Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Really Depress Anyone Else?


LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator

So I definitly stick to whole foods because of cost reasons, and since they are easier to digest. But I just have to have some gluten free replacement stuff once in a while so I don't feel deprived from my old ways of eating, otherwise I will binge on things when I buy them (not good, and a habit I am slowly getting better at breaking)

I used to be heavily into baking. I love to bake and experiment with creating my own recipes. I am actually happy that I found a new challenge: baking gluten free. Only problem, the cost of gluten free flours.

It depresses me and angers me that other people can just go out and buy a huge bag of regular flour and bake cookies and bread until it comes out of thier ears... and here I am looking through the isles at gluten free flours, which arent really all super expensive depending on brand, but considering the amount you get in a bag in comparison to regular flour, it's definitly not easy on the wallet.

I havent even baked anything yet b/c I just dont have the extra money, plus I have to buy new pans. Being a college student doesnt make this easy. I hope maybe some day these gluten-free alternatives will be bought more frequently and lowered in price, or at least sold in bigger bags.

just had to rant....

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikky Contributor

hey

rant seconded, the price of gluten free food is just stupid, when you do get some ive heard a lot of praise for pamela's mix.

Good luck

Link to comment
Share on other sites
cruelshoes Enthusiast

Do you have an asian market near you? I can get many of my flours there very inexpensively. White rice flour, tapioca, potato starch, cornstarch, etc. can be had for $.39 - $.99/lb. There are a few more expensive ones like brown rice flour and sorghum flour that I have to get at the health food store or on A.M.A.Z.O.N. If you are able to get some of your flours at the asian market for less, it may make the average cost of gluten-free flours on par with wheat flour.

You're right, it can be challenging from a financial standpoint to bake gluten-free.

Link to comment
Share on other sites
sickchick Community Regular

Seriously I found a close asian market and it cut my shopping bill IN HALF.

I was dancing... the little asian couple was laughing at me and asking "Why you need so much Coconut Milk"???

:) I bought a lot

Jasmine rice, 50 pound bag 22 bucks! B) I paid $9+ at the grocery for 5 pounds.

a collective sigh of relief :)

And when I get overwhelmed with costs of food I eat rice and beans a few times that week.

Link to comment
Share on other sites
Beth in NC Contributor

It gets to me too, and I've only just started this journey...I guess soon it's gonna get to my hubby too! :lol:

For me, I'm going to really have to talk myself through this. I have made our own fresh home ground whole wheat bread for several years now, 6 loaves at a time. It was so good! And "healthy" too! Weird...I used to add a whole cup of extra gluten to make it softer...little did I know what I was doing!

I went to WF and they were out of the Pamela's bread everyone is raving about. I bought a box mix of the 365 brand and let's just say...it NEEDS something. Overall it wasn't horrible, but it needed to be a bit sweeter.

Maybe it's a good thing that it doesn't taste wonderful, I'm hoping to loose weight doing this rather than gain.

Link to comment
Share on other sites
Katsby Apprentice

It does get expensive. I bought a whole bunch when I first started, determined to make myself something/anything. It was a lot of trial and error really with many products and recipes so the cost just added up. Xanthan Gum is 10.00 for this little dinky bag, but the good thing is it goes far. I finally started buying Pamela's from amazon. It's a lot cheaper than in the stores and you can also get the extra 15% off if you do the subscription, and I didn't want the hassle of mixing my own flours. I've tried the 365 and Bob's flour mixes also and I didn't like either of those. Good luck.

Link to comment
Share on other sites
LuvMoosic4life Collaborator

I will have to look into aisan markets. There are a lot of mexican and latino foods stores around here but I havent seen aisan, but then I havent really looked...

for those of you who buy at the aisian stores, are the flours really gluten-free? I have seen cheap rice flour at wal mart and other stores, but the back of the bag says processed in a facility that makes wheat....

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JayinUT Newbie

I just received my diagnosis 3 weeks ago after going through a balloon endoscopy and colonoscopy with the biopsy proving I had celiac (after 20 years thinking I had IBS) and have been gluten free since. I haven't had an issue adjusting, but the cost, man the cost. Thanks for the tips on the Asian Market. I believe we have several nearby. I'll say that I am actually cooking far more than I did and my wife is getting really good already at modifying receipes that are working quite well and are still tasty. We are finding that by planning out our menu, that is helping as is finding 6 to 8 main dishes that I'll repeat and that work with the family. My two teenagers actually like the diet better, say it tastes better (while, minus the bread).

