Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"hunger" Pains, What Do You Think?


Breila

Recommended Posts

Breila Explorer

Before DS was diagnosed, he would eat a meal and 15-30 minutes later start complaining that he was hungry. Once we got the celiac diagnosis, we figured that he had been misinterpreting a gurgly upset stomach for "hungry" this whole time and sure enough, once we went gluten-free, the constant "I'm hungry" stopped.

Now it has started up again. We haven't changed anything recently, so I can't imagine a regular source of gluten contamination, which was my first thought. Believe me, I've racked my brain and while there have been a few incidences (eating out, mostly) where cross contamination could have happened, there's nothing regular.

It'll work like this, he'll eat a meal's worth of food and announce he's full. 20 minutes later after I've put all the food away, he come in complaining that he's hungry, SOOOO hungry. I've tried to talk to him about it and I've suggested that what he's feeling isn't likely to be hunger pains, it is more likely an unsettled stomach, but from what source? And whatever it is, more food (which is usually gluten-free crackers or a bowl of rice, his fave comfort food) does seem to settle it. Maybe indigestion?

I'm close to calling the ped. and bringing him back in, but I have a feeling there are posters here who would have a better clue!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Have you had his blood sugar tested?

Sometimes when the pancreas doesnt work correctly, you can eat a meal, but the pancreas produces "too much" insulin for that meal. The extra insulin in the bloodstream triggers hunger to balance it out.

High glycemic foods are likely the cause (think sugars, rice, potatoes, corn, etc.)

Sometimes an organ will go into "overdrive" before it "conks". So you should get it checked out.

aikiducky Apprentice

Too much stomach acid could also make one feel hungry, and eating something would relieve that for a while.

But if he's not been gluten free for very long, he could also be extra hungry right now. I was eating all the time when I first went gluten free, really insane, and I've seen other people report the same here. In my case it got better after a few months. Until then I had to eat every two hours or so or I'd almost faint with hunger. here's one current thread about hunger for instance: Open Original Shared Link

Pauliina

curlyfries Contributor

I would suggest keeping a food journal. If her really is, as you suspect, reacting to an upset stomach instead of actual hunger, then he may have another food intolerance. I know that before I went gluten-free, when my stomach was upset, I would want to find something else to eat that would settle my stomach. Eating just about anything would at least temporarily ease the pain. Of course, that is why I was overweight!

slmprofesseur Apprentice

My son (9 y.o.) does the same thing! And this is on the gluten diet. It doesn't matter whether the food is Gluten-free or not. I am going to ask the ped to test him on Thurs. He constantly has loose stools also. Hopefully she won't brush us off...

gfpaperdoll Rookie

He probably really is hungry. When first gluten-free a lot of people have a huge appetite. It happened to a friend of mine - she is 83 & once gluten-free - a couple of months ago - her appetite picked way up & she would eat anything. She went from not eating anything except a little something once a day to eating 2 eggs, 2 corn tortillas, & grits with butter for breakfast, then she had juice & a midmorning snack, a hot meal for lunch & more fruit (usually a whole fruit plate) & nuts for mid afternoon snack & gluten-free soup for dinner with some mission brand corn chips or Lundberg Rice Chips, with maybe a deviled egg.

I would make sure he is getting enough fat & protein in his diet. Some almond butter on an apple slice is good, some cold sliced roast or chicken that you keep in the refrig is also good maybe with some fruit. That kind of stuff.

Just me, but I would limit the rice & potatoes to meal time - snacks would be meat or fish, nuts, good fats like avocado & olive oil, fresh veggies & fresh fruit. Dried fruit is also good. Make ants on a log, stuff celery with almond butter or peanut butter (I think almond butter is healthier) & sprinkle with raisins.

You can also check the SCD sites & get recipes for cookies made with almond meal - lots of eggs, some fat & fill with dried fruits, nuts, coconut, chocolate chips etc etc.

