines "normal" and "healthy," if they contained blunted villi. :unsure: Or is he assuming that villi blunting must mean nothing in a person whose blood tests are negative... :angry: Faulty logic, is what that is...

That's just what I thought! Really, how many people with optimal digestive health go to a GI and ask to have an endoscopy done? He's probably never even seen a healthy intestine! Anyway, I go back and forth on this because part of me says that he is the one with the medical degree, and he should be an expert in digestive health. I've read a library book about celiac, and I've done about a million searches on the internet. I can't exactly proclaim infinite knowledge on the subject. I want to trust a doctor, any doctor, but I'm not having great results so far. Up until now, I've just had a bunch of different diagnoses - each with a medication that didn't work, and nothing that really solved my problems. Anyway, my GI said to not change my diet, so I'm doing the opposite. I went gluten free (and casein free) the day of the endoscopy. So, I'm on day three now, and it's going okay. I'm still having a lot of abdominal issues, but maybe that's to be expected if I have all this blunted villi...

Ursa Major Collaborator

Good thing your biopsies have been sent to a pathologist, who hopefully will know what he is talking about. Clearly, your GI does not.

There is no such a thing as 'normal' blunted villi. If they are blunted, something is causing that, and it is NEVER good news. And if there are blunted villi, the intestine is NOT healthy. What a moron! My advice is, to switch GIs if you still need one. This one is a dud.

Guest lorlyn

My 11 year old daughter had positive blood work then on her biopsy her villi had just started to turn red and they diagnosed her with Celiac. The diet has helped with her problems so I am happy to know what was wrong with her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CamiJ Newbie
I have never heard of blunted villi being normal. Hopefully the pathologist will pick up on the diagnosis but even if he doesn't you may want to give the diet a shot. If after a couple of months gluten-free you have still not had any relief then do continue to look further. For optimum healing you shoud delete dairy for a couple of months at first also, with blunted villi they may not be forming the enzymes you need to digest dairy. Once the villi heal some of us are able to add dairy back in with no issues.

Yeah, I have a question about cutting out dairy - Does eating dairy prevent the villi from healing? Or, is it just that I won't be able to digest it very well until the villi heal? I've been lactose intolerant for years, so I'm used to taking Lactaid with nearly every meal anyway. I cut the dairy the day I cut gluten because I suspected possibly an allergic-type reaction to it (and wheat) - if not celiac. Along with the abdominal symptoms (diarrhea, gassiness, pain), I've been having sinus/allergy type reactions. I get stuffy and a sinus headache. So, since I've cut gluten and dairy (a few days ago), I'm still having digestive issues and sinus issues every time I eat. So, I think I can rule out an actual allergy (unless it's to something else that I haven't thought of). I heard Dr. Oz (on Oprah) say once that sinus issues could be caused by inflammation of the digestive organs. That would make sense - if my villi are so damaged due to celiac, I probably will continue to have sinus issues until it all heals, right? So, can I eat dairy with Lactaid, or should I stay away completely for awhile?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,988
    • Most Online (within 30 mins)
      7,748

    Cappynan
    Newest Member
    Cappynan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...