Link to comment
Share on other sites
Nancym Enthusiast

Fortunately the gluten free fruits, veggies and meat are the same price as the regular ones. :)

I've come to believe that it is really a blessing and that being forced away from food produced in factories is a step in the right direction.

Link to comment
Share on other sites
VioletBlue Contributor

I tend to agree. Once I had to start reading labels and saw what was in most packaged foods and the huge impact of what I'd been eating most of my life hit me, I pretty much just stopped buying anything in a package.

It does get easier. For me now I buy a few special gluten free things that fit into my life; things like breakfast bars, rice noddles, flours and some Pamela products. I leave the rest behind in favor of whole foods or homemade versions of things like crackers or sauces. Unfortunately there are no asian markets within an hour of me and I react to potato flour and cornstarch and to a lesser degree corn. So I buy what flour I use off of Amazon. The last order was for white teff. It was ultimately cheaper that way even with shipping, then buying a single bag from the local organic store when they have it in stock. You can also sometimes find deals on gluten-free flour on ebay; things like Montina and teff mostly.

Fortunately the gluten free fruits, veggies and meat are the same price as the regular ones. :)

I've come to believe that it is really a blessing and that being forced away from food produced in factories is a step in the right direction.

Link to comment
Share on other sites
hawaiimama Apprentice

sorghum (SP) is found in Indian markets as Juwar. I pay $1.97 for a two pound bag. And Millet is same price and sold as bajri flour. I buy my thai rice flour at the chinese grocery and its 69 cents for a one a pound bag. I feel silly going in and buying ten single pound bags but oh well. I also buy all my rice noodles at the chinese supermarket too. I get a spaghetti type noodle for 79 cents a bag. We have always consumed a lot of rice so we've always bought the giant bags of jasmine rice in chinatown. We have always ahd a rice cooker too which makes flawless rice everytime and SO worth the $.

Link to comment
Share on other sites
Welda Johnson Newbie

Hi,

Hospital stays and doctors' visits were een more costly than the food I'm buying now, so I'm rejoicing. Today I bought 12 packages of corn spaghetti and 12 boxes of Stevia sweetener over the internet, and they're going to ship them to me, so I have avoided the $4.50 per gallon of gas and having to drive across town to the two health food stores in town. Thank You God! I get my daily ration of soy protein by mail as well (Genisoy), and it is so neat to have all these things delivered to my door. I eat a vegan diet, and live next door to Von's, so, all in all, I'm blessed, and am now healthy and happy as well. I hope all goes well for you in this, your new way of living. Welda

Link to comment
Share on other sites
slmprofesseur Apprentice

I miss the convenience and feel your pain! Its hard at first. I have changed and I cook more. I moved to whole foods. I occasionally buy things out of a box for dinner. I use frozen veggies if I can't afford fresh. Beans and rice are a staple in this household! I also use up all leftovers. I cook a whole chicken on Sun with some roasted veggies and rice. On Tues. I make it into a soup or chicken casserole.

Most of the time I spend about $125/wk for a family of 4. I usually buy pasta 2x a month, and rice flour. The only Gluten-free special items are cereal (for daycare), oatmeal , and cookies/crackers for snacktime at daycare.

I will be canning/freezing veggies out of my garden like a crazy lady in 3 wks! I am so industrious that I have plans in the works for my own canned veggie soup, tomato, and pasta sauce. So I can come home from work, open the can (really glass jar) and have dinner in 20 minutes!

I remember buying Pamela's bread mix and returning it because of almond flour... (nut allergy)- does it still have almond flour?

Link to comment
Share on other sites
brendygirl Community Regular

There were two college girls who came to my celiac support group who ate in the dorms, explaining that their gluten free diet had to be accommodated by the dorm cooks, and they LOVED it. They thought the diet was so easy- which annoyed the rest of us. We asked them what they had for dinner that night and they said falafel and that is was yummy. They didn't have to pay any extra.

