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Diagnosis


Guest mudders4

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Guest mudders4

Hello, I'm not very good at typing. Sorry, I would love if someone can let me know what they think about my case. I'm 35 and have been sick almost all my life. I lost all my teeth, I have had 3 iron infusions and it isn't fun. I lose my entire volume of iron. I have yeast infections every other month. Constant diarrhea for years. I had blood test done that showed slight postive. Had biopsy that was negative. I was told by GI Dr. i am not celiac. I strongly disagree with my own research. I have been very confused and frustrated. I'm in the process of testing with Enterolab. Has anyone ever had anything like this.Thanks


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lovegrov Collaborator

Go gluten-free and see what happens. It appears you have nothing to lose.

richard

Guest mudders4

Thank you so very much for replying. That is my plan as well as the testing from enterolab.I appricate you help.

Thanks Vicki

KaitiUSA Enthusiast

Well biopsies can miss damage if they don't go to the right place or if there is not that much to detect. If there was a slight elevation in the blood test something has to be going on. If you really believe that you have celiac then you could try going gluten-free as richard suggested. Your body will know better then any doctor could tell you. Also you might want to consider getting a doctor in your area who is well versed in celiac disease. So many doctors don't have the knowledge about celiac disease. Hope you get feeling better :D

Guest mudders4

Hi, I just wanted to thank you for your reply. I am so thankful to have found you all. I am going to do the one test at enterolab. But I will not wait for a dr. to tell me I have it. I am going to start the diet and I'm a bit nrevous. I will probably have more questions we I start. Thank you again you have all been helpful.

Thank you

Vicki

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      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
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