Fiddle-Faddle Community Regular

Could he be going through a growth spurt?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,103
    • Most Online (within 30 mins)
      7,748

    Judithann
    Newest Member
    Judithann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      Thank you for the information. I did order/receive GliadinX to have on hand in the event of suspected exposure.
    • Dc91
      Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help 
    • Ryangf
      Hi everyone I’m somewhat new here- at least this is my first time posting.    I have been having persistent stomach issues since July of 2024- so around 7 ish months I’ve been having issues. At first I thought it was just a bout of constipation because I had had that issues before but- it simply did not go away at first I went to urgent care for my bloating and stomach pain and constipation and they basically didn’t really check anything and just passed it off as constipation and gave me stool softeners. Then I started having joint pain and a sharp stinging sensation in my back that debilated me and urgent care passed it off as muscle spasms. Then I finally went to my primary care doctor and they put me on a lowfodmap diet- and that didn’t help…(I was still eating gluten product),then I told her that didn’t help and then she didn’t contact me for several weeks not even trying to pinpoint the cause of my discomfort. So I started doing my own research from reputable sites- and analyzed my symptoms. Then suddenly I started losing weight rapidly 23 pounds in a month to be exact and I had like pale yellowish stool. Then I started realizing maybe it was gluten that was irritating me and I cut it out and started feeling a little bit better but still had some discomfort. Then I contacted my doctor again for a blood test for it and it came back negative. But I still was worried at least if it could be anything else going on in my stomach though I was sure it was celiac disease. Then after me practically begging her to let me get an endoscopy eventhough she insisted I was fine- I choose a doctor to see that was not my primary care doctor to evaluate me and they recommended I get an endoscopy…and I had an endoscopy a few weeks later. That came back negative for celiac with my biopsy too and no other damages from my ultra sound I got or anything. So I was naturally extremely confused. So I started to feel like maybe I was over exaggerating. But then I started researching on endoscopies- and found out for a confirmed positive blood test and endoscopy I had to be CURRENTLY eating gluten something neither of my doctors notified me about nor the GI specialists. So I realized my doctor probably would not order me another endoscopy…and also I just decided do I really need to go through the pain of eating gluten again for an endoscopy- when I could just stop eating it? So I weighed it and at the moment I decided- I would not get an endoscopy and just be gluten free- and for a little bit- I was fine- then my stomach started hurting again- a few times could’ve been from cross contamination but I also saw that a lot of the gluten free products I was eating contained corn and I tested it and stopped eating corn products for a few days and felt better. So I also did research on corn and found that some people with celiac disease can respond negatively to corn because it has a protein in it similar to gluten. So I cut that out completely and felt better for a long time. Except for ocassional corn cross contaminations I felt fine- until recently where I think I may have had corn products a few times consistently- and not noticed despite my stomach upset because I had been dealing with stomach issues so long I thought it was the norm. Now for the past few days possibly because of the consistent corn exposure for the past month I’ve been having an upset and bloated stomach eventhough I stopped eating the corn- because I think (though studies are not sure on corn damaging celiacs stomach lining) corn may have been damaging my stomach lining again during that time- and I may be developing some new intolerances or conditions. I want to go get that checked out but I don’t want to be gaslighted by doctors again- cause it makes me feel crazy. And I’m also debating on whether or not I want to go through the pain and stomach damage again for 2-6 weeks to really confirm if I have celiac disease- and I’ve been even more reluctant because now I am in classes again and I have to be in class consistently standing up a lot (culinary class) for multiple hours on end and I don’t think me being fatigued and sick and in pain is going to be good for me during that time. Should I get an endoscopy to confirm if I have celiac disease again this time actually eating gluten up to that point- or should I just first try to figure out what intolerances I may have developed or other conditions via a doctor- or wait for a while until my stomach lining has repaired sufficiently or at least enough before getting an endoscopy and a blood test again at a time when I am not busy a year or so from now while maintaining a gluten free corn free diet until my endoscopy is booked and then I will begin eating gluten and corn up until the endoscopy? (Sorry I know that was a lot.) 
    • trents
      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
×
×
  • Create New...