Also, for those of us who work, I signed up for the 125 flexible spending account at work, where I can pretax the amount of money that is the difference in cost between gluten free items and regular items. You can see on my blog here under 125 plan.

The cost of gluten free products is high, but I try to be thankful that I don't have to buy medication or give myself shots or finger pricks, etc. In fact, after 2 years of gluten free living, there are days that go by without me even thinking about it now. :)

Link to comment
Share on other sites
TammyK Apprentice

It depresses me and angers me that other people can just go out and buy a huge bag of regular flour and bake cookies and bread until it comes out of thier ears... and here I am looking through the isles at gluten free flours, which arent really all super expensive depending on brand, but considering the amount you get in a bag in comparison to regular flour, it's definitly not easy on the wallet.

/quote]

I have always had a "wine taste on a beer budget" even before I had to start cooking differntly. And, I have always comforted myself with mind games. At any give time, in your local grocery store or Walmart, sneak a peek into other people's carts. Look at all the junk they spend their money on. Ice cream, donuts and pastries, frozen entrees, chips, cookies, soda pop, hamburger helpers, case loads of beer, processed everything! This stuff may seem cheap but it really isn't. Not only does it make you feel wretched but it catches up with you eventually. Doctor bills and prescription drugs are very expensive. Worse case scenerio, cancer costs hundreds of thousands of dollars and a bypass surgery....

Investing into my health and my children's is top priority. We live a very modest lifestyle, live in a modest house with modest furniture, barely paying the bills and barely clothing our four teenagers. I rarely purchase anything that would adorn me or the house. A family vacation is something we have done only a couple of times in 25 years. My priorities are reflected in my budget. There is room for the gluten-free flours, natural foods and a needed supplement allowance. I figure my investment will pay me back later when my friends and family are spending huge amounts at the local pharmacy and doctor's office. I also look around occassionally to see all the thousands of other ways American's spend their money. Expensive vacations, trips to the theatre, fast food, new clothes, restaurants, new furniture, bigger, nicer house, etc... I'm just wondering if we could give up something unnecessary up in order to feed ourselves better. That's what we have to do. It's all in our priorities.

Most times when I am talking to someone about the importance of a healthy diet or taking a wonder supplement, like Cod liver Oil, I will hear a response like, "OH, we can't afford to live like that. So expensive! " One time this came from a friend who has Chrone's Disease. I still think it is a matter of priorities. Most people find away to get what really matters to them.

gluten-free flours are expensive but I view them as critical and valuable - better than gold. The cost doesn't bother me at all since I have watched my 11 yr old daughter's seizures, migraines and Asthma disappear. I no longer itch or having a pimpley rash on my neck and face. You can't put a price tag on those.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sh00148 replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    2. - cristiana replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    3. - Scott Adams replied to Blue Roan's topic in Related Issues & Disorders
      2

      Lymph nodes in neck + thyroid issues

    4. - Scott Adams replied to StrongerThanCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      2 Separate Glutenings - Recovery Timeline?

    5. - Scott Adams replied to Therockfrog's topic in Related Issues & Disorders
      2

      Itchy skin, tingling in feet and scalp


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,786
    • Most Online (within 30 mins)
      7,748

    bjboudreau
    Newest Member
    bjboudreau
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
    • cristiana
      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
    • Scott Adams
      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
    • Scott Adams
      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with gluten, nuts, and dairy, it might be worth looking into a histamine intolerance or mast cell activation syndrome (MCAS), where the body has an exaggerated response to histamine and other triggers, which can cause itching, tingling, and even high cortisol levels. This would explain why your symptoms change with seasonal pollen too. If you’re considering eating some of these trigger foods before seeing the allergist, it could help with identifying specific IgE reactions. However, since this can worsen symptoms, you might consider working with your doctor to approach this slowly, maybe introducing one trigger at a time. It’s great you’ve tracked your symptoms so closely—that detailed information will help the allergist a lot. In the meantime, perhaps continue with antihistamines, as sometimes trying different types (H1 and H2 blockers, for example) under guidance can make a difference. Hang in there! It sounds like you’re very close to finding the root of these reactions.
×
×
  • Create New...